Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China

Background Little is known about how sociodemographic and clinical factors affect the caregiving burden of persons with schizophrenia (PwSs) with transition in primary caregivers. Aims This study aimed to examine the predictive effects of sociodemographic and clinical factors on the caregiving burd...

Full description

Bibliographic Details
Main Authors: Man-Man Peng, Zhiying Ma, She-Ying Chen, Wei Luo, Shi-Hui Hu, Xin Yang, Bo Liu, Cecilia Lai-Wan Chan, Mao-Sheng Ran
Format: Article
Language:English
Published: Cambridge University Press 2022-05-01
Series:BJPsych Open
Subjects:
Online Access:https://www.cambridge.org/core/product/identifier/S205647242200045X/type/journal_article
_version_ 1811156932342317056
author Man-Man Peng
Zhiying Ma
She-Ying Chen
Wei Luo
Shi-Hui Hu
Xin Yang
Bo Liu
Cecilia Lai-Wan Chan
Mao-Sheng Ran
author_facet Man-Man Peng
Zhiying Ma
She-Ying Chen
Wei Luo
Shi-Hui Hu
Xin Yang
Bo Liu
Cecilia Lai-Wan Chan
Mao-Sheng Ran
author_sort Man-Man Peng
collection DOAJ
description Background Little is known about how sociodemographic and clinical factors affect the caregiving burden of persons with schizophrenia (PwSs) with transition in primary caregivers. Aims This study aimed to examine the predictive effects of sociodemographic and clinical factors on the caregiving burden of PwSs with and without caregiver transition from 1994 to 2015 in rural China. Method Using panel data, 206 dyads of PwSs and their primary caregivers were investigated in both 1994 and 2015. The generalised linear model approach was used to examine the predictive effects of sociodemographic factors, severity of symptoms and changes in social functioning on the caregiving burden with and without caregiver transition. Results The percentages of families with and without caregiver transition were 38.8% and 61.2%, respectively. Among families without caregiver transition, a heavier burden was significantly related to a larger family size and more severe symptoms in PwSs. Deteriorated functioning of ‘social activities outside the household’ and improved functioning of ‘activity in the household’ were protective factors against a heavy caregiving burden. Among families with caregiver transition, younger age, improved marital functioning, deteriorated self-care functioning, and better functioning of ‘social interest or concern’ were significant risk factors for caregiving burden. Conclusions The effects of sociodemographic and clinical correlates on the caregiving burden were different among families with and without caregiver transition. It is crucial to explore the caregiver arrangement of PwSs and the risk factors for burden over time, which will facilitate culture-specific family interventions, community-based mental health services and recovery.
first_indexed 2024-04-10T04:58:18Z
format Article
id doaj.art-abb89c7033404b28ad3467026eb4ab3b
institution Directory Open Access Journal
issn 2056-4724
language English
last_indexed 2024-04-10T04:58:18Z
publishDate 2022-05-01
publisher Cambridge University Press
record_format Article
series BJPsych Open
spelling doaj.art-abb89c7033404b28ad3467026eb4ab3b2023-03-09T12:29:19ZengCambridge University PressBJPsych Open2056-47242022-05-01810.1192/bjo.2022.45Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural ChinaMan-Man Peng0Zhiying Ma1She-Ying Chen2Wei Luo3Shi-Hui Hu4Xin Yang5Bo Liu6Cecilia Lai-Wan Chan7Mao-Sheng Ran8https://orcid.org/0000-0001-7343-3729Institute of Advanced Studies in Humanities and Social Sciences, Beijing Normal University at Zhuhai, Zhuhai, ChinaCrown Family School of Social Work, Policy, and Practice, The University of Chicago, Chicago, Illinois, USACenter for Social Work Study, Institute on Chinese Culture, Health and Public Welfare, Tsinghua University, ChinaXinjin Second People's Hospital, Xinjin, Chengdu, Sichuan, ChinaChengdu Mental Health Center, Chengdu, Sichuan, ChinaGuangyuan Mental Health Center, Guangyuan, Sichuan, ChinaJingzhou Mental Health Center, Jingzhou, Hubei, ChinaDepartment of Social Work and Social Administration, University of Hong Kong, Hong Kong SAR, ChinaDepartment of Social Work and Social Administration, University of Hong Kong, Hong Kong SAR; and Mental Health Center, West China Hospital, Sichuan University, Chengdu, Sichuan, ChinaBackground Little is known about how sociodemographic and clinical factors affect the caregiving burden of persons with schizophrenia (PwSs) with transition in primary caregivers. Aims This study aimed to examine the predictive effects of sociodemographic and clinical factors on the caregiving burden of PwSs with and without caregiver transition from 1994 to 2015 in rural China. Method Using panel data, 206 dyads of PwSs and their primary caregivers were investigated in both 1994 and 2015. The generalised linear model approach was used to examine the predictive effects of sociodemographic factors, severity of symptoms and changes in social functioning on the caregiving burden with and without caregiver transition. Results The percentages of families with and without caregiver transition were 38.8% and 61.2%, respectively. Among families without caregiver transition, a heavier burden was significantly related to a larger family size and more severe symptoms in PwSs. Deteriorated functioning of ‘social activities outside the household’ and improved functioning of ‘activity in the household’ were protective factors against a heavy caregiving burden. Among families with caregiver transition, younger age, improved marital functioning, deteriorated self-care functioning, and better functioning of ‘social interest or concern’ were significant risk factors for caregiving burden. Conclusions The effects of sociodemographic and clinical correlates on the caregiving burden were different among families with and without caregiver transition. It is crucial to explore the caregiver arrangement of PwSs and the risk factors for burden over time, which will facilitate culture-specific family interventions, community-based mental health services and recovery. https://www.cambridge.org/core/product/identifier/S205647242200045X/type/journal_articleSchizophreniaprimary caregiverssocial functioningcaregiving burdenlong-term care
spellingShingle Man-Man Peng
Zhiying Ma
She-Ying Chen
Wei Luo
Shi-Hui Hu
Xin Yang
Bo Liu
Cecilia Lai-Wan Chan
Mao-Sheng Ran
Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China
BJPsych Open
Schizophrenia
primary caregivers
social functioning
caregiving burden
long-term care
title Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China
title_full Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China
title_fullStr Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China
title_full_unstemmed Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China
title_short Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China
title_sort predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural china
topic Schizophrenia
primary caregivers
social functioning
caregiving burden
long-term care
url https://www.cambridge.org/core/product/identifier/S205647242200045X/type/journal_article
work_keys_str_mv AT manmanpeng predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT zhiyingma predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT sheyingchen predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT weiluo predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT shihuihu predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT xinyang predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT boliu predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT cecilialaiwanchan predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina
AT maoshengran predictorsoffamilycaregivingburdenofpersonswithschizophreniawithandwithouttransitionofprimarycaregiversfrom1994to2015inruralchina