Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study

The COVID-19 pandemic has increased challenges for people living with brain injury and community associations to support this vulnerable population. This study aimed to gain an in-depth understanding of the challenges faced by brain injury survivors during the first year of the pandemic and how comm...

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Main Authors: Ana Paula Salazar PhD, Sophie Lecours PhD, Lisa Engel PhD, Monique A. M. Gignac PhD, Shlomit Rotenberg PhD, Sareh Zarshenas PhD, Michelle McDonald BA, Carolina Bottari PhD
Format: Article
Language:English
Published: SAGE Publishing 2023-11-01
Series:Inquiry: The Journal of Health Care Organization, Provision, and Financing
Online Access:https://doi.org/10.1177/00469580231209161
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author Ana Paula Salazar PhD
Sophie Lecours PhD
Lisa Engel PhD
Monique A. M. Gignac PhD
Shlomit Rotenberg PhD
Sareh Zarshenas PhD
Michelle McDonald BA
Carolina Bottari PhD
author_facet Ana Paula Salazar PhD
Sophie Lecours PhD
Lisa Engel PhD
Monique A. M. Gignac PhD
Shlomit Rotenberg PhD
Sareh Zarshenas PhD
Michelle McDonald BA
Carolina Bottari PhD
author_sort Ana Paula Salazar PhD
collection DOAJ
description The COVID-19 pandemic has increased challenges for people living with brain injury and community associations to support this vulnerable population. This study aimed to gain an in-depth understanding of the challenges faced by brain injury survivors during the first year of the pandemic and how community brain injury associations adapted their services to respond to these needs. Findings from seven focus-group with 31 representatives of Canadian brain injury associations revealed 4 main themes: (1) Addressing evolving client needs; (2) Keeping clients safe; (3) Challenges and opportunities navigating the digital world; and (4) Sustaining brain injury associations in the face of uncertainties and disruptions. To comply with public health measures, associations reported pivoting their service delivery online, despite recognizing the difficulties this could create for many brain injury survivors in accessing and using technology. Our findings also highlight concrete directions for not-profit organizations providing instrumental help with activities, acting as a liaison and interpreter of public health guidelines, and in connecting with clients using technology while handling potential cognitive and technological challenges. Addressing these issues has the potential to protect people living with brain injury and community associations from external threats, like pandemics, in the future.
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spelling doaj.art-af60918f1a2344c4a9918d9cd4faa5542023-11-16T16:04:22ZengSAGE PublishingInquiry: The Journal of Health Care Organization, Provision, and Financing0046-95801945-72432023-11-016010.1177/00469580231209161Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative StudyAna Paula Salazar PhD0Sophie Lecours PhD1Lisa Engel PhD2Monique A. M. Gignac PhD3Shlomit Rotenberg PhD4Sareh Zarshenas PhD5Michelle McDonald BA6Carolina Bottari PhD7Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal, Institut universitaire sur la réadaptation en déficience physique de Montréal du CIUSSS du Centre-Sud-de-l’Île-de-Montréal, Montréal, QC, CanadaCentre for Interdisciplinary Research in Rehabilitation of Greater Montreal, Institut universitaire sur la réadaptation en déficience physique de Montréal du CIUSSS du Centre-Sud-de-l’Île-de-Montréal, Montréal, QC, CanadaInstitute for Work & Health, Toronto, ON, CanadaDalla Lana School of Public Health, University of Toronto, Toronto, ON, CanadaDalla Lana School of Public Health, University of Toronto, Toronto, ON, CanadaDalla Lana School of Public Health, University of Toronto, Toronto, ON, CanadaBrain Injury Canada, Ottawa, ON, CanadaCentre for Interdisciplinary Research in Rehabilitation of Greater Montreal, Institut universitaire sur la réadaptation en déficience physique de Montréal du CIUSSS du Centre-Sud-de-l’Île-de-Montréal, Montréal, QC, CanadaThe COVID-19 pandemic has increased challenges for people living with brain injury and community associations to support this vulnerable population. This study aimed to gain an in-depth understanding of the challenges faced by brain injury survivors during the first year of the pandemic and how community brain injury associations adapted their services to respond to these needs. Findings from seven focus-group with 31 representatives of Canadian brain injury associations revealed 4 main themes: (1) Addressing evolving client needs; (2) Keeping clients safe; (3) Challenges and opportunities navigating the digital world; and (4) Sustaining brain injury associations in the face of uncertainties and disruptions. To comply with public health measures, associations reported pivoting their service delivery online, despite recognizing the difficulties this could create for many brain injury survivors in accessing and using technology. Our findings also highlight concrete directions for not-profit organizations providing instrumental help with activities, acting as a liaison and interpreter of public health guidelines, and in connecting with clients using technology while handling potential cognitive and technological challenges. Addressing these issues has the potential to protect people living with brain injury and community associations from external threats, like pandemics, in the future.https://doi.org/10.1177/00469580231209161
spellingShingle Ana Paula Salazar PhD
Sophie Lecours PhD
Lisa Engel PhD
Monique A. M. Gignac PhD
Shlomit Rotenberg PhD
Sareh Zarshenas PhD
Michelle McDonald BA
Carolina Bottari PhD
Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study
Inquiry: The Journal of Health Care Organization, Provision, and Financing
title Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study
title_full Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study
title_fullStr Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study
title_full_unstemmed Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study
title_short Understanding the Early Impacts of the COVID-19 Pandemic on Brain Injury Associations Across Canada: A Qualitative Study
title_sort understanding the early impacts of the covid 19 pandemic on brain injury associations across canada a qualitative study
url https://doi.org/10.1177/00469580231209161
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