Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis

Endometriosis is a common condition which affects women in a number of ways and impairs their ability to live a full and meaningful life. Evaluative research has traditionally taken its cue from a medical approach which has forced women to choose one area of functioning as their primary concern, and...

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Main Authors: Lori McPherson, Siladitya Bhattacharya
Format: Article
Language:English
Published: Frontiers Media S.A. 2021-12-01
Series:Frontiers in Global Women's Health
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fgwh.2021.770366/full
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author Lori McPherson
Siladitya Bhattacharya
author_facet Lori McPherson
Siladitya Bhattacharya
author_sort Lori McPherson
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description Endometriosis is a common condition which affects women in a number of ways and impairs their ability to live a full and meaningful life. Evaluative research has traditionally taken its cue from a medical approach which has forced women to choose one area of functioning as their primary concern, and tended to use a narrow definition of treatment success which ignores general well-being. While recent trials have included quality of life (QOL) measures as outcomes, these have not been able to capture the totality of the impact of the disease and its treatment on a woman's capability to do what she might want to do and be who she might want to be. A capability approach might overcome this barrier, but the available tools will need to be refined and validated in women with endometriosis before this can be integrated within everyday clinical and research practice.
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spelling doaj.art-ac3e9a10baf14a109f589868fed7105d2022-12-21T19:35:25ZengFrontiers Media S.A.Frontiers in Global Women's Health2673-50592021-12-01210.3389/fgwh.2021.770366770366Measuring What Matters—A Holistic Approach to Measuring Well-Being in EndometriosisLori McPherson0Siladitya Bhattacharya1Department of Obstetrics and Gynaecology, NHS Grampian, Aberdeen, United KingdomDepartment of Obstetrics and Gynaecology, School of Medicine, Medical Sciences and Nutrition, University of Aberdeen, Aberdeen, United KingdomEndometriosis is a common condition which affects women in a number of ways and impairs their ability to live a full and meaningful life. Evaluative research has traditionally taken its cue from a medical approach which has forced women to choose one area of functioning as their primary concern, and tended to use a narrow definition of treatment success which ignores general well-being. While recent trials have included quality of life (QOL) measures as outcomes, these have not been able to capture the totality of the impact of the disease and its treatment on a woman's capability to do what she might want to do and be who she might want to be. A capability approach might overcome this barrier, but the available tools will need to be refined and validated in women with endometriosis before this can be integrated within everyday clinical and research practice.https://www.frontiersin.org/articles/10.3389/fgwh.2021.770366/fullendometriosisquality of life (QOL)capabilitiesgynaecologywomen
spellingShingle Lori McPherson
Siladitya Bhattacharya
Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis
Frontiers in Global Women's Health
endometriosis
quality of life (QOL)
capabilities
gynaecology
women
title Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis
title_full Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis
title_fullStr Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis
title_full_unstemmed Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis
title_short Measuring What Matters—A Holistic Approach to Measuring Well-Being in Endometriosis
title_sort measuring what matters a holistic approach to measuring well being in endometriosis
topic endometriosis
quality of life (QOL)
capabilities
gynaecology
women
url https://www.frontiersin.org/articles/10.3389/fgwh.2021.770366/full
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