Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals
Background The benefits of physical activity (PA) for people with cystic fibrosis (pwCF) are widely accepted, yet how PA is promoted and utilised by pwCF is unclear. Method An online questionnaire to explore attitudes, practices and promotion of PA in cystic fibrosis was completed by healthcare prov...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
European Respiratory Society
2020-09-01
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| Series: | ERJ Open Research |
| Online Access: | http://openres.ersjournals.com/content/6/3/00294-2019.full |
| _version_ | 1828481381925126144 |
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| author | Sarah Denford Narelle S. Cox Kelly A. Mackintosh Melitta A. McNarry Paul O'Halloran Anne E. Holland Owen W. Tomlinson Alan R. Barker Craig A. Williams |
| author_facet | Sarah Denford Narelle S. Cox Kelly A. Mackintosh Melitta A. McNarry Paul O'Halloran Anne E. Holland Owen W. Tomlinson Alan R. Barker Craig A. Williams |
| author_sort | Sarah Denford |
| collection | DOAJ |
| description | Background
The benefits of physical activity (PA) for people with cystic fibrosis (pwCF) are widely accepted, yet how PA is promoted and utilised by pwCF is unclear.
Method
An online questionnaire to explore attitudes, practices and promotion of PA in cystic fibrosis was completed by healthcare providers (HCP), pwCF and parents/caregivers.
Results
351 respondents (105 HCP, 120 pwCF, and 126 parents/caregivers) from 12 countries completed the survey. Importance of PA was rated highly by the majority of respondents. Physical (e.g. health), psychological (e.g. enjoyment) and social (e.g. social interaction) factors were motives for PA for 82%, 49% and 37% of pwCF, respectively, irrespective of country. Common barriers to PA included time (49% and 36%) and tiredness (61% and 7%) for pwCF and parents/carers, respectively. pwCF also reported psychosocial barriers (e.g. stigma, demoralisation), while parents/caregivers reported structural barriers (e.g. cost). Clinical teams varied substantially in terms of the emphasis placed on PA, facilities available, staff and training, and advice given to pwCF.
Conclusion
Despite the majority of participants rating the importance of PA highly, substantial variability was evident regarding the facilities and clinical support available to them, as well as why and how people were active. There remains a need to identify what constitutes “best practice” for PA promotion within clinics. |
| first_indexed | 2024-12-11T07:55:44Z |
| format | Article |
| id | doaj.art-ad78b88b39c94845879d9c9864dfe3d6 |
| institution | Directory Open Access Journal |
| issn | 2312-0541 |
| language | English |
| last_indexed | 2024-12-11T07:55:44Z |
| publishDate | 2020-09-01 |
| publisher | European Respiratory Society |
| record_format | Article |
| series | ERJ Open Research |
| spelling | doaj.art-ad78b88b39c94845879d9c9864dfe3d62022-12-22T01:15:13ZengEuropean Respiratory SocietyERJ Open Research2312-05412020-09-016310.1183/23120541.00294-201900294-2019Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionalsSarah Denford0Narelle S. Cox1Kelly A. Mackintosh2Melitta A. McNarry3Paul O'Halloran4Anne E. Holland5Owen W. Tomlinson6Alan R. Barker7Craig A. Williams8 Children's Health and Exercise Research Centre, Sport and Health Sciences, University of Exeter, Exeter, UK Monash University, School of Primary and Allied Health Care, Frankston, Victoria, Australia Applied Sports Science, Technology, Exercise and Medicine Research Centre (A-STEM), Swansea University, Bay Campus, Swansea, UK Applied Sports Science, Technology, Exercise and Medicine Research Centre (A-STEM), Swansea University, Bay Campus, Swansea, UK School of Psychology and Public Health, La Trobe University, Bundoora, Victoria, Australia Monash University, School of Primary and Allied Health Care, Frankston, Victoria, Australia Children's Health and Exercise Research Centre, Sport and Health Sciences, University of Exeter, Exeter, UK Children's Health and Exercise Research Centre, Sport and Health Sciences, University of Exeter, Exeter, UK Children's Health and Exercise Research Centre, Sport and Health Sciences, University of Exeter, Exeter, UK Background The benefits of physical activity (PA) for people with cystic fibrosis (pwCF) are widely accepted, yet how PA is promoted and utilised by pwCF is unclear. Method An online questionnaire to explore attitudes, practices and promotion of PA in cystic fibrosis was completed by healthcare providers (HCP), pwCF and parents/caregivers. Results 351 respondents (105 HCP, 120 pwCF, and 126 parents/caregivers) from 12 countries completed the survey. Importance of PA was rated highly by the majority of respondents. Physical (e.g. health), psychological (e.g. enjoyment) and social (e.g. social interaction) factors were motives for PA for 82%, 49% and 37% of pwCF, respectively, irrespective of country. Common barriers to PA included time (49% and 36%) and tiredness (61% and 7%) for pwCF and parents/carers, respectively. pwCF also reported psychosocial barriers (e.g. stigma, demoralisation), while parents/caregivers reported structural barriers (e.g. cost). Clinical teams varied substantially in terms of the emphasis placed on PA, facilities available, staff and training, and advice given to pwCF. Conclusion Despite the majority of participants rating the importance of PA highly, substantial variability was evident regarding the facilities and clinical support available to them, as well as why and how people were active. There remains a need to identify what constitutes “best practice” for PA promotion within clinics.http://openres.ersjournals.com/content/6/3/00294-2019.full |
| spellingShingle | Sarah Denford Narelle S. Cox Kelly A. Mackintosh Melitta A. McNarry Paul O'Halloran Anne E. Holland Owen W. Tomlinson Alan R. Barker Craig A. Williams Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals ERJ Open Research |
| title | Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals |
| title_full | Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals |
| title_fullStr | Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals |
| title_full_unstemmed | Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals |
| title_short | Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals |
| title_sort | physical activity for cystic fibrosis perceptions of people with cystic fibrosis parents and healthcare professionals |
| url | http://openres.ersjournals.com/content/6/3/00294-2019.full |
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