Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review

Objective Mapping literature on Indigenous families’ experiences seeking child health information and identifying barriers and facilitators to information access.Design Scoping review.Data sources We searched Medline, EMBASE, PsycINFO, Scopus and CINAHL for peer-reviewed literature and Google Advanc...

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Main Authors: Lisa Hartling, Shannon D Scott, Lisa Knisley, Janice Linton, S Michelle Driedger, Yuting Sun
Format: Article
Language:English
Published: BMJ Publishing Group 2023-03-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/3/e069697.full
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author Lisa Hartling
Shannon D Scott
Lisa Knisley
Janice Linton
S Michelle Driedger
Yuting Sun
author_facet Lisa Hartling
Shannon D Scott
Lisa Knisley
Janice Linton
S Michelle Driedger
Yuting Sun
author_sort Lisa Hartling
collection DOAJ
description Objective Mapping literature on Indigenous families’ experiences seeking child health information and identifying barriers and facilitators to information access.Design Scoping review.Data sources We searched Medline, EMBASE, PsycINFO, Scopus and CINAHL for peer-reviewed literature and Google Advanced for grey literature. We screened tables of contents of two Indigenous research journals not consistently indexed in online health databases and used snowball sampling to supplement searches.Eligibility criteria We included full-text, English-language articles, published from 2000 to the time of the search in April 2021, based on: participants (Indigenous families), concept (experiences of families seeking health information) and context (child health).Data extraction and synthesis Two independent reviewers extracted: citation details, study purpose, country of study, publication type, study design, data collection method, Indigenous group, family member participants, home/healthcare setting, child health area, how health information was accessed, and information-seeking barriers and facilitators. Data were examined for patterns and trends, results and implications.Results Among 19 papers (representing 16 research projects) included, nine described family/friends and 19 described healthcare professionals as sources of child health information. Barriers include racism/discrimination during healthcare visits, ineffective communication with healthcare providers and structural barriers (eg, transportation). Facilitators include easy access, improved communication and relationships with healthcare providers, and culturally safe healthcare.Conclusion Indigenous families perceive they do not have access to necessary child health information, which can lead to insensitive, ineffective and unsafe healthcare. A critical gap exists in understanding Indigenous families’ information needs and preferences when making decisions about children’s health.
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spelling doaj.art-a88013072a1a4be59af845cb890405432023-08-12T09:35:07ZengBMJ Publishing GroupBMJ Open2044-60552023-03-0113310.1136/bmjopen-2022-069697Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping reviewLisa Hartling0Shannon D Scott1Lisa Knisley2Janice Linton3S Michelle Driedger4Yuting Sun55 Alberta Research Centre for Health Evidence, Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada2 Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada1 Children`s Hospital Research Institute of Manitoba, Winnipeg, Manitoba, CanadaNeil John Maclean Health Sciences Library, University of Manitoba, Winnipeg, Manitoba, Canada4 Department of Community Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada2 Faculty of Nursing, University of Alberta, Edmonton, Alberta, CanadaObjective Mapping literature on Indigenous families’ experiences seeking child health information and identifying barriers and facilitators to information access.Design Scoping review.Data sources We searched Medline, EMBASE, PsycINFO, Scopus and CINAHL for peer-reviewed literature and Google Advanced for grey literature. We screened tables of contents of two Indigenous research journals not consistently indexed in online health databases and used snowball sampling to supplement searches.Eligibility criteria We included full-text, English-language articles, published from 2000 to the time of the search in April 2021, based on: participants (Indigenous families), concept (experiences of families seeking health information) and context (child health).Data extraction and synthesis Two independent reviewers extracted: citation details, study purpose, country of study, publication type, study design, data collection method, Indigenous group, family member participants, home/healthcare setting, child health area, how health information was accessed, and information-seeking barriers and facilitators. Data were examined for patterns and trends, results and implications.Results Among 19 papers (representing 16 research projects) included, nine described family/friends and 19 described healthcare professionals as sources of child health information. Barriers include racism/discrimination during healthcare visits, ineffective communication with healthcare providers and structural barriers (eg, transportation). Facilitators include easy access, improved communication and relationships with healthcare providers, and culturally safe healthcare.Conclusion Indigenous families perceive they do not have access to necessary child health information, which can lead to insensitive, ineffective and unsafe healthcare. A critical gap exists in understanding Indigenous families’ information needs and preferences when making decisions about children’s health.https://bmjopen.bmj.com/content/13/3/e069697.full
spellingShingle Lisa Hartling
Shannon D Scott
Lisa Knisley
Janice Linton
S Michelle Driedger
Yuting Sun
Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review
BMJ Open
title Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review
title_full Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review
title_fullStr Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review
title_full_unstemmed Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review
title_short Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review
title_sort examining the experiences of indigenous families seeking health information about caring for sick or injured children a scoping review
url https://bmjopen.bmj.com/content/13/3/e069697.full
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