A review of social media methods and lessons learned from the National Children’s Study
Introduction Given the reach and influence of social media, the National Children’s Study Vanguard Study evaluated the feasibility, acceptability, and cost of using social media to support participant retention. Met...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Cambridge University Press
2017-08-01
|
| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S205986611700019X/type/journal_article |
| _version_ | 1811156871420051456 |
|---|---|
| author | Amelia Burke-Garcia Kate Winseck Leslie Cooke Jouvenal David Hubble Kathryn M. Kulbicki |
| author_facet | Amelia Burke-Garcia Kate Winseck Leslie Cooke Jouvenal David Hubble Kathryn M. Kulbicki |
| author_sort | Amelia Burke-Garcia |
| collection | DOAJ |
| description |
Introduction
Given the reach and influence of social media, the National Children’s Study Vanguard Study evaluated the feasibility, acceptability, and cost of using social media to support participant retention.
Methods
We describe a social media experiment designed to assess the impact of social media on participant retention, discuss several key considerations for integrating social media into longitudinal research, and review factors that may influence engagement in research-related social media.
Results
User participation varied but was most active when at launch. During the short life of the private online community, a total of 39 participants joined. General enthusiasm about the prospect of the online community was indicated. There were many lessons learned throughout the process in areas such as privacy, security, and Institutional Review Board clearance. These are described in detail.
Conclusions
The opportunity to engage participants in longitudinal research using online social networks is enticing; however, more research is needed to consider the feasibility of their use in an ongoing manner. Recommendations are presented for future research seeking to use social media to improve retention in longitudinal research.
|
| first_indexed | 2024-04-10T04:58:17Z |
| format | Article |
| id | doaj.art-a914416c708b4deb93c420da9bfec7f5 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-04-10T04:58:17Z |
| publishDate | 2017-08-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-a914416c708b4deb93c420da9bfec7f52023-03-09T12:29:32ZengCambridge University PressJournal of Clinical and Translational Science2059-86612017-08-01126026410.1017/cts.2017.19A review of social media methods and lessons learned from the National Children’s StudyAmelia Burke-Garcia0https://orcid.org/0000-0002-4197-4675Kate Winseck1Leslie Cooke Jouvenal2David Hubble3Kathryn M. Kulbicki4Westat, Rockville, MD, USANational Institutes of Health, Bethesda, MD, USAFormerly of the National Institutes of Health, Bethesda, MD, USAWestat, Rockville, MD, USAWestat, Rockville, MD, USA Introduction Given the reach and influence of social media, the National Children’s Study Vanguard Study evaluated the feasibility, acceptability, and cost of using social media to support participant retention. Methods We describe a social media experiment designed to assess the impact of social media on participant retention, discuss several key considerations for integrating social media into longitudinal research, and review factors that may influence engagement in research-related social media. Results User participation varied but was most active when at launch. During the short life of the private online community, a total of 39 participants joined. General enthusiasm about the prospect of the online community was indicated. There were many lessons learned throughout the process in areas such as privacy, security, and Institutional Review Board clearance. These are described in detail. Conclusions The opportunity to engage participants in longitudinal research using online social networks is enticing; however, more research is needed to consider the feasibility of their use in an ongoing manner. Recommendations are presented for future research seeking to use social media to improve retention in longitudinal research. https://www.cambridge.org/core/product/identifier/S205986611700019X/type/journal_articleLongitudinal researchparticipant retentionsocial media |
| spellingShingle | Amelia Burke-Garcia Kate Winseck Leslie Cooke Jouvenal David Hubble Kathryn M. Kulbicki A review of social media methods and lessons learned from the National Children’s Study Journal of Clinical and Translational Science Longitudinal research participant retention social media |
| title | A review of social media methods and lessons learned from the National Children’s Study |
| title_full | A review of social media methods and lessons learned from the National Children’s Study |
| title_fullStr | A review of social media methods and lessons learned from the National Children’s Study |
| title_full_unstemmed | A review of social media methods and lessons learned from the National Children’s Study |
| title_short | A review of social media methods and lessons learned from the National Children’s Study |
| title_sort | review of social media methods and lessons learned from the national children s study |
| topic | Longitudinal research participant retention social media |
| url | https://www.cambridge.org/core/product/identifier/S205986611700019X/type/journal_article |
| work_keys_str_mv | AT ameliaburkegarcia areviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT katewinseck areviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT lesliecookejouvenal areviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT davidhubble areviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT kathrynmkulbicki areviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT ameliaburkegarcia reviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT katewinseck reviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT lesliecookejouvenal reviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT davidhubble reviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy AT kathrynmkulbicki reviewofsocialmediamethodsandlessonslearnedfromthenationalchildrensstudy |