National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey
Abstract Background There is a significant deficiency of national health information for Indigenous peoples in Canada. This manuscript describes the Community Profile Survey (CPS), a community-based, national-level survey designed to identify and describe existing healthcare delivery, funding models...
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| Format: | Article |
| Language: | English |
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BMC
2018-11-01
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| Series: | BMC Health Services Research |
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| Online Access: | http://link.springer.com/article/10.1186/s12913-018-3578-8 |
| _version_ | 1819107959353901056 |
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| author | Jordan W Tompkins Selam Mequanint Douglas Edward Barre Meghan Fournie Michael E Green Anthony J Hanley Mariam Naqshbandi Hayward Merrick Zwarenstein Stewart B Harris On behalf of the FORGE AHEAD Program Team |
| author_facet | Jordan W Tompkins Selam Mequanint Douglas Edward Barre Meghan Fournie Michael E Green Anthony J Hanley Mariam Naqshbandi Hayward Merrick Zwarenstein Stewart B Harris On behalf of the FORGE AHEAD Program Team |
| author_sort | Jordan W Tompkins |
| collection | DOAJ |
| description | Abstract Background There is a significant deficiency of national health information for Indigenous peoples in Canada. This manuscript describes the Community Profile Survey (CPS), a community-based, national-level survey designed to identify and describe existing healthcare delivery, funding models, and diabetes specific infrastructure and programs in Indigenous communities. Methods The CPS was developed collaboratively through FORGE AHEAD and the First Nations and Inuit Health Branch of Health Canada. Regional and federal engagement and partnerships were built with Indigenous organizations to establish regionally-tailored distribution of the 8-page CPS to 440 First Nations communities. Results were collected (one survey per community) and reported in strata by region, with descriptive analyses performed on all variables. Results were shared with participating communities and regional/federal partners through tailored reports. Results A total of 84 communities completed the survey (19% response rate). The majority of communities had a health centre/office to provide service to their patients with diabetes, with limited on-reserve hospitals for ambulatory or case-sensitive conditions. Few healthcare specialists were located on-site, with patients frequently travelling off-site (> 40 km) for diabetes-related complications. The majority of healthcare professionals on-site were Health Directors, Community Health Nurses, and Home Care Nurses. Many communities had a diabetes registry but few reported a diabetes surveillance system. Regional variation in healthcare services, diabetes programs, and funding models were noted, with most communities engaging in some type of innovative strategy to improve care for patients with diabetes. Conclusions The CPS is the first community-based, national-level survey of its kind in Canada. Although the response rate was low, the CPS was distributed and successfully administered across a broad range of First Nations communities, and future considerations would benefit from a governance structure and leadership that strengthens community engagement, and a longitudinal research approach to increase the representativeness of the data. This type of information is important for communities and regions to inform decision making (maintain successes, and identify areas for improvement), strengthen health service delivery and infrastructure, increase accessibility to healthcare personnel, and allocate funding and/or resources to build capacity and foster a proactive chronic disease prevention and management approach for Indigenous communities across Canada. Trial registration Current ClinicalTrial.gov protocol ID NCT02234973. Registered: September 9, 2014. |
| first_indexed | 2024-12-22T03:02:19Z |
| format | Article |
| id | doaj.art-ad862c3d527c405f9fa30ef0b67e2f49 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-12-22T03:02:19Z |
| publishDate | 2018-11-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-ad862c3d527c405f9fa30ef0b67e2f492022-12-21T18:41:09ZengBMCBMC Health Services Research1472-69632018-11-0118111310.1186/s12913-018-3578-8National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile surveyJordan W Tompkins0Selam Mequanint1Douglas Edward Barre2Meghan Fournie3Michael E Green4Anthony J Hanley5Mariam Naqshbandi Hayward6Merrick Zwarenstein7Stewart B Harris8On behalf of the FORGE AHEAD Program TeamCentre for Studies in Family Medicine, Western Centre for Public Health and Family Medicine, Department of Family Medicine, Schulich School of Medicine and Dentistry, Western UniversityCentre for Studies in Family Medicine, Western Centre for Public Health and Family Medicine, Department of Family Medicine, Schulich School of Medicine and Dentistry, Western UniversityDepartment of Health Sciences and Emergency Management, School of Professional Studies, Cape Breton UniversityCentre for Studies in Family Medicine, Western Centre for Public Health and Family Medicine, Department of Family Medicine, Schulich School of Medicine and Dentistry, Western UniversityDepartments of Family Medicine and Public Health Sciences, Queen’s UniversityDepartments of Nutritional Sciences and Medicine and the Dalla Lana School of Public Health, University of TorontoCentre for Studies in Family Medicine, Western Centre for Public Health and Family Medicine, Department of Family Medicine, Schulich School of Medicine and Dentistry, Western UniversityCentre for Studies in Family Medicine, Western Centre for Public Health and Family Medicine, Department of Family Medicine, Schulich School of Medicine and Dentistry, Western UniversityCentre for Studies in Family Medicine, Western Centre for Public Health and Family Medicine, Department of Family Medicine, Schulich School of Medicine and Dentistry, Western UniversityAbstract Background There is a significant deficiency of national health information for Indigenous peoples in Canada. This manuscript describes the Community Profile Survey (CPS), a community-based, national-level survey designed to identify and describe existing healthcare delivery, funding models, and diabetes specific infrastructure and programs in Indigenous communities. Methods The CPS was developed collaboratively through FORGE AHEAD and the First Nations and Inuit Health Branch of Health Canada. Regional and federal engagement and partnerships were built with Indigenous organizations to establish regionally-tailored distribution of the 8-page CPS to 440 First Nations communities. Results were collected (one survey per community) and reported in strata by region, with descriptive analyses performed on all variables. Results were shared with participating communities and regional/federal partners through tailored reports. Results A total of 84 communities completed the survey (19% response rate). The majority of communities had a health centre/office to provide service to their patients with diabetes, with limited on-reserve hospitals for ambulatory or case-sensitive conditions. Few healthcare specialists were located on-site, with patients frequently travelling off-site (> 40 km) for diabetes-related complications. The majority of healthcare professionals on-site were Health Directors, Community Health Nurses, and Home Care Nurses. Many communities had a diabetes registry but few reported a diabetes surveillance system. Regional variation in healthcare services, diabetes programs, and funding models were noted, with most communities engaging in some type of innovative strategy to improve care for patients with diabetes. Conclusions The CPS is the first community-based, national-level survey of its kind in Canada. Although the response rate was low, the CPS was distributed and successfully administered across a broad range of First Nations communities, and future considerations would benefit from a governance structure and leadership that strengthens community engagement, and a longitudinal research approach to increase the representativeness of the data. This type of information is important for communities and regions to inform decision making (maintain successes, and identify areas for improvement), strengthen health service delivery and infrastructure, increase accessibility to healthcare personnel, and allocate funding and/or resources to build capacity and foster a proactive chronic disease prevention and management approach for Indigenous communities across Canada. Trial registration Current ClinicalTrial.gov protocol ID NCT02234973. Registered: September 9, 2014.http://link.springer.com/article/10.1186/s12913-018-3578-8NationalSurveyPrimary healthcareDiabetesIndigenousChronic disease |
| spellingShingle | Jordan W Tompkins Selam Mequanint Douglas Edward Barre Meghan Fournie Michael E Green Anthony J Hanley Mariam Naqshbandi Hayward Merrick Zwarenstein Stewart B Harris On behalf of the FORGE AHEAD Program Team National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey BMC Health Services Research National Survey Primary healthcare Diabetes Indigenous Chronic disease |
| title | National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey |
| title_full | National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey |
| title_fullStr | National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey |
| title_full_unstemmed | National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey |
| title_short | National Survey of Indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey |
| title_sort | national survey of indigenous primary healthcare capacity and delivery models in canada the transformation of indigenous primary healthcare delivery forge ahead community profile survey |
| topic | National Survey Primary healthcare Diabetes Indigenous Chronic disease |
| url | http://link.springer.com/article/10.1186/s12913-018-3578-8 |
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