Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff

Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff

Plain English summary Health data from routine care can be pseudonymised (with a link remaining to the patient but identifying features removed) or anonymised (with identifying features removed and the link to the patient severed) and used for research and health planning; termed “secondary use”. Th...

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Bibliographic Details
Main Authors: C. Atkin, B. Crosby, K. Dunn, G. Price, E. Marston, C. Crawford, M. O’Hara, C. Morgan, M. Levermore, S. Gallier, S. Modhwadia, J. Attwood, S. Perks, A. K. Denniston, G. Gkoutos, R. Dormer, A. Rosser, A. Ignatowicz, H. Fanning, E. Sapey, On behalf of the PIONEER Data Hub
Format: Article
Language:English
Published: BMC 2021-06-01
Series:Research Involvement and Engagement
Subjects:
Data sharing
Secondary data use
National Data opt-out
Anonymised healthcare data
Commercial
Online Access:https://doi.org/10.1186/s40900-021-00281-2

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