The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom
The COVID-19 pandemic had a profound impact across the globe. Evidence suggests children with Special Educational Needs and Disabilities and their families experienced impacts on well-being and disruptions in support from education and health services. This study investigated the impact of measures...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2023-06-01
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| Series: | Frontiers in Psychology |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1175636/full |
| _version_ | 1797813746355142656 |
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| author | Emma Pagnamenta Penny Hodgkinson Rosemary Davidson Victoria L. Joffe |
| author_facet | Emma Pagnamenta Penny Hodgkinson Rosemary Davidson Victoria L. Joffe |
| author_sort | Emma Pagnamenta |
| collection | DOAJ |
| description | The COVID-19 pandemic had a profound impact across the globe. Evidence suggests children with Special Educational Needs and Disabilities and their families experienced impacts on well-being and disruptions in support from education and health services. This study investigated the impact of measures associated with the COVID-19 pandemic on children and young people (CYP) with Down syndrome in the United Kingdom, specifically changes in speech, language and communication abilities, behavior, social, emotional and mental health and access to education and healthcare services. Forty-six parents/carers of CYP with Down Syndrome (aged 2–25 years) completed an online survey between June and September 2020. Parents/carers frequently reported deterioration in speech, language and communication, literacy and attention skills since the onset of the pandemic. Deterioration in social and emotional wellbeing and behavior, including greater reliance on adults were also reported for some CYP with Down syndrome. Parents reported challenges with home-schooling and reductions in support from education and community services. Preferences for support during COVID-19 were for professional support or from other parents. These findings have implications for the support that is now needed for CYP with Down syndrome and their families and for periods of social restrictions in the future. |
| first_indexed | 2024-03-13T07:56:22Z |
| format | Article |
| id | doaj.art-a5acc9eab39148a8a57989b0bb42f4a6 |
| institution | Directory Open Access Journal |
| issn | 1664-1078 |
| language | English |
| last_indexed | 2024-03-13T07:56:22Z |
| publishDate | 2023-06-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Psychology |
| spelling | doaj.art-a5acc9eab39148a8a57989b0bb42f4a62023-06-02T04:34:04ZengFrontiers Media S.A.Frontiers in Psychology1664-10782023-06-011410.3389/fpsyg.2023.11756361175636The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United KingdomEmma Pagnamenta0Penny Hodgkinson1Rosemary Davidson2Victoria L. Joffe3School of Psychology and Clinical Language Sciences, University of Reading, Reading, United KingdomSchool of Health and Social Care, University of Essex, Colchester, United KingdomInstitute for Health Research, University of Bedfordshire, University Square, Luton, United KingdomSchool of Health and Social Care, University of Essex, Colchester, United KingdomThe COVID-19 pandemic had a profound impact across the globe. Evidence suggests children with Special Educational Needs and Disabilities and their families experienced impacts on well-being and disruptions in support from education and health services. This study investigated the impact of measures associated with the COVID-19 pandemic on children and young people (CYP) with Down syndrome in the United Kingdom, specifically changes in speech, language and communication abilities, behavior, social, emotional and mental health and access to education and healthcare services. Forty-six parents/carers of CYP with Down Syndrome (aged 2–25 years) completed an online survey between June and September 2020. Parents/carers frequently reported deterioration in speech, language and communication, literacy and attention skills since the onset of the pandemic. Deterioration in social and emotional wellbeing and behavior, including greater reliance on adults were also reported for some CYP with Down syndrome. Parents reported challenges with home-schooling and reductions in support from education and community services. Preferences for support during COVID-19 were for professional support or from other parents. These findings have implications for the support that is now needed for CYP with Down syndrome and their families and for periods of social restrictions in the future.https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1175636/fullDown syndromeCOVID-19mental healthcommunicationeducationhealthcare |
| spellingShingle | Emma Pagnamenta Penny Hodgkinson Rosemary Davidson Victoria L. Joffe The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom Frontiers in Psychology Down syndrome COVID-19 mental health communication education healthcare |
| title | The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom |
| title_full | The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom |
| title_fullStr | The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom |
| title_full_unstemmed | The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom |
| title_short | The impact of COVID-19 (Coronavirus) on children and young people with Down syndrome in the United Kingdom |
| title_sort | impact of covid 19 coronavirus on children and young people with down syndrome in the united kingdom |
| topic | Down syndrome COVID-19 mental health communication education healthcare |
| url | https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1175636/full |
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