“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis

“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis

Abstract Introduction The value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes. Methods We conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 1...

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Hlavní autoři: Zoe Ritchie, Gail Teachman, Randi Zlotnik Shaul, Maxwell J. Smith
Médium: Článek
Jazyk:English
Vydáno: BMC 2024-03-01
Edice:BMC Medical Ethics
Témata:
Bioethics
Decision-making
Goals of care
Values
Neonatal
Neonatal intensive care
On-line přístup:https://doi.org/10.1186/s12910-023-00994-x

Internet

https://doi.org/10.1186/s12910-023-00994-x

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