Exploring views on medical care for people with intellectual disabilities: an international concept mapping study
Abstract Background Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specif...
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| Format: | Article |
| Language: | English |
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BMC
2022-07-01
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| Series: | International Journal for Equity in Health |
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| Online Access: | https://doi.org/10.1186/s12939-022-01700-w |
| _version_ | 1818192914817220608 |
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| author | Marian E. J. Breuer Esther J. Bakker-van Gijssel Kristel Vlot-van Anrooij Hilde Tobi Geraline L. Leusink Jenneken Naaldenberg |
| author_facet | Marian E. J. Breuer Esther J. Bakker-van Gijssel Kristel Vlot-van Anrooij Hilde Tobi Geraline L. Leusink Jenneken Naaldenberg |
| author_sort | Marian E. J. Breuer |
| collection | DOAJ |
| description | Abstract Background Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specific medical care needs of people with IDD. This study aims to provide an improved understanding of which aspects constitute medical care for people with IDD by exploring how international researchers and practitioners describe this care, using concept mapping. Methods Twenty-five experts (researchers and practitioners) on medical care for people with IDD from 17 countries submitted statements on medical care in their country in a brainstorming session, using an online concept mapping tool. Next, they sorted all collected statements and rated them on importance. Results Participants generated statements that reflect current medical and health care practice, their ideas on good practice, and aspirations for future medical and health care for people with IDD. Based on the sorting of all statements, a concept map was formed, covering 13 aspects that characterize medical and health care for people with IDD across nations. The 13 aspects varied minimally in importance ratings and were grouped into five overarching conceptual themes: (i) active patient role, (ii) provider role, (iii) context of care, (iv) consequences of care for people with IDD, and (v) quality of care. Conclusions The themes, clusters and statements identified through this explorative study provide additional content and context for the specific patient group of people with IDD to the dimensions of previous models of medical care. |
| first_indexed | 2024-12-12T00:38:05Z |
| format | Article |
| id | doaj.art-a9c3ccbf212d4767aa63a65e489cd043 |
| institution | Directory Open Access Journal |
| issn | 1475-9276 |
| language | English |
| last_indexed | 2024-12-12T00:38:05Z |
| publishDate | 2022-07-01 |
| publisher | BMC |
| record_format | Article |
| series | International Journal for Equity in Health |
| spelling | doaj.art-a9c3ccbf212d4767aa63a65e489cd0432022-12-22T00:44:19ZengBMCInternational Journal for Equity in Health1475-92762022-07-0121111110.1186/s12939-022-01700-wExploring views on medical care for people with intellectual disabilities: an international concept mapping studyMarian E. J. Breuer0Esther J. Bakker-van Gijssel1Kristel Vlot-van Anrooij2Hilde Tobi3Geraline L. Leusink4Jenneken Naaldenberg5Department of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health SciencesDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health SciencesDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health SciencesBiometrics, Wageningen University & ResearchDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health SciencesDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health SciencesAbstract Background Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specific medical care needs of people with IDD. This study aims to provide an improved understanding of which aspects constitute medical care for people with IDD by exploring how international researchers and practitioners describe this care, using concept mapping. Methods Twenty-five experts (researchers and practitioners) on medical care for people with IDD from 17 countries submitted statements on medical care in their country in a brainstorming session, using an online concept mapping tool. Next, they sorted all collected statements and rated them on importance. Results Participants generated statements that reflect current medical and health care practice, their ideas on good practice, and aspirations for future medical and health care for people with IDD. Based on the sorting of all statements, a concept map was formed, covering 13 aspects that characterize medical and health care for people with IDD across nations. The 13 aspects varied minimally in importance ratings and were grouped into five overarching conceptual themes: (i) active patient role, (ii) provider role, (iii) context of care, (iv) consequences of care for people with IDD, and (v) quality of care. Conclusions The themes, clusters and statements identified through this explorative study provide additional content and context for the specific patient group of people with IDD to the dimensions of previous models of medical care.https://doi.org/10.1186/s12939-022-01700-w‘persons with intellectual disabilities’‘delivery of health careIntegrated’‘health services for persons with disabilities’‘medical care’‘concept mapping’ |
| spellingShingle | Marian E. J. Breuer Esther J. Bakker-van Gijssel Kristel Vlot-van Anrooij Hilde Tobi Geraline L. Leusink Jenneken Naaldenberg Exploring views on medical care for people with intellectual disabilities: an international concept mapping study International Journal for Equity in Health ‘persons with intellectual disabilities’ ‘delivery of health care Integrated’ ‘health services for persons with disabilities’ ‘medical care’ ‘concept mapping’ |
| title | Exploring views on medical care for people with intellectual disabilities: an international concept mapping study |
| title_full | Exploring views on medical care for people with intellectual disabilities: an international concept mapping study |
| title_fullStr | Exploring views on medical care for people with intellectual disabilities: an international concept mapping study |
| title_full_unstemmed | Exploring views on medical care for people with intellectual disabilities: an international concept mapping study |
| title_short | Exploring views on medical care for people with intellectual disabilities: an international concept mapping study |
| title_sort | exploring views on medical care for people with intellectual disabilities an international concept mapping study |
| topic | ‘persons with intellectual disabilities’ ‘delivery of health care Integrated’ ‘health services for persons with disabilities’ ‘medical care’ ‘concept mapping’ |
| url | https://doi.org/10.1186/s12939-022-01700-w |
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