Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records)
Abstract Background Following an initial NHS Health Check appointment, the National Institute for Health and Care Excellence (NICE) suggest patients with QRISK2 scores of ≥10% should be offered advice on lifestyle and the risks and benefits of starting a statin. NICE recommend GPs should ascertain p...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2018-06-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s40900-018-0101-7 |
| _version_ | 1818856775860879360 |
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| author | Brian McMillan Sarah Fox Moira Lyons Suzy Bourke Manoj Mistry Angela Ruddock Benjamin Brown Mei Yee Tang Harm Van Marwijk |
| author_facet | Brian McMillan Sarah Fox Moira Lyons Suzy Bourke Manoj Mistry Angela Ruddock Benjamin Brown Mei Yee Tang Harm Van Marwijk |
| author_sort | Brian McMillan |
| collection | DOAJ |
| description | Abstract Background Following an initial NHS Health Check appointment, the National Institute for Health and Care Excellence (NICE) suggest patients with QRISK2 scores of ≥10% should be offered advice on lifestyle and the risks and benefits of starting a statin. NICE recommend GPs should ascertain patients’ pre-existing knowledge of cardiovascular disease risk, explore health beliefs, assess readiness to change, offer support, and engage family members. Condensing this complex discussion into a short consultation may result in inadequate patient understanding of the benefits of preventive measures. An alternative approach is needed. We propose a digital adjunct giving patients the opportunity to interact with their health check results from home before returning to see their GP. Before embarking on funding applications we sought the views of patients and members of the public. Methods We consulted the Primary Care Research in Manchester Engagement Resource (PRIMER), an established departmental Patient and Public Involvement (PPI) group (N = 9) and then ran a workshop with 19 members of the public, co-facilitated by 4 members of PRIMER. Following a brief presentation on the background to the project, attendees were split into four groups and introduced to Ketso, a toolkit for creative engagement. Ketso was used to encourage group discussions regarding the project idea. Results This PPI work improved the study design and proposed intervention. Discussions focussed on three themes: 1) positive feedback, 2) challenges and solutions, and 3) improvements/alternatives. Positive feedback included benefits to the NHS and patients. Challenges identified related to: 1) access, 2) data security, 3) engagement, and 4) negative consequences. Workshop members generated various solutions to these challenges and made additional suggestions for improvement relating to: 1) population (e.g. also including those with QRISK2 scores ≤10%), 2) duration (e.g. ongoing access to provide continued feedback), and 3) platform content (e.g. signposting to relevant services). Conclusions This PPI work helped identify potential challenges and solutions not previously considered by the research team. Findings have informed the subsequent intervention design and strengthened the bid for funding. We aim to ensure ongoing patient and public involvement in all future stages. |
| first_indexed | 2024-12-19T08:29:52Z |
| format | Article |
| id | doaj.art-a5b7402b900c467a9e7652434e96e316 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-12-19T08:29:52Z |
| publishDate | 2018-06-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-a5b7402b900c467a9e7652434e96e3162022-12-21T20:29:13ZengBMCResearch Involvement and Engagement2056-75292018-06-01411910.1186/s40900-018-0101-7Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records)Brian McMillan0Sarah Fox1Moira Lyons2Suzy Bourke3Manoj Mistry4Angela Ruddock5Benjamin Brown6Mei Yee Tang7Harm Van Marwijk8Centre for Primary Care, Division of Population Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of ManchesterHealth eResearch Centre, University of ManchesterPRIMER, University of ManchesterPRIMER, University of ManchesterPRIMER, University of ManchesterPRIMER, University of ManchesterCentre for Primary Care, Division of Population Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of ManchesterCentre for Primary Care, Division of Population Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of ManchesterDivision of Primary Care and Public Health, Brighton and Sussex Medical School, University of BrightonAbstract Background Following an initial NHS Health Check appointment, the National Institute for Health and Care Excellence (NICE) suggest patients with QRISK2 scores of ≥10% should be offered advice on lifestyle and the risks and benefits of starting a statin. NICE recommend GPs should ascertain patients’ pre-existing knowledge of cardiovascular disease risk, explore health beliefs, assess readiness to change, offer support, and engage family members. Condensing this complex discussion into a short consultation may result in inadequate patient understanding of the benefits of preventive measures. An alternative approach is needed. We propose a digital adjunct giving patients the opportunity to interact with their health check results from home before returning to see their GP. Before embarking on funding applications we sought the views of patients and members of the public. Methods We consulted the Primary Care Research in Manchester Engagement Resource (PRIMER), an established departmental Patient and Public Involvement (PPI) group (N = 9) and then ran a workshop with 19 members of the public, co-facilitated by 4 members of PRIMER. Following a brief presentation on the background to the project, attendees were split into four groups and introduced to Ketso, a toolkit for creative engagement. Ketso was used to encourage group discussions regarding the project idea. Results This PPI work improved the study design and proposed intervention. Discussions focussed on three themes: 1) positive feedback, 2) challenges and solutions, and 3) improvements/alternatives. Positive feedback included benefits to the NHS and patients. Challenges identified related to: 1) access, 2) data security, 3) engagement, and 4) negative consequences. Workshop members generated various solutions to these challenges and made additional suggestions for improvement relating to: 1) population (e.g. also including those with QRISK2 scores ≤10%), 2) duration (e.g. ongoing access to provide continued feedback), and 3) platform content (e.g. signposting to relevant services). Conclusions This PPI work helped identify potential challenges and solutions not previously considered by the research team. Findings have informed the subsequent intervention design and strengthened the bid for funding. We aim to ensure ongoing patient and public involvement in all future stages.http://link.springer.com/article/10.1186/s40900-018-0101-7PPIPatient and public involvementPublic engagementHealth checkPatient recordsLifestyle |
| spellingShingle | Brian McMillan Sarah Fox Moira Lyons Suzy Bourke Manoj Mistry Angela Ruddock Benjamin Brown Mei Yee Tang Harm Van Marwijk Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records) Research Involvement and Engagement PPI Patient and public involvement Public engagement Health check Patient records Lifestyle |
| title | Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records) |
| title_full | Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records) |
| title_fullStr | Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records) |
| title_full_unstemmed | Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records) |
| title_short | Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records) |
| title_sort | using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the nhs health check the caviar project better care via improved access to records |
| topic | PPI Patient and public involvement Public engagement Health check Patient records Lifestyle |
| url | http://link.springer.com/article/10.1186/s40900-018-0101-7 |
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