“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis
Abstract Introduction The value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes. Methods We conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 1...
| Autores principales: | , , , |
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| Formato: | Artículo |
| Lenguaje: | English |
| Publicado: |
BMC
2024-03-01
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| Colección: | BMC Medical Ethics |
| Materias: | |
| Acceso en línea: | https://doi.org/10.1186/s12910-023-00994-x |