Telemedicine in cystic fibrosis

Cystic Fibrosis (CF) requires lifetime multidisciplinary care to manage both pulmonary and extra pulmonary manifestations. The median age of survival for people with CF is rising and the number of adults with CF is expected to increase dramatically over the coming years. People with CF have better o...

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Main Authors: Marisa E. Desimone, Jordan Sherwood, Sarah C. Soltman, Antoinette Moran
Format: Article
Language:English
Published: Elsevier 2021-12-01
Series:Journal of Clinical & Translational Endocrinology
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2214623721000223
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author Marisa E. Desimone
Jordan Sherwood
Sarah C. Soltman
Antoinette Moran
author_facet Marisa E. Desimone
Jordan Sherwood
Sarah C. Soltman
Antoinette Moran
author_sort Marisa E. Desimone
collection DOAJ
description Cystic Fibrosis (CF) requires lifetime multidisciplinary care to manage both pulmonary and extra pulmonary manifestations. The median age of survival for people with CF is rising and the number of adults with CF is expected to increase dramatically over the coming years. People with CF have better outcomes when managed in specialty centers, however access can be limited. Telemedicine and technology-based care solutions may help to overcome barriers to availability and improve access. This review outlines the use of telehealth for CF management. Telehealth has been utilized for CF across a broad variety of indications, even prior to the COVID-19 pandemic, and in general has been well accepted by patients and providers. There are a paucity of data, however, related to health outcomes, and the healthcare utilization specific to CF and its related comorbidities. Future studies are needed to address the questions of health outcomes, cost, burdens of telehealth and barriers to implementation.
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spelling doaj.art-aae2d89490044ad28863918778445aa52022-12-21T22:41:42ZengElsevierJournal of Clinical & Translational Endocrinology2214-62372021-12-0126100270Telemedicine in cystic fibrosisMarisa E. Desimone0Jordan Sherwood1Sarah C. Soltman2Antoinette Moran3Division of Endocrinology, Diabetes and Metabolism, State University of New York at Upstate Medical University 750 East Adams Street, Syracuse, NY 13210, USA; Corresponding author.Division of Pediatric Endocrinology, Massachusetts General Hospital, 55 Fruit Street, Boston, MA 02114, USADivision of Endocrinology, Diabetes and Clinical Nutrition, Oregon Health and Science University, 3270 SW Pavilion Loop, Portland, OR 97239, USADivision of Pediatric Endocrinology, University of Minnesota, 2512 S 7th Street, Minneapolis, MN 55454, USACystic Fibrosis (CF) requires lifetime multidisciplinary care to manage both pulmonary and extra pulmonary manifestations. The median age of survival for people with CF is rising and the number of adults with CF is expected to increase dramatically over the coming years. People with CF have better outcomes when managed in specialty centers, however access can be limited. Telemedicine and technology-based care solutions may help to overcome barriers to availability and improve access. This review outlines the use of telehealth for CF management. Telehealth has been utilized for CF across a broad variety of indications, even prior to the COVID-19 pandemic, and in general has been well accepted by patients and providers. There are a paucity of data, however, related to health outcomes, and the healthcare utilization specific to CF and its related comorbidities. Future studies are needed to address the questions of health outcomes, cost, burdens of telehealth and barriers to implementation.http://www.sciencedirect.com/science/article/pii/S2214623721000223TelemedicineTelehealthCystic fibrosisCystic fibrosis related diabetes
spellingShingle Marisa E. Desimone
Jordan Sherwood
Sarah C. Soltman
Antoinette Moran
Telemedicine in cystic fibrosis
Journal of Clinical & Translational Endocrinology
Telemedicine
Telehealth
Cystic fibrosis
Cystic fibrosis related diabetes
title Telemedicine in cystic fibrosis
title_full Telemedicine in cystic fibrosis
title_fullStr Telemedicine in cystic fibrosis
title_full_unstemmed Telemedicine in cystic fibrosis
title_short Telemedicine in cystic fibrosis
title_sort telemedicine in cystic fibrosis
topic Telemedicine
Telehealth
Cystic fibrosis
Cystic fibrosis related diabetes
url http://www.sciencedirect.com/science/article/pii/S2214623721000223
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AT jordansherwood telemedicineincysticfibrosis
AT sarahcsoltman telemedicineincysticfibrosis
AT antoinettemoran telemedicineincysticfibrosis