Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review
Anil Gumber, Bhanu Ramaswamy, Oranuch Thongchundee Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield S10 2BP, UKCorrespondence: Anil GumberFaculty of Health and Wellbeing, Sheffield Hallam University, Collegiate Hall, Sheffield S10 2BP, UKEmail a.gumber@shu.ac.ukBackground: Par...
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| Format: | Article |
| Language: | English |
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Dove Medical Press
2019-10-01
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| Series: | Patient Related Outcome Measures |
| Subjects: | |
| Online Access: | https://www.dovepress.com/effects-of-parkinsons-on-employment-cost-of-care-and-quality-of-life-o-peer-reviewed-article-PROM |
| _version_ | 1819260668568666112 |
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| author | Gumber A Ramaswamy B Thongchundee O |
| author_facet | Gumber A Ramaswamy B Thongchundee O |
| author_sort | Gumber A |
| collection | DOAJ |
| description | Anil Gumber, Bhanu Ramaswamy, Oranuch Thongchundee Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield S10 2BP, UKCorrespondence: Anil GumberFaculty of Health and Wellbeing, Sheffield Hallam University, Collegiate Hall, Sheffield S10 2BP, UKEmail a.gumber@shu.ac.ukBackground: Parkinson’s is an incurable, neuro-degenerative condition with multiple symptoms substantially impacting on living conditions and quality of life (QoL) for people with Parkinson’s (PwP), most whom are older adults, and their families. The study aimed to undertake a literature review of studies conducted in the UK that quantify the direct or indirect impact of Parkinson’s on people with the condition, their families, and society in terms of out-of-pocket payments and financial consequences.Methods: Literature was searched for Parkinson’s-related terms plus condition impact (eg, financial, employment, pension, housing, health care costs, and QoL) in the UK setting. The strategy probed several electronic databases with all retrieved papers screened for relevancy. The instruments used to measure patient-related outcomes were then examined for their relevancy in justifying the results.Results: The initial search retrieved 2,143 papers of which 79 were shortlisted through title and abstract screening. A full-text reading indicated 38 papers met the inclusion and quality criteria. Summary data extracted from the articles on focus, design, sample size, and questionnaires/instruments used were presented in four themes: (a) QoL and wellbeing of PwP, (b) QoL and wellbeing of caregivers and family members, (c) employment and living conditions, and (d) direct and indirect health care and societal cost.Conclusion: UK results substantiated global evidence regarding the deterioration of QoL of PwP as the condition progressed, utilizing numerous measures to demonstrate change. Many spouses and family accept care responsibilities, affecting their QoL and finances too. The review highlighted increased health care and privately borne costs with condition progression, although UK evidence was limited on societal costs of Parkinson’s in terms of loss of employment, reduced work hours, premature retirement of PwP and caregivers that directly affected their household budget.Keywords: Parkinson’s, HRQoL, wellbeing, employment loss, health care cost, societal cost |
| first_indexed | 2024-12-23T19:29:34Z |
| format | Article |
| id | doaj.art-ac7a892f46d84f2792c72c0f953104e4 |
| institution | Directory Open Access Journal |
| issn | 1179-271X |
| language | English |
| last_indexed | 2024-12-23T19:29:34Z |
| publishDate | 2019-10-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Patient Related Outcome Measures |
| spelling | doaj.art-ac7a892f46d84f2792c72c0f953104e42022-12-21T17:33:58ZengDove Medical PressPatient Related Outcome Measures1179-271X2019-10-01Volume 1032133349222Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature reviewGumber ARamaswamy BThongchundee OAnil Gumber, Bhanu Ramaswamy, Oranuch Thongchundee Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield S10 2BP, UKCorrespondence: Anil GumberFaculty of Health and Wellbeing, Sheffield Hallam University, Collegiate Hall, Sheffield S10 2BP, UKEmail a.gumber@shu.ac.ukBackground: Parkinson’s is an incurable, neuro-degenerative condition with multiple symptoms substantially impacting on living conditions and quality of life (QoL) for people with Parkinson’s (PwP), most whom are older adults, and their families. The study aimed to undertake a literature review of studies conducted in the UK that quantify the direct or indirect impact of Parkinson’s on people with the condition, their families, and society in terms of out-of-pocket payments and financial consequences.Methods: Literature was searched for Parkinson’s-related terms plus condition impact (eg, financial, employment, pension, housing, health care costs, and QoL) in the UK setting. The strategy probed several electronic databases with all retrieved papers screened for relevancy. The instruments used to measure patient-related outcomes were then examined for their relevancy in justifying the results.Results: The initial search retrieved 2,143 papers of which 79 were shortlisted through title and abstract screening. A full-text reading indicated 38 papers met the inclusion and quality criteria. Summary data extracted from the articles on focus, design, sample size, and questionnaires/instruments used were presented in four themes: (a) QoL and wellbeing of PwP, (b) QoL and wellbeing of caregivers and family members, (c) employment and living conditions, and (d) direct and indirect health care and societal cost.Conclusion: UK results substantiated global evidence regarding the deterioration of QoL of PwP as the condition progressed, utilizing numerous measures to demonstrate change. Many spouses and family accept care responsibilities, affecting their QoL and finances too. The review highlighted increased health care and privately borne costs with condition progression, although UK evidence was limited on societal costs of Parkinson’s in terms of loss of employment, reduced work hours, premature retirement of PwP and caregivers that directly affected their household budget.Keywords: Parkinson’s, HRQoL, wellbeing, employment loss, health care cost, societal costhttps://www.dovepress.com/effects-of-parkinsons-on-employment-cost-of-care-and-quality-of-life-o-peer-reviewed-article-PROMParkinson'sHRQoLWellbeingEmployment lossHealthcare costSocietal cost |
| spellingShingle | Gumber A Ramaswamy B Thongchundee O Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review Patient Related Outcome Measures Parkinson's HRQoL Wellbeing Employment loss Healthcare cost Societal cost |
| title | Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review |
| title_full | Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review |
| title_fullStr | Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review |
| title_full_unstemmed | Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review |
| title_short | Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review |
| title_sort | effects of parkinson rsquo s on employment cost of care and quality of life of people with condition and family caregivers in the uk a systematic literature review |
| topic | Parkinson's HRQoL Wellbeing Employment loss Healthcare cost Societal cost |
| url | https://www.dovepress.com/effects-of-parkinsons-on-employment-cost-of-care-and-quality-of-life-o-peer-reviewed-article-PROM |
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