“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis

“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis

Abstract Introduction The value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes. Methods We conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 1...

Cur síos iomlán

Sonraí bibleagrafaíochta
Príomhchruthaitheoirí:	Zoe Ritchie, Gail Teachman, Randi Zlotnik Shaul, Maxwell J. Smith
Formáid:	Alt
Teanga:	English
Foilsithe / Cruthaithe:	BMC 2024-03-01
Sraith:	BMC Medical Ethics
Ábhair:	Bioethics Decision-making Goals of care Values Neonatal Neonatal intensive care
Rochtain ar líne:	https://doi.org/10.1186/s12910-023-00994-x

Míreanna comhchosúla

End-of-life decision-making in the neonatal intensive care unit
de réir: Ana Morillo Palomo, et al.
Foilsithe / Cruthaithe: (2024-01-01)

Scope of neonatal care services in major Nigerian hospitals
de réir: Okonkwo IR, et al.
Foilsithe / Cruthaithe: (2024-07-01)

“Everything has been tried and his heart can’t recover…”: A Descriptive Review of “Do Everything!” in the Archive of Ontario Consent and Capacity Board
de réir: Holly Yim, et al.
Foilsithe / Cruthaithe: (2022-06-01)

Challenges of anaesthesia in the management of the surgical neonates in Africa
de réir: Amponsah Gladys
Foilsithe / Cruthaithe: (2010-01-01)

Descriptive Study of Neonatal Death in Neonatal Care Unit of Baghdad Teaching Hospital / Medical city / Baghdad (2007-2009)
de réir: Numan N. Hameed, et al.
Foilsithe / Cruthaithe: (2012-10-01)

The Effectiveness of the ‘Extended Sick Neonatal Score in Predicting Mortality in a ResourceConstrained Neonatal Care Uni
de réir: Romisa Rehman, et al.
Foilsithe / Cruthaithe: (2023-02-01)

Implementing palliative care, based on family-centered care, in a highly complex neonatal unit
de réir: Ana Morillo Palomo, et al.
Foilsithe / Cruthaithe: (2024-03-01)

Significant improvement in survival outcomes of trisomy 18 with neonatal intensive care compared to non-intensive care: a single-center study
de réir: Shigeki Koshida, et al.
Foilsithe / Cruthaithe: (2023-11-01)

Evaluation of Mothers' knowledge of neonatal care who referred to university maternities of Mashhad in 2014
de réir: Rozita Davoodi, et al.
Foilsithe / Cruthaithe: (2017-08-01)

Stoma and tube stoma: two sides of the same coin? A scoping review
de réir: Alice Grandi, et al.
Foilsithe / Cruthaithe: (2024-03-01)

Editorial: Technologies for neonatal care in LMICs
de réir: Hippolite O. Amadi, et al.
Foilsithe / Cruthaithe: (2024-09-01)

Neonatal care in India
de réir: Geeta Gathwala
Foilsithe / Cruthaithe: (2015-01-01)

Role of functional echocardiography in the NICU
de réir: Naveen Gupta
Foilsithe / Cruthaithe: (2011-01-01)

Effect of maternal education and encouragement on newborn care utilization: a health system intervention
de réir: Ali-Asghar Kolahi, et al.
Foilsithe / Cruthaithe: (2021-07-01)

Neonatal Near Miss: the need for a standard definition and appropriate criteria and the rationale for a prospective surveillance system
de réir: Juliana P. Santos, et al.
Foilsithe / Cruthaithe: (2015-12-01)

Time to Death and its Predictors among Neonates Admitted in the Intensive Care Unit of the University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia
de réir: Gudayu TW, et al.
Foilsithe / Cruthaithe: (2020-01-01)

Predictors of neonatal mortality among neonates admitted to the neonatal intensive care unit at Hawassa University Comprehensive Specialized Hospital, Sidama regional state, Ethiopia
de réir: Kefyalew Taye, et al.
Foilsithe / Cruthaithe: (2024-04-01)

Neonatal sepsis and its associated factors among neonates admitted to the neonatal intensive care unit in Wachemo University Comprehensive Specialized Hospital, Southern Ethiopia, 2022
de réir: Taye Mezgebu, et al.
Foilsithe / Cruthaithe: (2023-07-01)

DETERMINANTS OF NEONATAL PAIN MANAGEMENT PRACTICES AMONG NURSES WORKING IN NEONATAL CARE UNITS IN WESTERN KENYA HOSPITALS
de réir: Damaris Ongori, et al.
Foilsithe / Cruthaithe: (2024-11-01)

Internações em unidade de terapia intensiva neonatal no Brasil - 1998-2001
de réir: Ivone Kamada, et al.

An Analysis of Five years Neonatal Mortality in NICU of a Tertiary Care Hospital of Rawalpindi 2014-2019
de réir: Rai Muhammad Asghar, et al.
Foilsithe / Cruthaithe: (2020-12-01)

Knowledge of postnatal mothers on essential newborn care practices at the Kenyatta National Hospital: a cross sectional study
de réir: Lucia Amolo, et al.
Foilsithe / Cruthaithe: (2017-09-01)

A Survey on the Organization and Operation of Level II/III Neonatal Intensive Care Units in Greece: A Comparison Between 2004 and 2022
de réir: Kosmas Sarafidis, et al.
Foilsithe / Cruthaithe: (2025-01-01)

Factors Influencing Maternal Stress during Infant’s NICU Stay in a Tertiary Care Center, South Kerala, India: A Cross-sectional Study
de réir: Chris Placid, et al.
Foilsithe / Cruthaithe: (2024-01-01)

Developmental care education in Australian surgical neonatal intensive care units: A cross-sectional study of nurses’ perceptions
de réir: Nadine Griffiths, et al.
Foilsithe / Cruthaithe: (2024-05-01)

Missed Opportunities for Sedation and Pain Management at a Level III Neonatal Intensive Care Unit, India
de réir: Shikha Yashwant Kothari, et al.
Foilsithe / Cruthaithe: (2016-02-01)

A manual of neonatal intensive care /
de réir: Rennie, Janet M., author, et al.
Foilsithe / Cruthaithe: ([201)

Poor power quality is a major barrier to providing optimal care in special neonatal care units (SNCU) in Central India [version 1; peer review: 2 approved]
de réir: Emily Conant, et al.
Foilsithe / Cruthaithe: (2022-04-01)

Mean Duration of Mechanical Ventilation among Newborns Admitted to the Neonatal Intensive Care Unit in a Tertiary Care Centre: A Descriptive Cross-sectional Study
de réir: Ruby Thakur, et al.
Foilsithe / Cruthaithe: (2023-06-01)

The Continuum of Care for the Neonate: A Critical Review
de réir: Lauren Hillermann
Foilsithe / Cruthaithe: (2022-07-01)

Survival and Predictors of Mortality Among Neonates Admitted to Neonatal Intensive Care Unit at Bombe Primary Hospital, Southern Ethiopia: Institution-Based Retrospective Cohort Study
de réir: Berhanu B, et al.
Foilsithe / Cruthaithe: (2021-05-01)

Parents’ hope in perinatal and neonatal palliative care: a scoping review
de réir: Aline Oliveira Silveira, et al.
Foilsithe / Cruthaithe: (2023-12-01)

Maternal stress in neonatal intensive care unit very often overlooked by health professionals
de réir: Nidhi Kumar, et al.
Foilsithe / Cruthaithe: (2020-01-01)

“We’ve opened pandora’s box, haven’t we?” clinical geneticists’ views on ethical aspects of genomic testing in neonatal intensive care
de réir: Arsov T
Foilsithe / Cruthaithe: (2023-03-01)

The evolution of the criteria for identifying the new concept of `Neonatal Near Miss`: a systematic review
de réir: Kawtar Chafik, et al.
Foilsithe / Cruthaithe: (2023-04-01)

Clinical Profile of Neonates with Respiratory Distress in a Tertiary Care Hospital
de réir: Anita Lamichhane, et al.
Foilsithe / Cruthaithe: (2019-12-01)

Diagnostic Yield of Continuous Video EEG for Neonatal Seizures
de réir: Tammy N. Tsuchida
Foilsithe / Cruthaithe: (2015-09-01)

Standardized Ultrasound Protocol for Peripherally Inserted Central Catheters in Neonates: A Retrospective, X-ray Controlled Observational Study
de réir: Oliver Firszt, et al.
Foilsithe / Cruthaithe: (2024-09-01)

Predictors of mortality in the neonatal intensive care unit of El-Galaa Teaching Hospital
de réir: Michael W G. Hany
Foilsithe / Cruthaithe: (2021-01-01)

Predictors of Neonatal mortality in Neonatal intensive care unit at referral Hospital in Southern Ethiopia: a retrospective cohort study
de réir: Tujare Tunta Orsido, et al.
Foilsithe / Cruthaithe: (2019-02-01)