The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries

Genetic counseling services have only recently been introduced in most Arab countries, and their utilization is increasing. Prenatal genetic counseling is essential, particularly in the Arab context, which is characterized by high rates of consanguinity. Nevertheless, little is known about the decis...

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Main Authors: Shaza D. Malik, Mashael Al-Shafai, Atiyeh M. Abdallah
Format: Article
Language:English
Published: MDPI AG 2022-01-01
Series:Genes
Subjects:
Online Access:https://www.mdpi.com/2073-4425/13/2/167
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author Shaza D. Malik
Mashael Al-Shafai
Atiyeh M. Abdallah
author_facet Shaza D. Malik
Mashael Al-Shafai
Atiyeh M. Abdallah
author_sort Shaza D. Malik
collection DOAJ
description Genetic counseling services have only recently been introduced in most Arab countries, and their utilization is increasing. Prenatal genetic counseling is essential, particularly in the Arab context, which is characterized by high rates of consanguinity. Nevertheless, little is known about the decisions faced by parents and the factors underlying the complex decision making that must occur when accessing these services in Arab countries. Herein, we performed a narrative review to discuss the reported experiences of parents accessing genetic counseling in the prenatal setting in the 22 Arab countries. We also highlight the different types of decisions encountered and the factors influencing them. We report that: (i) utilization of genetic counseling services varies across different Arab countries; (ii) many factors affect decision making and service utilization, especially religion; and (iii) parents are faced with an array of decisions in the prenatal setting, partly driven by increased utilization of prenatal diagnosis and preimplantation genetic testing in some countries. Our work is the first to highlight the different factors and decisions influencing genetic counseling in Arab countries. Understanding these factors is essential for improving genetic counseling services in the region and helping counselors facilitate informed decision making.
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spelling doaj.art-b1a9974d55e64df681288a8ce303b9162023-11-23T20:02:33ZengMDPI AGGenes2073-44252022-01-0113216710.3390/genes13020167The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab CountriesShaza D. Malik0Mashael Al-Shafai1Atiyeh M. Abdallah2Department of Biomedical Sciences, College of Health Sciences, QU Health, Qatar University, Doha 2713, QatarDepartment of Biomedical Sciences, College of Health Sciences, QU Health, Qatar University, Doha 2713, QatarDepartment of Biomedical Sciences, College of Health Sciences, QU Health, Qatar University, Doha 2713, QatarGenetic counseling services have only recently been introduced in most Arab countries, and their utilization is increasing. Prenatal genetic counseling is essential, particularly in the Arab context, which is characterized by high rates of consanguinity. Nevertheless, little is known about the decisions faced by parents and the factors underlying the complex decision making that must occur when accessing these services in Arab countries. Herein, we performed a narrative review to discuss the reported experiences of parents accessing genetic counseling in the prenatal setting in the 22 Arab countries. We also highlight the different types of decisions encountered and the factors influencing them. We report that: (i) utilization of genetic counseling services varies across different Arab countries; (ii) many factors affect decision making and service utilization, especially religion; and (iii) parents are faced with an array of decisions in the prenatal setting, partly driven by increased utilization of prenatal diagnosis and preimplantation genetic testing in some countries. Our work is the first to highlight the different factors and decisions influencing genetic counseling in Arab countries. Understanding these factors is essential for improving genetic counseling services in the region and helping counselors facilitate informed decision making.https://www.mdpi.com/2073-4425/13/2/167prenatal diagnosisArabconsanguinitygenetic counselingpreimplantation genetic diagnosis
spellingShingle Shaza D. Malik
Mashael Al-Shafai
Atiyeh M. Abdallah
The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
Genes
prenatal diagnosis
Arab
consanguinity
genetic counseling
preimplantation genetic diagnosis
title The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
title_full The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
title_fullStr The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
title_full_unstemmed The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
title_short The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
title_sort special features of prenatal and preimplantation genetic counseling in arab countries
topic prenatal diagnosis
Arab
consanguinity
genetic counseling
preimplantation genetic diagnosis
url https://www.mdpi.com/2073-4425/13/2/167
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