“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis
Abstract Introduction The value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes. Methods We conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 1...
| Hlavní autoři: | , , , |
|---|---|
| Médium: | Článek |
| Jazyk: | English |
| Vydáno: |
BMC
2024-03-01
|
| Edice: | BMC Medical Ethics |
| Témata: | |
| On-line přístup: | https://doi.org/10.1186/s12910-023-00994-x |