Healthcare experiences of adults with COPD across community care settings: a meta-ethnography
Background Studies investigating lived experiences of patients with COPD raise important concerns about interactions with healthcare professionals. Patients often describe feelings of guilt and shame associated with their COPD and may experience stigma and poor patient experience of care. The aims a...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
European Respiratory Society
2023-02-01
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| Series: | ERJ Open Research |
| Online Access: | http://openres.ersjournals.com/content/9/1/00581-2022.full |
| _version_ | 1797809386982211584 |
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| author | Sanduni Madawala Christian Robert Osadnik Narelle Warren Karthika Kasiviswanathan Chris Barton |
| author_facet | Sanduni Madawala Christian Robert Osadnik Narelle Warren Karthika Kasiviswanathan Chris Barton |
| author_sort | Sanduni Madawala |
| collection | DOAJ |
| description | Background
Studies investigating lived experiences of patients with COPD raise important concerns about interactions with healthcare professionals. Patients often describe feelings of guilt and shame associated with their COPD and may experience stigma and poor patient experience of care. The aims and objectives of the present study were to systematically scope and synthesise findings from peer-reviewed qualitative studies describing healthcare experiences of patients living with COPD across community care settings.
Methods
A meta-ethnography was undertaken. Database searches were performed in Ovid MEDLINE, PsychINFO, Ovid Emcare, CINAHL Plus and Sociological Abstracts. Eligible qualitative studies were included. Study screening and data extraction was performed by two independent reviewers. A “line-of-argument” synthesis and deductive and inductive analysis was used to identify key themes, where the deductive element aligned to Wong and Haggerty's six key dimensions of patient experiences.
Results
Data from 23 studies were included. Experiences and their meaning to patients were explored within the context of six domains of patient experience including access, interpersonal communication, continuity and coordination, comprehensiveness and trust. Inductive coding revealed emotion, stigma, identity and vulnerability shaped healthcare experiences of adults with COPD.
Implications
Experiences often fell short of what was expected and needed in community settings. Adopting strategies to improve experiences of care in the community can be expected to improve self-management and contribute to improved health outcomes and quality of life. These strategies should take account of vulnerability, stigma and emotions such as guilt and blame that are potent affective drivers of the experience of care for patients with COPD. |
| first_indexed | 2024-03-13T06:52:58Z |
| format | Article |
| id | doaj.art-a97681ecb2cb492caf79b89c78687c2b |
| institution | Directory Open Access Journal |
| issn | 2312-0541 |
| language | English |
| last_indexed | 2024-03-13T06:52:58Z |
| publishDate | 2023-02-01 |
| publisher | European Respiratory Society |
| record_format | Article |
| series | ERJ Open Research |
| spelling | doaj.art-a97681ecb2cb492caf79b89c78687c2b2023-06-07T13:30:44ZengEuropean Respiratory SocietyERJ Open Research2312-05412023-02-019110.1183/23120541.00581-202200581-2022Healthcare experiences of adults with COPD across community care settings: a meta-ethnographySanduni Madawala0Christian Robert Osadnik1Narelle Warren2Karthika Kasiviswanathan3Chris Barton4 Department of General Practice, School of Public Health and Preventive Medicine, Faculty of Medicine, Nursing and Health Sciences, Monash University, Victoria, Australia Department of Physiotherapy, School of Primary and Allied Health Care, Faculty of Medicine, Nursing and Health Sciences, Monash University, Victoria, Australia Department of Sociology, School of Social Sciences, Faculty of Arts, Monash University, Victoria, Australia School of Public Health and Preventive Medicine, Faculty of Medicine, Nursing and Health Sciences, Monash University, Victoria, Australia Department of General Practice, School of Public Health and Preventive Medicine, Faculty of Medicine, Nursing and Health Sciences, Monash University, Victoria, Australia Background Studies investigating lived experiences of patients with COPD raise important concerns about interactions with healthcare professionals. Patients often describe feelings of guilt and shame associated with their COPD and may experience stigma and poor patient experience of care. The aims and objectives of the present study were to systematically scope and synthesise findings from peer-reviewed qualitative studies describing healthcare experiences of patients living with COPD across community care settings. Methods A meta-ethnography was undertaken. Database searches were performed in Ovid MEDLINE, PsychINFO, Ovid Emcare, CINAHL Plus and Sociological Abstracts. Eligible qualitative studies were included. Study screening and data extraction was performed by two independent reviewers. A “line-of-argument” synthesis and deductive and inductive analysis was used to identify key themes, where the deductive element aligned to Wong and Haggerty's six key dimensions of patient experiences. Results Data from 23 studies were included. Experiences and their meaning to patients were explored within the context of six domains of patient experience including access, interpersonal communication, continuity and coordination, comprehensiveness and trust. Inductive coding revealed emotion, stigma, identity and vulnerability shaped healthcare experiences of adults with COPD. Implications Experiences often fell short of what was expected and needed in community settings. Adopting strategies to improve experiences of care in the community can be expected to improve self-management and contribute to improved health outcomes and quality of life. These strategies should take account of vulnerability, stigma and emotions such as guilt and blame that are potent affective drivers of the experience of care for patients with COPD.http://openres.ersjournals.com/content/9/1/00581-2022.full |
| spellingShingle | Sanduni Madawala Christian Robert Osadnik Narelle Warren Karthika Kasiviswanathan Chris Barton Healthcare experiences of adults with COPD across community care settings: a meta-ethnography ERJ Open Research |
| title | Healthcare experiences of adults with COPD across community care settings: a meta-ethnography |
| title_full | Healthcare experiences of adults with COPD across community care settings: a meta-ethnography |
| title_fullStr | Healthcare experiences of adults with COPD across community care settings: a meta-ethnography |
| title_full_unstemmed | Healthcare experiences of adults with COPD across community care settings: a meta-ethnography |
| title_short | Healthcare experiences of adults with COPD across community care settings: a meta-ethnography |
| title_sort | healthcare experiences of adults with copd across community care settings a meta ethnography |
| url | http://openres.ersjournals.com/content/9/1/00581-2022.full |
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