“She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis
Abstract Introduction The value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes. Methods We conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 1...
| Main Authors: | , , , |
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| 格式: | Article |
| 語言: | English |
| 出版: |
BMC
2024-03-01
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| 叢編: | BMC Medical Ethics |
| 主題: | |
| 在線閱讀: | https://doi.org/10.1186/s12910-023-00994-x |