Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis

Childhood cancer has a great impact on children and their environment. To minimize this, countries such as Canada and the USA have protocols in the field of social work, although these are scarce in Europe and especially in Spain. This paper aims to develop a pilot protocol in Aragon (Spain) for the...

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Main Authors: Marta Mira-Aladrén, Javier Martín-Peña, Gemma Sevillano Cintora, Antonio Celma Juste, Marta Gil-Lacruz
Format: Article
Language:English
Published: MDPI AG 2022-09-01
Series:Healthcare
Subjects:
Online Access:https://www.mdpi.com/2227-9032/10/9/1790
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author Marta Mira-Aladrén
Javier Martín-Peña
Gemma Sevillano Cintora
Antonio Celma Juste
Marta Gil-Lacruz
author_facet Marta Mira-Aladrén
Javier Martín-Peña
Gemma Sevillano Cintora
Antonio Celma Juste
Marta Gil-Lacruz
author_sort Marta Mira-Aladrén
collection DOAJ
description Childhood cancer has a great impact on children and their environment. To minimize this, countries such as Canada and the USA have protocols in the field of social work, although these are scarce in Europe and especially in Spain. This paper aims to develop a pilot protocol in Aragon (Spain) for the practice of onco-pediatric social work in one of the hardest moments: the diagnosis. For its elaboration, a previous study was carried out in three phases, which provided data on the disease and its impact on the family and children and a methodological basis for the intervention from social work, all considering the participation of the agents involved as a fundamental element. Variables have been identified that influence the impact on the family support network and its quality of life at the time of diagnosis of childhood cancer. In addition, different indicators have been explored, based on the reality of these families. Finally, a pilot proposal for a comprehensive family intervention protocol in the diagnosis of childhood cancer has been elaborated. This work is intended to be a guide for intervention and delimitation of quality standards to be considered when dealing with the diagnosis of childhood cancer.
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spelling doaj.art-ab49329b018d4aca86168f67c37369b72023-11-23T16:30:59ZengMDPI AGHealthcare2227-90322022-09-01109179010.3390/healthcare10091790Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of DiagnosisMarta Mira-Aladrén0Javier Martín-Peña1Gemma Sevillano Cintora2Antonio Celma Juste3Marta Gil-Lacruz4Faculty of Social Sciences and Labor, University of Zaragoza, 50009 Zaragoza, SpainFaculty of Social Sciences and Labor, University of Zaragoza, 50009 Zaragoza, SpainAssociation of Parents of Oncological Children of Aragon (ASPANOA), 50009 Zaragoza, SpainAssociation of Parents of Oncological Children of Aragon (ASPANOA), 50009 Zaragoza, SpainFaculty of Health Sciences, University of Zaragoza, 50009 Zaragoza, SpainChildhood cancer has a great impact on children and their environment. To minimize this, countries such as Canada and the USA have protocols in the field of social work, although these are scarce in Europe and especially in Spain. This paper aims to develop a pilot protocol in Aragon (Spain) for the practice of onco-pediatric social work in one of the hardest moments: the diagnosis. For its elaboration, a previous study was carried out in three phases, which provided data on the disease and its impact on the family and children and a methodological basis for the intervention from social work, all considering the participation of the agents involved as a fundamental element. Variables have been identified that influence the impact on the family support network and its quality of life at the time of diagnosis of childhood cancer. In addition, different indicators have been explored, based on the reality of these families. Finally, a pilot proposal for a comprehensive family intervention protocol in the diagnosis of childhood cancer has been elaborated. This work is intended to be a guide for intervention and delimitation of quality standards to be considered when dealing with the diagnosis of childhood cancer.https://www.mdpi.com/2227-9032/10/9/1790childhood cancerdiagnosisfamily impactcrisis interventionsocial work
spellingShingle Marta Mira-Aladrén
Javier Martín-Peña
Gemma Sevillano Cintora
Antonio Celma Juste
Marta Gil-Lacruz
Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
Healthcare
childhood cancer
diagnosis
family impact
crisis intervention
social work
title Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_full Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_fullStr Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_full_unstemmed Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_short Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_sort childhood cancer and the family a pilot proposal for comprehensive intervention at the time of diagnosis
topic childhood cancer
diagnosis
family impact
crisis intervention
social work
url https://www.mdpi.com/2227-9032/10/9/1790
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AT gemmasevillanocintora childhoodcancerandthefamilyapilotproposalforcomprehensiveinterventionatthetimeofdiagnosis
AT antoniocelmajuste childhoodcancerandthefamilyapilotproposalforcomprehensiveinterventionatthetimeofdiagnosis
AT martagillacruz childhoodcancerandthefamilyapilotproposalforcomprehensiveinterventionatthetimeofdiagnosis