“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2020-12-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/2374373520967501 |
| _version_ | 1811294878282285056 |
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| author | Allyson S Hughes PhD Jeoffrey Bispham MA Ludi Fan PhD Magaly Nieves-Perez PhD Alicia H McAuliffe-Fogarty PhD |
| author_facet | Allyson S Hughes PhD Jeoffrey Bispham MA Ludi Fan PhD Magaly Nieves-Perez PhD Alicia H McAuliffe-Fogarty PhD |
| author_sort | Allyson S Hughes PhD |
| collection | DOAJ |
| description | Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes. |
| first_indexed | 2024-04-13T05:24:56Z |
| format | Article |
| id | doaj.art-aef33f6bbb0e4048abe9449f8877613a |
| institution | Directory Open Access Journal |
| issn | 2374-3735 2374-3743 |
| language | English |
| last_indexed | 2024-04-13T05:24:56Z |
| publishDate | 2020-12-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Patient Experience |
| spelling | doaj.art-aef33f6bbb0e4048abe9449f8877613a2022-12-22T03:00:38ZengSAGE PublishingJournal of Patient Experience2374-37352374-37432020-12-01710.1177/2374373520967501“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 DiabetesAllyson S Hughes PhD0Jeoffrey Bispham MA1Ludi Fan PhD2Magaly Nieves-Perez PhD3Alicia H McAuliffe-Fogarty PhD4 T1D Exchange, Boston, MA, USA T1D Exchange, Boston, MA, USA Eli Lilly & Co, Indianapolis, IN, USA Eli Lilly & Co, Indianapolis, IN, USA T1D Exchange, Boston, MA, USALimited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes.https://doi.org/10.1177/2374373520967501 |
| spellingShingle | Allyson S Hughes PhD Jeoffrey Bispham MA Ludi Fan PhD Magaly Nieves-Perez PhD Alicia H McAuliffe-Fogarty PhD “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes Journal of Patient Experience |
| title | “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes |
| title_full | “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes |
| title_fullStr | “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes |
| title_full_unstemmed | “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes |
| title_short | “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes |
| title_sort | i live in constant fear of highs the daily impact of type 1 diabetes |
| url | https://doi.org/10.1177/2374373520967501 |
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