A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]

<p>Abstract</p> <p>Background</p> <p>For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable,...

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Main Authors: Whitty Paula M, Johnston Marie, Hughes Julian C, Bamford Claire H, Foy Robbie, Eccles Martin P, Steen Nick, Grimshaw Jeremy G
Format: Article
Language:English
Published: BMC 2006-03-01
Series:Implementation Science
Online Access:http://www.implementationscience.com/content/1/1/7
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author Whitty Paula M
Johnston Marie
Hughes Julian C
Bamford Claire H
Foy Robbie
Eccles Martin P
Steen Nick
Grimshaw Jeremy G
author_facet Whitty Paula M
Johnston Marie
Hughes Julian C
Bamford Claire H
Foy Robbie
Eccles Martin P
Steen Nick
Grimshaw Jeremy G
author_sort Whitty Paula M
collection DOAJ
description <p>Abstract</p> <p>Background</p> <p>For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable, and there is wide variation in the practice of disclosure. The aim of this study is to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia.</p> <p>Methods</p> <p>There are three objectives. Objective 1 is to define and develop an appropriate model of disclosure; this will be addressed using a multidisciplinary consensus development process. Objective 2 is to identify factors that influence disclosure of diagnosis; a questionnaire based upon theoretical constructs from a range of behavioural theories will be developed and members of old age mental health teams will be surveyed. The analysis will identify those factors that best predict intention to disclose a diagnosis to a person with dementia. Objective 3 is to develop and pilot test a theory-based intervention to promote disclosure of diagnosis that targets attitudes, beliefs and actions most amenable to change. Objective 3 will use the results of Objectives 1&2 to design and pilot test an intervention to improve the process of and increase the proportion of individuals receiving a diagnosis of dementia, for members of old age mental health teams. This work will lead to a proposal for a randomised controlled trial of the intervention.</p>
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spelling doaj.art-ac70cfa1c99c418f823f0ce61426ee302022-12-21T21:18:22ZengBMCImplementation Science1748-59082006-03-0111710.1186/1748-5908-1-7A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]Whitty Paula MJohnston MarieHughes Julian CBamford Claire HFoy RobbieEccles Martin PSteen NickGrimshaw Jeremy G<p>Abstract</p> <p>Background</p> <p>For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable, and there is wide variation in the practice of disclosure. The aim of this study is to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia.</p> <p>Methods</p> <p>There are three objectives. Objective 1 is to define and develop an appropriate model of disclosure; this will be addressed using a multidisciplinary consensus development process. Objective 2 is to identify factors that influence disclosure of diagnosis; a questionnaire based upon theoretical constructs from a range of behavioural theories will be developed and members of old age mental health teams will be surveyed. The analysis will identify those factors that best predict intention to disclose a diagnosis to a person with dementia. Objective 3 is to develop and pilot test a theory-based intervention to promote disclosure of diagnosis that targets attitudes, beliefs and actions most amenable to change. Objective 3 will use the results of Objectives 1&2 to design and pilot test an intervention to improve the process of and increase the proportion of individuals receiving a diagnosis of dementia, for members of old age mental health teams. This work will lead to a proposal for a randomised controlled trial of the intervention.</p>http://www.implementationscience.com/content/1/1/7
spellingShingle Whitty Paula M
Johnston Marie
Hughes Julian C
Bamford Claire H
Foy Robbie
Eccles Martin P
Steen Nick
Grimshaw Jeremy G
A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]
Implementation Science
title A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]
title_full A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]
title_fullStr A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]
title_full_unstemmed A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]
title_short A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]
title_sort trial platform to develop a tailored theory based intervention to improve professional practice in the disclosure of a diagnosis of dementia study protocol isrctn15871014
url http://www.implementationscience.com/content/1/1/7
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