Assent and consent in pediatric and adolescent research: school children’s perspectives
Nihaya A Al-Sheyab,1 Mahmoud A Alomari,2,3 Omar F Khabour,4 Khulood K Shattnawi,1 Karem H Alzoubi5 1Faculty of Nursing, Maternal and Child Health Department, Jordan University of Science and Technology, Irbid, 22110, Jordan; 2Division of Physical Therapy, Department of Rehabilitation Sciences, Jorda...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Dove Medical Press
2019-02-01
|
| Series: | Adolescent Health, Medicine and Therapeutics |
| Subjects: | |
| Online Access: | https://www.dovepress.com/assent-and-consent-in-pediatric-and-adolescent-research-school-childre-peer-reviewed-article-AHMT |
| _version_ | 1831683747911565312 |
|---|---|
| author | Al-Sheyab NA Alomari MA Khabour OF Shattnawi KK Alzoubi KH |
| author_facet | Al-Sheyab NA Alomari MA Khabour OF Shattnawi KK Alzoubi KH |
| author_sort | Al-Sheyab NA |
| collection | DOAJ |
| description | Nihaya A Al-Sheyab,1 Mahmoud A Alomari,2,3 Omar F Khabour,4 Khulood K Shattnawi,1 Karem H Alzoubi5 1Faculty of Nursing, Maternal and Child Health Department, Jordan University of Science and Technology, Irbid, 22110, Jordan; 2Division of Physical Therapy, Department of Rehabilitation Sciences, Jordan University of Science and Technology, Irbid, 22110, Jordan; 3Department of Physical Education, Qatar University, Doha 2713, Qatar; 4Department of Medical Laboratory Sciences, Jordan University of Science and Technology, Irbid, 22110, Jordan; 5Department of Clinical Pharmacy, Jordan University of Science and Technology. Irbid, 22110, Jordan Background: School students’ views and perceptions of informed parental consent and child assent about child participation in research in the Middle East are not known. Methods: Focus group interviews were conducted to understand high school students’ perspectives toward child and adolescent assents and consents in research including the importance of, and depth of information needed in consent and assent, and perception toward written vs verbal consent and assent. Results: The majority of students agreed that it is necessary to take parental approval and that they would not participate in research if their parents refused. Furthermore, the majority of male students agreed that if the research requires only questionnaires to be completed, then child’s approval is sufficient whereas measures, such as blood sugar screening required approval from both the parent and child. Females believed it is enough to provide parental consent to participate in research unless information provided is adequate, then child approval is enough. All students stressed the importance of including detailed information; however, parental consent needs to have more detailed information than child assent. Conclusion: Parts of the students’ perceptions were congruent, whereas other views were not congruent with proper conduct of pediatric research. Such a situation warrants further research and actions. Keywords: informed consent, adolescent, child, Jordan, Middle East |
| first_indexed | 2024-12-20T06:43:25Z |
| format | Article |
| id | doaj.art-b02b6e1dcb704459b05e952f1e1ce668 |
| institution | Directory Open Access Journal |
| issn | 1179-318X |
| language | English |
| last_indexed | 2024-12-20T06:43:25Z |
| publishDate | 2019-02-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Adolescent Health, Medicine and Therapeutics |
| spelling | doaj.art-b02b6e1dcb704459b05e952f1e1ce6682022-12-21T19:49:48ZengDove Medical PressAdolescent Health, Medicine and Therapeutics1179-318X2019-02-01Volume 1071444012Assent and consent in pediatric and adolescent research: school children’s perspectivesAl-Sheyab NAAlomari MAKhabour OFShattnawi KKAlzoubi KHNihaya A Al-Sheyab,1 Mahmoud A Alomari,2,3 Omar F Khabour,4 Khulood K Shattnawi,1 Karem H Alzoubi5 1Faculty of Nursing, Maternal and Child Health Department, Jordan University of Science and Technology, Irbid, 22110, Jordan; 2Division of Physical Therapy, Department of Rehabilitation Sciences, Jordan University of Science and Technology, Irbid, 22110, Jordan; 3Department of Physical Education, Qatar University, Doha 2713, Qatar; 4Department of Medical Laboratory Sciences, Jordan University of Science and Technology, Irbid, 22110, Jordan; 5Department of Clinical Pharmacy, Jordan University of Science and Technology. Irbid, 22110, Jordan Background: School students’ views and perceptions of informed parental consent and child assent about child participation in research in the Middle East are not known. Methods: Focus group interviews were conducted to understand high school students’ perspectives toward child and adolescent assents and consents in research including the importance of, and depth of information needed in consent and assent, and perception toward written vs verbal consent and assent. Results: The majority of students agreed that it is necessary to take parental approval and that they would not participate in research if their parents refused. Furthermore, the majority of male students agreed that if the research requires only questionnaires to be completed, then child’s approval is sufficient whereas measures, such as blood sugar screening required approval from both the parent and child. Females believed it is enough to provide parental consent to participate in research unless information provided is adequate, then child approval is enough. All students stressed the importance of including detailed information; however, parental consent needs to have more detailed information than child assent. Conclusion: Parts of the students’ perceptions were congruent, whereas other views were not congruent with proper conduct of pediatric research. Such a situation warrants further research and actions. Keywords: informed consent, adolescent, child, Jordan, Middle Easthttps://www.dovepress.com/assent-and-consent-in-pediatric-and-adolescent-research-school-childre-peer-reviewed-article-AHMTAssentConsentAdolescentChildJordanMiddle East. |
| spellingShingle | Al-Sheyab NA Alomari MA Khabour OF Shattnawi KK Alzoubi KH Assent and consent in pediatric and adolescent research: school children’s perspectives Adolescent Health, Medicine and Therapeutics Assent Consent Adolescent Child Jordan Middle East. |
| title | Assent and consent in pediatric and adolescent research: school children’s perspectives |
| title_full | Assent and consent in pediatric and adolescent research: school children’s perspectives |
| title_fullStr | Assent and consent in pediatric and adolescent research: school children’s perspectives |
| title_full_unstemmed | Assent and consent in pediatric and adolescent research: school children’s perspectives |
| title_short | Assent and consent in pediatric and adolescent research: school children’s perspectives |
| title_sort | assent and consent in pediatric and adolescent research school children rsquo s perspectives |
| topic | Assent Consent Adolescent Child Jordan Middle East. |
| url | https://www.dovepress.com/assent-and-consent-in-pediatric-and-adolescent-research-school-childre-peer-reviewed-article-AHMT |
| work_keys_str_mv | AT alsheyabna assentandconsentinpediatricandadolescentresearchschoolchildrenrsquosperspectives AT alomarima assentandconsentinpediatricandadolescentresearchschoolchildrenrsquosperspectives AT khabourof assentandconsentinpediatricandadolescentresearchschoolchildrenrsquosperspectives AT shattnawikk assentandconsentinpediatricandadolescentresearchschoolchildrenrsquosperspectives AT alzoubikh assentandconsentinpediatricandadolescentresearchschoolchildrenrsquosperspectives |