La famille face à l’enfant gravement malade : le point de vue du psychologue.

When children become seriously ill, the profound and painful effects are not limited to the sick children; they also extend to the families. These families find themselves thrust into acute emotional crises triggered by the threat of losing a child and by the child’s, and the rest of the family’s qu...

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Main Authors: Claire Van Pevenage, Isabelle Lambotte
Format: Article
Language:English
Published: Centre Urbanisation Culture Société (UCS) de l'INRS 2016-08-01
Series:Enfances, Familles, Générations
Subjects:
Online Access:http://journals.openedition.org/efg/965
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author Claire Van Pevenage
Isabelle Lambotte
author_facet Claire Van Pevenage
Isabelle Lambotte
author_sort Claire Van Pevenage
collection DOAJ
description When children become seriously ill, the profound and painful effects are not limited to the sick children; they also extend to the families. These families find themselves thrust into acute emotional crises triggered by the threat of losing a child and by the child’s, and the rest of the family’s questioning of their sense of immortality. This situation results in various experiences and feelings (a search for meaning, sense of failure, anxiety, aggression, feelings of powerlessness and guilt, etc.) that inevitably have an impact on the children, their families, and their relationships with caregivers. Our experience of over 15 years in acute-care pediatrics has shown us that while a child’s capacity to face serious illness varies according to personal factors (personality, age, temperament), it also depends on parental and familial factors such as adaptability, communication, cohesion, and development. Based on transcriptions of several families’ stories, we examine a number of parental and familial reactions to seriously ill children, focusing in particular on certain complex situations (malformed infant, child of separated parents, parental needs of children in palliative care) and on approaches to providing support. We conclude by briefly broaching the subject of grief and follow-up care.
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spelling doaj.art-b1bb2b3787564c0e9ccb1c0a222bc3252022-12-21T17:43:32ZengCentre Urbanisation Culture Société (UCS) de l'INRSEnfances, Familles, Générations1708-63102016-08-0124La famille face à l’enfant gravement malade : le point de vue du psychologue.Claire Van PevenageIsabelle LambotteWhen children become seriously ill, the profound and painful effects are not limited to the sick children; they also extend to the families. These families find themselves thrust into acute emotional crises triggered by the threat of losing a child and by the child’s, and the rest of the family’s questioning of their sense of immortality. This situation results in various experiences and feelings (a search for meaning, sense of failure, anxiety, aggression, feelings of powerlessness and guilt, etc.) that inevitably have an impact on the children, their families, and their relationships with caregivers. Our experience of over 15 years in acute-care pediatrics has shown us that while a child’s capacity to face serious illness varies according to personal factors (personality, age, temperament), it also depends on parental and familial factors such as adaptability, communication, cohesion, and development. Based on transcriptions of several families’ stories, we examine a number of parental and familial reactions to seriously ill children, focusing in particular on certain complex situations (malformed infant, child of separated parents, parental needs of children in palliative care) and on approaches to providing support. We conclude by briefly broaching the subject of grief and follow-up care.http://journals.openedition.org/efg/965psychologypediatricssicknesschildfamilyemotional support
spellingShingle Claire Van Pevenage
Isabelle Lambotte
La famille face à l’enfant gravement malade : le point de vue du psychologue.
Enfances, Familles, Générations
psychology
pediatrics
sickness
child
family
emotional support
title La famille face à l’enfant gravement malade : le point de vue du psychologue.
title_full La famille face à l’enfant gravement malade : le point de vue du psychologue.
title_fullStr La famille face à l’enfant gravement malade : le point de vue du psychologue.
title_full_unstemmed La famille face à l’enfant gravement malade : le point de vue du psychologue.
title_short La famille face à l’enfant gravement malade : le point de vue du psychologue.
title_sort la famille face a l enfant gravement malade le point de vue du psychologue
topic psychology
pediatrics
sickness
child
family
emotional support
url http://journals.openedition.org/efg/965
work_keys_str_mv AT clairevanpevenage lafamillefacealenfantgravementmaladelepointdevuedupsychologue
AT isabellelambotte lafamillefacealenfantgravementmaladelepointdevuedupsychologue