Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study
Direct-to-consumer (DTC) genetic tests (GT) enable consumers to access a wide range of GT, without involving a healthcare professional, promoting an increasing disassociation of genetics from the clinical context. This study explores, through semi-structured interviews, the experiences and attitudes...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2019-10-01
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| Series: | New Genetics and Society |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/14636778.2019.1677149 |
| _version_ | 1797681255671660544 |
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| author | Louiza Kalokairinou Pascal Borry Heidi C. Howard |
| author_facet | Louiza Kalokairinou Pascal Borry Heidi C. Howard |
| author_sort | Louiza Kalokairinou |
| collection | DOAJ |
| description | Direct-to-consumer (DTC) genetic tests (GT) enable consumers to access a wide range of GT, without involving a healthcare professional, promoting an increasing disassociation of genetics from the clinical context. This study explores, through semi-structured interviews, the experiences and attitudes of European clinical geneticists towards DTCGT. Our results indicate that the participants have limited experience of consultations with patients regarding such tests. The majority of participants stated that consumers purchased tests out of curiosity and sought a general interpretation of test results by a healthcare professional. Most respondents were skeptical of the quality of tests, especially regarding their clinical utility. The participants supported the importance of medical supervision and genetic counseling in this context. Finally, most respondents considered it their duty to accept consultations concerning DTCGT results. However, due to concerns over limited time and potential downstream costs, some participants supported that a prioritization system based on guidelines would be necessary. |
| first_indexed | 2024-03-11T23:41:51Z |
| format | Article |
| id | doaj.art-aae84a4a736f40d2ab325a64b323338b |
| institution | Directory Open Access Journal |
| issn | 1463-6778 1469-9915 |
| language | English |
| last_indexed | 2024-03-11T23:41:51Z |
| publishDate | 2019-10-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | New Genetics and Society |
| spelling | doaj.art-aae84a4a736f40d2ab325a64b323338b2023-09-19T15:22:18ZengTaylor & Francis GroupNew Genetics and Society1463-67781469-99152019-10-0138441042910.1080/14636778.2019.16771491677149Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview studyLouiza Kalokairinou0Pascal Borry1Heidi C. Howard2Department of Public Health and Primary Care, Centre for Biomedical Ethics and Law, University of LeuvenDepartment of Public Health and Primary Care, Centre for Biomedical Ethics and Law, University of LeuvenCentre for Research Ethics & Bioethics, Uppsala UniversityDirect-to-consumer (DTC) genetic tests (GT) enable consumers to access a wide range of GT, without involving a healthcare professional, promoting an increasing disassociation of genetics from the clinical context. This study explores, through semi-structured interviews, the experiences and attitudes of European clinical geneticists towards DTCGT. Our results indicate that the participants have limited experience of consultations with patients regarding such tests. The majority of participants stated that consumers purchased tests out of curiosity and sought a general interpretation of test results by a healthcare professional. Most respondents were skeptical of the quality of tests, especially regarding their clinical utility. The participants supported the importance of medical supervision and genetic counseling in this context. Finally, most respondents considered it their duty to accept consultations concerning DTCGT results. However, due to concerns over limited time and potential downstream costs, some participants supported that a prioritization system based on guidelines would be necessary.http://dx.doi.org/10.1080/14636778.2019.1677149direct-to-consumergenetic testingmedical supervisiongenetic counseling |
| spellingShingle | Louiza Kalokairinou Pascal Borry Heidi C. Howard Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study New Genetics and Society direct-to-consumer genetic testing medical supervision genetic counseling |
| title | Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study |
| title_full | Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study |
| title_fullStr | Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study |
| title_full_unstemmed | Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study |
| title_short | Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study |
| title_sort | attitudes and experiences of european clinical geneticists towards direct to consumer genetic testing a qualitative interview study |
| topic | direct-to-consumer genetic testing medical supervision genetic counseling |
| url | http://dx.doi.org/10.1080/14636778.2019.1677149 |
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