Sickle cell disease among Latinx in California.

<h4>Introduction</h4>After African Americans, Latinx are the second largest population affected by Sickle Cell Disease (SCD) in the U.S. However, research has largely ignored how this devastating rare blood disorder specifically affects Latinx nationwide.<h4>Methods</h4>This...

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Main Authors: Jhaqueline Valle, Judith R Baker, Daniel Madrigal, Juana Ferrerosa, Susan Paulukonis
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2022-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0276653
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author Jhaqueline Valle
Judith R Baker
Daniel Madrigal
Juana Ferrerosa
Susan Paulukonis
author_facet Jhaqueline Valle
Judith R Baker
Daniel Madrigal
Juana Ferrerosa
Susan Paulukonis
author_sort Jhaqueline Valle
collection DOAJ
description <h4>Introduction</h4>After African Americans, Latinx are the second largest population affected by Sickle Cell Disease (SCD) in the U.S. However, research has largely ignored how this devastating rare blood disorder specifically affects Latinx nationwide.<h4>Methods</h4>This study compared demographics, genotypes, primary insurance, and health care utilization among Latinx and non-Latinx Californians living with SCD, using data from the California SCD Data Collection Program (2016-2018) and newborn screening cases 2000-2017.<h4>Results</h4>Stemming from 6,837 SCD patients, 501(7%) were Latinx. Latinx with SCD (Lx-SCD) were statistically significantly younger than non-Latinx (NLx-SCD) counterparts. Within both groups, females predominated, with 70% being insured by Medicaid. Mean Emergency Department encounters were statistically significantly lower among Lx-SCD adults.<h4>Discussion</h4>Lx-SCD differ in age, genotype, and Emergency Department utilization, when compared to NLx-SCD counterparts in California. Latinx are now the largest racial and/or ethnic group in the US, and their presence in SCD population is expected to grow. Therefore, their specific demographic, genotypic, and health care utilization characteristics merit attention to inform policies and programs that will improve their health.
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spelling doaj.art-aa2ac4e917774eb49774ae196ba829972022-12-22T02:38:23ZengPublic Library of Science (PLoS)PLoS ONE1932-62032022-01-011710e027665310.1371/journal.pone.0276653Sickle cell disease among Latinx in California.Jhaqueline ValleJudith R BakerDaniel MadrigalJuana FerrerosaSusan Paulukonis<h4>Introduction</h4>After African Americans, Latinx are the second largest population affected by Sickle Cell Disease (SCD) in the U.S. However, research has largely ignored how this devastating rare blood disorder specifically affects Latinx nationwide.<h4>Methods</h4>This study compared demographics, genotypes, primary insurance, and health care utilization among Latinx and non-Latinx Californians living with SCD, using data from the California SCD Data Collection Program (2016-2018) and newborn screening cases 2000-2017.<h4>Results</h4>Stemming from 6,837 SCD patients, 501(7%) were Latinx. Latinx with SCD (Lx-SCD) were statistically significantly younger than non-Latinx (NLx-SCD) counterparts. Within both groups, females predominated, with 70% being insured by Medicaid. Mean Emergency Department encounters were statistically significantly lower among Lx-SCD adults.<h4>Discussion</h4>Lx-SCD differ in age, genotype, and Emergency Department utilization, when compared to NLx-SCD counterparts in California. Latinx are now the largest racial and/or ethnic group in the US, and their presence in SCD population is expected to grow. Therefore, their specific demographic, genotypic, and health care utilization characteristics merit attention to inform policies and programs that will improve their health.https://doi.org/10.1371/journal.pone.0276653
spellingShingle Jhaqueline Valle
Judith R Baker
Daniel Madrigal
Juana Ferrerosa
Susan Paulukonis
Sickle cell disease among Latinx in California.
PLoS ONE
title Sickle cell disease among Latinx in California.
title_full Sickle cell disease among Latinx in California.
title_fullStr Sickle cell disease among Latinx in California.
title_full_unstemmed Sickle cell disease among Latinx in California.
title_short Sickle cell disease among Latinx in California.
title_sort sickle cell disease among latinx in california
url https://doi.org/10.1371/journal.pone.0276653
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