Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer’s disease: a qualitative study to identify meaningful symptoms

Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer’s disease: a qualitative study to identify meaningful symptoms

Abstract Background As life expectancy of people with Down syndrome (DS) increases, so does the risk of Alzheimer’s disease (AD). Identifying symptoms and tracking disease progression is especially challenging whenever levels of function vary before the onset of dementia. Goal Attainment Scaling (GA...

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Bibliographic Details
Main Authors: Kari Knox, Justin Stanley, James A. Hendrix, Hampus Hillerstrom, Taylor Dunn, Jillian Achenbach, Brian A. Chicoine, Florence Lai, Ira Lott, Sanja Stanojevic, Susan E. Howlett, Kenneth Rockwood
Format: Article
Language:English
Published: SpringerOpen 2021-01-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Down syndrome
Alzheimer’s disease
Dementia
Goal attainment scaling
Symptoms
Qualitative study
Online Access:https://doi.org/10.1186/s41687-020-00278-7

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