Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale
IntroductionOlder persons with dementia (PwD) are more likely to be institutionalized than their counterparts without dementia. The caregiver’s desire to institutionalize has been suggested as the most important predictor of actual institutionalization. This cross-sectional study aimed to culturally...
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Frontiers Media S.A.
2024-01-01
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| Series: | Frontiers in Medicine |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fmed.2023.1277565/full |
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| author | Soraia Teles Soraia Teles Milaydis Sosa Napolskij Milaydis Sosa Napolskij Oscar Ribeiro Oscar Ribeiro Sara Alves Sara Alves Alberto Freitas Alberto Freitas Ana Ferreira Ana Ferreira Constança Paúl Constança Paúl |
| author_facet | Soraia Teles Soraia Teles Milaydis Sosa Napolskij Milaydis Sosa Napolskij Oscar Ribeiro Oscar Ribeiro Sara Alves Sara Alves Alberto Freitas Alberto Freitas Ana Ferreira Ana Ferreira Constança Paúl Constança Paúl |
| author_sort | Soraia Teles |
| collection | DOAJ |
| description | IntroductionOlder persons with dementia (PwD) are more likely to be institutionalized than their counterparts without dementia. The caregiver’s desire to institutionalize has been suggested as the most important predictor of actual institutionalization. This cross-sectional study aimed to culturally adapt the Desire to Institutionalize Scale (DIS) to a country with a high prevalence of dementia (Portugal) and examine its psychometric properties.MethodsThe reliability, structural validity, and criterion validity of the DIS-PT were assessed by applying the scale using a remote measurement web platform. A sample of 105 dementia caregivers completed the DIS-PT and several psychosocial measures, including caregiver burden, anxiety, depression, quality of life, PwD functional independence, and neuropsychiatric symptoms.ResultsThe DIS-PT demonstrated good structural validity, with one factor explaining 75% of the total variance. The internal consistency of the scale was high (α = 0.802). Most caregivers (65.7%) endorsed at least one item on the DIS-PT (Mdn 2). The caregiver’s desire to institutionalize was significantly associated with the caregiver, care recipient, and contextual variables previously known to affect institutional placement. These included the caregivers’ occupational status, perceived burden, anxiety (but not depression), physical and psychological quality of life, care recipient education, severity of neuropsychiatric symptoms, and cohabitation with the caregiver.DiscussionThis study offers preliminary support for the psychometric quality of the DIS-PT. The scale has practical applications in the early identification of caregivers considering nursing home placement, providing room for intervention in modifiable risk factors that may otherwise lead to the institutionalization of PwD. Remote measurement tools may hold value in assessing caregiving dyads non-intrusively and inexpensively. |
| first_indexed | 2024-03-08T16:05:45Z |
| format | Article |
| id | doaj.art-a8c545d993964515b195c9ee3d9d7ec2 |
| institution | Directory Open Access Journal |
| issn | 2296-858X |
| language | English |
| last_indexed | 2024-03-08T16:05:45Z |
| publishDate | 2024-01-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Medicine |
| spelling | doaj.art-a8c545d993964515b195c9ee3d9d7ec22024-01-08T06:08:23ZengFrontiers Media S.A.Frontiers in Medicine2296-858X2024-01-011010.3389/fmed.2023.12775651277565Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize ScaleSoraia Teles0Soraia Teles1Milaydis Sosa Napolskij2Milaydis Sosa Napolskij3Oscar Ribeiro4Oscar Ribeiro5Sara Alves6Sara Alves7Alberto Freitas8Alberto Freitas9Ana Ferreira10Ana Ferreira11Constança Paúl12Constança Paúl13Department of Behavioral Sciences, School of Medicine and Biomedical Sciences, University of Porto (ICBAS-UP), Porto, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalFaculty of Medicine, University of Porto (FMUP), Porto, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalDepartment of Education and Psychology, University of Aveiro, Aveiro, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalCenter of Research, Diagnosis, Training and Care of Dementia (CIDIFAD), SCMRA, Riba D’Ave, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalFaculty of Medicine, University of Porto (FMUP), Porto, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalFaculty of Medicine, University of Porto (FMUP), Porto, PortugalDepartment of Behavioral Sciences, School of Medicine and Biomedical Sciences, University of Porto (ICBAS-UP), Porto, PortugalCenter for Health Technology and Services Research of the Associate Laboratory Health Research Network (CINTESIS@RISE), Porto, PortugalIntroductionOlder persons with dementia (PwD) are more likely to be institutionalized than their counterparts without dementia. The caregiver’s desire to institutionalize has been suggested as the most important predictor of actual institutionalization. This cross-sectional study aimed to culturally adapt the Desire to Institutionalize Scale (DIS) to a country with a high prevalence of dementia (Portugal) and examine its psychometric properties.MethodsThe reliability, structural validity, and criterion validity of the DIS-PT were assessed by applying the scale using a remote measurement web platform. A sample of 105 dementia caregivers completed the DIS-PT and several psychosocial measures, including caregiver burden, anxiety, depression, quality of life, PwD functional independence, and neuropsychiatric symptoms.ResultsThe DIS-PT demonstrated good structural validity, with one factor explaining 75% of the total variance. The internal consistency of the scale was high (α = 0.802). Most caregivers (65.7%) endorsed at least one item on the DIS-PT (Mdn 2). The caregiver’s desire to institutionalize was significantly associated with the caregiver, care recipient, and contextual variables previously known to affect institutional placement. These included the caregivers’ occupational status, perceived burden, anxiety (but not depression), physical and psychological quality of life, care recipient education, severity of neuropsychiatric symptoms, and cohabitation with the caregiver.DiscussionThis study offers preliminary support for the psychometric quality of the DIS-PT. The scale has practical applications in the early identification of caregivers considering nursing home placement, providing room for intervention in modifiable risk factors that may otherwise lead to the institutionalization of PwD. Remote measurement tools may hold value in assessing caregiving dyads non-intrusively and inexpensively.https://www.frontiersin.org/articles/10.3389/fmed.2023.1277565/fullinformal caredementiadesire to institutionalizecultural adaptationpsychometric properties |
| spellingShingle | Soraia Teles Soraia Teles Milaydis Sosa Napolskij Milaydis Sosa Napolskij Oscar Ribeiro Oscar Ribeiro Sara Alves Sara Alves Alberto Freitas Alberto Freitas Ana Ferreira Ana Ferreira Constança Paúl Constança Paúl Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale Frontiers in Medicine informal care dementia desire to institutionalize cultural adaptation psychometric properties |
| title | Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale |
| title_full | Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale |
| title_fullStr | Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale |
| title_full_unstemmed | Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale |
| title_short | Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale |
| title_sort | willingness to institutionalize a relative with dementia a web platform assessment with the portuguese adapted version of the desire to institutionalize scale |
| topic | informal care dementia desire to institutionalize cultural adaptation psychometric properties |
| url | https://www.frontiersin.org/articles/10.3389/fmed.2023.1277565/full |
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