Quality of Life in Patients Suffering from Beta-Thalassemia Major in Amirkola, Iran
Abstract Introduction: Thalassemia is regarded as a genetic hematologic disease that affects various aspects of patients’ life. Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. Materials and methods: This cross-secti...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Shahid Sadoughi University of Medical Sciences
2015-12-01
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| Series: | Journal of Community Health Research |
| Subjects: | |
| Online Access: | http://jhr.ssu.ac.ir/browse.php?a_code=A-10-1117-3&slc_lang=en&sid=1 |
| Summary: | Abstract
Introduction: Thalassemia is regarded as a genetic hematologic disease that affects various aspects of patients’ life. Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment.
Materials and methods: This cross-sectional study consisted of 50 adolescents aged 12-18 years suffering from Thalassemia major, out of which 30 were females and 20 were males with the mean (±SD) age of 15.38(±2) years old. The present study was carried out applying the Kidscreen-27 health-related questionnaire.
Results: There was no statistically significant difference between urban and rural patients’ scores (P-value=0.22). Comparison of quality of life amongst female and male patients indicated male patients' better scores in regard with physical well-being, psychosocial well-being and the total score of quality of life compared to the females (P-value<0.05). The total score of quality of life within adolescents with higher educated fathers was reported to be slightly higher than that of the other groups.
Conclusion: The study findings revealed that there was neither a significant difference between urban and rural patients with thalassemia major, nor a relation between adolescent patients' quality of life and their fathers’ education level. Nonetheless, male patients were demonstrated to have better quality of lifethan females. |
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| ISSN: | 2322-5688 2345-2609 |