Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review

Background UK adult gender identity clinics (GICs) are implementing a new streamlined service model. However, there is minimal evidence from these services underpinning this. It is also unknown how many service users subsequently ‘detransition’. Aims To describe service users’ access to care and p...

Full description

Bibliographic Details
Main Authors: R. Hall, L. Mitchell, J. Sachdeva
Format: Article
Language:English
Published: Cambridge University Press 2021-11-01
Series:BJPsych Open
Subjects:
Online Access:https://www.cambridge.org/core/product/identifier/S205647242101022X/type/journal_article
_version_ 1811156932144136192
author R. Hall
L. Mitchell
J. Sachdeva
author_facet R. Hall
L. Mitchell
J. Sachdeva
author_sort R. Hall
collection DOAJ
description Background UK adult gender identity clinics (GICs) are implementing a new streamlined service model. However, there is minimal evidence from these services underpinning this. It is also unknown how many service users subsequently ‘detransition’. Aims To describe service users’ access to care and patterns of service use, specifically, interventions accessed, reasons for discharge and re-referrals; to identify factors associated with access; and to quantify ‘detransitioning’. Method A retrospective case-note review was performed as a service evaluation for 175 service users consecutively discharged by a tertiary National Health Service adult GIC between 1 September 2017 and 31 August 2018. Descriptive statistics were used for rates of accessing interventions sought, reasons for discharge, re-referral and frequency of detransitioning. Using multivariate analysis, we sought associations between several variables and ‘accessing care’ or ‘other outcome’. Results The treatment pathway was completed by 56.1%. All interventions initially sought were accessed by 58%; 94% accessed hormones but only 47.7% accessed gender reassignment surgery; 21.7% disengaged; and 19.4% were re-referred. Multivariate analysis identified coexisting neurodevelopmental disorders (odds ratio [OR] = 5.7, 95% CI = 1.7–19), previous adverse childhood experiences (ACEs) per reported ACE (OR = 1.5, 95% CI = 1.1–1.9), substance misuse during treatment (OR = 4.3, 95% CI = 1.1–17.6) and mental health concerns during treatment (OR = 2.2, 95% CI 1.1–4.4) as independently associated with accessing care. Twelve people (6.9%) met our case definition of detransitioning. Conclusions Service users may have unmet needs. Neurodevelopmental disorders or ACEs suggest complexity requiring consideration during the assessment process. Managing mental ill health and substance misuse during treatment needs optimising. Detransitioning might be more frequent than previously reported.
first_indexed 2024-04-10T04:59:26Z
format Article
id doaj.art-ab57ce411cfe4d64979d9d4c788cf136
institution Directory Open Access Journal
issn 2056-4724
language English
last_indexed 2024-04-10T04:59:26Z
publishDate 2021-11-01
publisher Cambridge University Press
record_format Article
series BJPsych Open
spelling doaj.art-ab57ce411cfe4d64979d9d4c788cf1362023-03-09T12:29:17ZengCambridge University PressBJPsych Open2056-47242021-11-01710.1192/bjo.2021.1022Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note reviewR. Hall0https://orcid.org/0000-0001-5014-6321L. Mitchell1J. Sachdeva2Devon Partnership Trust, UKPlymouth Hospitals Trust, UKDevon Partnership Trust, UK Background UK adult gender identity clinics (GICs) are implementing a new streamlined service model. However, there is minimal evidence from these services underpinning this. It is also unknown how many service users subsequently ‘detransition’. Aims To describe service users’ access to care and patterns of service use, specifically, interventions accessed, reasons for discharge and re-referrals; to identify factors associated with access; and to quantify ‘detransitioning’. Method A retrospective case-note review was performed as a service evaluation for 175 service users consecutively discharged by a tertiary National Health Service adult GIC between 1 September 2017 and 31 August 2018. Descriptive statistics were used for rates of accessing interventions sought, reasons for discharge, re-referral and frequency of detransitioning. Using multivariate analysis, we sought associations between several variables and ‘accessing care’ or ‘other outcome’. Results The treatment pathway was completed by 56.1%. All interventions initially sought were accessed by 58%; 94% accessed hormones but only 47.7% accessed gender reassignment surgery; 21.7% disengaged; and 19.4% were re-referred. Multivariate analysis identified coexisting neurodevelopmental disorders (odds ratio [OR] = 5.7, 95% CI = 1.7–19), previous adverse childhood experiences (ACEs) per reported ACE (OR = 1.5, 95% CI = 1.1–1.9), substance misuse during treatment (OR = 4.3, 95% CI = 1.1–17.6) and mental health concerns during treatment (OR = 2.2, 95% CI 1.1–4.4) as independently associated with accessing care. Twelve people (6.9%) met our case definition of detransitioning. Conclusions Service users may have unmet needs. Neurodevelopmental disorders or ACEs suggest complexity requiring consideration during the assessment process. Managing mental ill health and substance misuse during treatment needs optimising. Detransitioning might be more frequent than previously reported. https://www.cambridge.org/core/product/identifier/S205647242101022X/type/journal_articleTransgendertranssexualgender identitygender dysphoriadetransition
spellingShingle R. Hall
L. Mitchell
J. Sachdeva
Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review
BJPsych Open
Transgender
transsexual
gender identity
gender dysphoria
detransition
title Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review
title_full Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review
title_fullStr Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review
title_full_unstemmed Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review
title_short Access to care and frequency of detransition among a cohort discharged by a UK national adult gender identity clinic: retrospective case-note review
title_sort access to care and frequency of detransition among a cohort discharged by a uk national adult gender identity clinic retrospective case note review
topic Transgender
transsexual
gender identity
gender dysphoria
detransition
url https://www.cambridge.org/core/product/identifier/S205647242101022X/type/journal_article
work_keys_str_mv AT rhall accesstocareandfrequencyofdetransitionamongacohortdischargedbyauknationaladultgenderidentityclinicretrospectivecasenotereview
AT lmitchell accesstocareandfrequencyofdetransitionamongacohortdischargedbyauknationaladultgenderidentityclinicretrospectivecasenotereview
AT jsachdeva accesstocareandfrequencyofdetransitionamongacohortdischargedbyauknationaladultgenderidentityclinicretrospectivecasenotereview