Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation
BackgroundSpinal cord injury (SCI) results in long-term functional impairments that significantly impact participation and role in the community. Newly injured persons are often reintroduced to the community with significant deficits in knowledge, including how to access and navigate community resou...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2022-05-01
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| Series: | Frontiers in Rehabilitation Sciences |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fresc.2022.904716/full |
| _version_ | 1797965070024572928 |
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| author | Jacqueline A. Krysa Jacqueline A. Krysa Marianne Pearl Gregorio Marianne Pearl Gregorio Kiran Pohar Manhas Kiran Pohar Manhas Rob MacIsaac Elizabeth Papathanassoglou Elizabeth Papathanassoglou Chester H. Ho Chester H. Ho |
| author_facet | Jacqueline A. Krysa Jacqueline A. Krysa Marianne Pearl Gregorio Marianne Pearl Gregorio Kiran Pohar Manhas Kiran Pohar Manhas Rob MacIsaac Elizabeth Papathanassoglou Elizabeth Papathanassoglou Chester H. Ho Chester H. Ho |
| author_sort | Jacqueline A. Krysa |
| collection | DOAJ |
| description | BackgroundSpinal cord injury (SCI) results in long-term functional impairments that significantly impact participation and role in the community. Newly injured persons are often reintroduced to the community with significant deficits in knowledge, including how to access and navigate community resources and supports. This warrants a better understanding of the patient experience of in-hospital care and discharge planning to ensure individuals with SCI are best supported during transitions in care and while living in the community.ObjectiveTo explore the lived experience of persons with acute SCI and their perceptions of care, focusing on the initial hospital experiences to inpatient rehabilitation.MethodsA phenomenological research study was conducted using semi-structured interviews. Eligible participants had differing etiologies of SCI (including non-traumatic and traumatic SCI), were over the age of 18 at the time of initial care, and experienced acute hospital and inpatient rehabilitation at an Alberta-based institution within the last 10 years. One-on-one interviews took place between March and June 2021 over telephone or virtual platforms (Zoom). Interview transcripts, and field notes developed the text, which underwent hermeneutic analysis to develop central themes.ResultsThe present study included 10 participants living with an SCI in Alberta, Canada. Most participants (80%) were male. Participants' age ranged from 24 to 69 years. The median years since initial SCI was 3 years. Interviews lasted 45–75 min. Seven participants identified as having a traumatic SCI injury and three identified as having a non-traumatic SCI. The interplay between empowerment and disempowerment emerged as the core theme, permeating participants' meanings and perceptions. Three main themes emerged from the interviews regarding the perceptions of the SCI patient experience. Each theme represents a perception central to their inpatient experience: desire to enhance functional independence to empower confidence and self-management; need for effective communication with healthcare providers to support recovery; and navigating appropriate care supports to enhance preparedness for discharge and returning home.ConclusionThis study demonstrates the significant need to enhance education of person/family-centered SCI care, foster positive communication between care recipients and care providers, and facilitate better in-hospital access to appropriate navigation and wayfinding supports. |
| first_indexed | 2024-04-11T01:54:25Z |
| format | Article |
| id | doaj.art-a77546c038f141e18e29e9bd992f6371 |
| institution | Directory Open Access Journal |
| issn | 2673-6861 |
| language | English |
| last_indexed | 2024-04-11T01:54:25Z |
| publishDate | 2022-05-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Rehabilitation Sciences |
| spelling | doaj.art-a77546c038f141e18e29e9bd992f63712023-01-03T05:41:05ZengFrontiers Media S.A.Frontiers in Rehabilitation Sciences2673-68612022-05-01310.3389/fresc.2022.904716904716Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient RehabilitationJacqueline A. Krysa0Jacqueline A. Krysa1Marianne Pearl Gregorio2Marianne Pearl Gregorio3Kiran Pohar Manhas4Kiran Pohar Manhas5Rob MacIsaac6Elizabeth Papathanassoglou7Elizabeth Papathanassoglou8Chester H. Ho9Chester H. Ho10Neurosciences, Rehabilitation, and Vision Strategic Clinical Network, Alberta Health Services, Edmonton, AB, CanadaDivision of Physical Medicine and Rehabilitation, University of Alberta, Edmonton, AB, CanadaNeurosciences, Rehabilitation, and Vision Strategic Clinical Network, Alberta Health Services, Edmonton, AB, CanadaFaculty of Nursing, University of Alberta, Edmonton, AB, CanadaNeurosciences, Rehabilitation, and Vision Strategic Clinical Network, Alberta Health Services, Edmonton, AB, CanadaCommunity Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, CanadaSpinal Cord Injury Alberta, Edmonton, AB, CanadaNeurosciences, Rehabilitation, and Vision Strategic Clinical Network, Alberta Health Services, Edmonton, AB, CanadaFaculty of Nursing, University of Alberta, Edmonton, AB, CanadaNeurosciences, Rehabilitation, and Vision Strategic Clinical Network, Alberta Health Services, Edmonton, AB, CanadaDivision of Physical Medicine and Rehabilitation, University of Alberta, Edmonton, AB, CanadaBackgroundSpinal cord injury (SCI) results in long-term functional impairments that significantly impact participation and role in the community. Newly injured persons are often reintroduced to the community with significant deficits in knowledge, including how to access and navigate community resources and supports. This warrants a better understanding of the patient experience of in-hospital care and discharge planning to ensure individuals with SCI are best supported during transitions in care and while living in the community.ObjectiveTo explore the lived experience of persons with acute SCI and their perceptions of care, focusing on the initial hospital experiences to inpatient rehabilitation.MethodsA phenomenological research study was conducted using semi-structured interviews. Eligible participants had differing etiologies of SCI (including non-traumatic and traumatic SCI), were over the age of 18 at the time of initial care, and experienced acute hospital and inpatient rehabilitation at an Alberta-based institution within the last 10 years. One-on-one interviews took place between March and June 2021 over telephone or virtual platforms (Zoom). Interview transcripts, and field notes developed the text, which underwent hermeneutic analysis to develop central themes.ResultsThe present study included 10 participants living with an SCI in Alberta, Canada. Most participants (80%) were male. Participants' age ranged from 24 to 69 years. The median years since initial SCI was 3 years. Interviews lasted 45–75 min. Seven participants identified as having a traumatic SCI injury and three identified as having a non-traumatic SCI. The interplay between empowerment and disempowerment emerged as the core theme, permeating participants' meanings and perceptions. Three main themes emerged from the interviews regarding the perceptions of the SCI patient experience. Each theme represents a perception central to their inpatient experience: desire to enhance functional independence to empower confidence and self-management; need for effective communication with healthcare providers to support recovery; and navigating appropriate care supports to enhance preparedness for discharge and returning home.ConclusionThis study demonstrates the significant need to enhance education of person/family-centered SCI care, foster positive communication between care recipients and care providers, and facilitate better in-hospital access to appropriate navigation and wayfinding supports.https://www.frontiersin.org/articles/10.3389/fresc.2022.904716/fullSpinal Cord Injury (SCI)patient experiencerehabilitationacute careinpatient rehabilitation |
| spellingShingle | Jacqueline A. Krysa Jacqueline A. Krysa Marianne Pearl Gregorio Marianne Pearl Gregorio Kiran Pohar Manhas Kiran Pohar Manhas Rob MacIsaac Elizabeth Papathanassoglou Elizabeth Papathanassoglou Chester H. Ho Chester H. Ho Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation Frontiers in Rehabilitation Sciences Spinal Cord Injury (SCI) patient experience rehabilitation acute care inpatient rehabilitation |
| title | Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation |
| title_full | Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation |
| title_fullStr | Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation |
| title_full_unstemmed | Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation |
| title_short | Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation |
| title_sort | empowerment communication and navigating care the experience of persons with spinal cord injury from acute hospitalization to inpatient rehabilitation |
| topic | Spinal Cord Injury (SCI) patient experience rehabilitation acute care inpatient rehabilitation |
| url | https://www.frontiersin.org/articles/10.3389/fresc.2022.904716/full |
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