Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.

<h4>Background</h4>Clients facing decision-making for long-term care are in need of support and accessible information. Construction of preferences, including context and calculations, for clients in long-term care is challenging because of the variability in supply and demand. This stud...

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Main Authors: Catharina M van Leersum, Albine Moser, Ben van Steenkiste, Judith R L M Wolf, Trudy van der Weijden
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2019-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0217338
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author Catharina M van Leersum
Albine Moser
Ben van Steenkiste
Judith R L M Wolf
Trudy van der Weijden
author_facet Catharina M van Leersum
Albine Moser
Ben van Steenkiste
Judith R L M Wolf
Trudy van der Weijden
author_sort Catharina M van Leersum
collection DOAJ
description <h4>Background</h4>Clients facing decision-making for long-term care are in need of support and accessible information. Construction of preferences, including context and calculations, for clients in long-term care is challenging because of the variability in supply and demand. This study considers clients in four different sectors of long-term care: the nursing and care of the elderly, mental health care, care of people with disabilities, and social care. The aim is to understand the construction of preferences in real-life situations.<h4>Method</h4>Client choices were investigated by qualitative descriptive research. Data were collected from 16 in-depth interviews and 79 client records. Interviews were conducted with clients and relatives or informal caregivers from different care sectors. The original client records were explored, containing texts, letters, and comments of clients and caregivers. All data were analyzed using thematic analysis.<h4>Results</h4>Four cases showed how preferences were constructed during the decision-making process. Clients discussed a wide range of challenging aspects that have an impact on the construction of preferences, e.g. previous experiences, current treatment or family situation. This study describes two main characteristics of the construction of preferences: context and calculation.<h4>Conclusion</h4>Clients face diverse challenges during the decision-making process on long-term care and their construction of preferences is variable. A well-designed tool to support the elicitation of preferences seems beneficial.
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spelling doaj.art-a8659e262eff4890871edcccb204d9d22022-12-21T20:39:25ZengPublic Library of Science (PLoS)PLoS ONE1932-62032019-01-01145e021733810.1371/journal.pone.0217338Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.Catharina M van LeersumAlbine MoserBen van SteenkisteJudith R L M WolfTrudy van der Weijden<h4>Background</h4>Clients facing decision-making for long-term care are in need of support and accessible information. Construction of preferences, including context and calculations, for clients in long-term care is challenging because of the variability in supply and demand. This study considers clients in four different sectors of long-term care: the nursing and care of the elderly, mental health care, care of people with disabilities, and social care. The aim is to understand the construction of preferences in real-life situations.<h4>Method</h4>Client choices were investigated by qualitative descriptive research. Data were collected from 16 in-depth interviews and 79 client records. Interviews were conducted with clients and relatives or informal caregivers from different care sectors. The original client records were explored, containing texts, letters, and comments of clients and caregivers. All data were analyzed using thematic analysis.<h4>Results</h4>Four cases showed how preferences were constructed during the decision-making process. Clients discussed a wide range of challenging aspects that have an impact on the construction of preferences, e.g. previous experiences, current treatment or family situation. This study describes two main characteristics of the construction of preferences: context and calculation.<h4>Conclusion</h4>Clients face diverse challenges during the decision-making process on long-term care and their construction of preferences is variable. A well-designed tool to support the elicitation of preferences seems beneficial.https://doi.org/10.1371/journal.pone.0217338
spellingShingle Catharina M van Leersum
Albine Moser
Ben van Steenkiste
Judith R L M Wolf
Trudy van der Weijden
Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.
PLoS ONE
title Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.
title_full Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.
title_fullStr Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.
title_full_unstemmed Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.
title_short Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences.
title_sort getting to grips with the process of decision making in long term care descriptive cases illustrate the chaotic reality of the construction of preferences
url https://doi.org/10.1371/journal.pone.0217338
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