User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities?
In Norway, user-controlled personal assistance (UPA) is a right for children under the age of 18. Based on the independent living (IL) ideology, the intention of UPA is to provide the person with user control, independence and more. However, in order to receive UPA, minors need an external actor to...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Stockholm University Press
2023-11-01
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| Series: | Scandinavian Journal of Disability Research |
| Subjects: | |
| Online Access: | https://account.sjdr.se/index.php/su-j-sjdr/article/view/931 |
| _version_ | 1797382796860194816 |
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| author | Øyvind Ibrahim Marøy Snipstad Stine Vik |
| author_facet | Øyvind Ibrahim Marøy Snipstad Stine Vik |
| author_sort | Øyvind Ibrahim Marøy Snipstad |
| collection | DOAJ |
| description | In Norway, user-controlled personal assistance (UPA) is a right for children under the age of 18. Based on the independent living (IL) ideology, the intention of UPA is to provide the person with user control, independence and more. However, in order to receive UPA, minors need an external actor to be formally in charge. Through a qualitative approach, this article discusses whether the ideological principles governing UPA can be utilised as intended in families where the parent is expected both to care for and protect the child as well as act as an administrator providing opportunities for the child to enjoy the IL principles. The findings in this article suggest that there may be a need to revise the ideological framework in order to better encompass the reality of childhood. Instead of full user control at present, UPA could be a viewed as an empowering tool in the process towards future independence. |
| first_indexed | 2024-03-08T21:10:37Z |
| format | Article |
| id | doaj.art-a8fe6b2e38184999a6d735f9ca8f6a5a |
| institution | Directory Open Access Journal |
| issn | 1745-3011 |
| language | English |
| last_indexed | 2024-03-08T21:10:37Z |
| publishDate | 2023-11-01 |
| publisher | Stockholm University Press |
| record_format | Article |
| series | Scandinavian Journal of Disability Research |
| spelling | doaj.art-a8fe6b2e38184999a6d735f9ca8f6a5a2023-12-22T06:42:50ZengStockholm University PressScandinavian Journal of Disability Research1745-30112023-11-01251363–377363–37710.16993/sjdr.931823User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities?Øyvind Ibrahim Marøy Snipstad0https://orcid.org/0000-0002-0852-4357Stine Vik1https://orcid.org/0000-0001-8382-4053Faculty of Education, Inland University of Applied Sciences, ElverumEarly Childhood Education, University of StavangerIn Norway, user-controlled personal assistance (UPA) is a right for children under the age of 18. Based on the independent living (IL) ideology, the intention of UPA is to provide the person with user control, independence and more. However, in order to receive UPA, minors need an external actor to be formally in charge. Through a qualitative approach, this article discusses whether the ideological principles governing UPA can be utilised as intended in families where the parent is expected both to care for and protect the child as well as act as an administrator providing opportunities for the child to enjoy the IL principles. The findings in this article suggest that there may be a need to revise the ideological framework in order to better encompass the reality of childhood. Instead of full user control at present, UPA could be a viewed as an empowering tool in the process towards future independence.https://account.sjdr.se/index.php/su-j-sjdr/article/view/931personal assistanceindependent livingchildren with disabilitiesfamily institutionsself-determination |
| spellingShingle | Øyvind Ibrahim Marøy Snipstad Stine Vik User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities? Scandinavian Journal of Disability Research personal assistance independent living children with disabilities family institutions self-determination |
| title | User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities? |
| title_full | User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities? |
| title_fullStr | User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities? |
| title_full_unstemmed | User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities? |
| title_short | User-Controlled Personal Assistance for Children—Does the Independent Living Ideology Translate to the Lived Life of Children and Youth with Disabilities? |
| title_sort | user controlled personal assistance for children does the independent living ideology translate to the lived life of children and youth with disabilities |
| topic | personal assistance independent living children with disabilities family institutions self-determination |
| url | https://account.sjdr.se/index.php/su-j-sjdr/article/view/931 |
| work_keys_str_mv | AT øyvindibrahimmarøysnipstad usercontrolledpersonalassistanceforchildrendoestheindependentlivingideologytranslatetothelivedlifeofchildrenandyouthwithdisabilities AT stinevik usercontrolledpersonalassistanceforchildrendoestheindependentlivingideologytranslatetothelivedlifeofchildrenandyouthwithdisabilities |