Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review

Objectives To identify caregiver and children factors associated with caregiver burden on primary caregivers of children with cerebral palsy (CP).Design Systematic reviewData sources Seven electronic databases, including PubMed, Cochrane Library, Scopus, PsycINFO, Web of Science, CINAHL and Embase,...

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Main Authors: Fang Liu, Qiao Shen, Miao Huang, Hengyu Zhou
Format: Article
Language:English
Published: BMJ Publishing Group 2023-04-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/4/e065215.full
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author Fang Liu
Qiao Shen
Miao Huang
Hengyu Zhou
author_facet Fang Liu
Qiao Shen
Miao Huang
Hengyu Zhou
author_sort Fang Liu
collection DOAJ
description Objectives To identify caregiver and children factors associated with caregiver burden on primary caregivers of children with cerebral palsy (CP).Design Systematic reviewData sources Seven electronic databases, including PubMed, Cochrane Library, Scopus, PsycINFO, Web of Science, CINAHL and Embase, were systematically searched up to 1 February 2023.Eligibility criteria Original observational studies reporting caregiver burden and related factors among caregivers of children with CP.Data abstraction and synthesis Two reviewers independently screened results and assessed the quality of studies. Title, abstract, full-text screening and data abstraction were done independently by two reviewers. Risk of bias was assessed using the JBI Critical Appraisal Checklist for Analytical Cross-Sectional Studies. The quality of evidence for factors was rated using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach.Results 16 articles were included in the review. All studies were cross-sectional and examined caregiver-reported burden measures. The Zarit Burden Interview was the most commonly used questionnaire. Depression of caregiver and severity of illness in children with CP were moderate quality of evidence for factors contributing to caregiver burden.Conclusions Higher caregiver burden is associated with more depressive feelings and worse life quality of the caregiver, and with more severe physical disability of the children. Future studies should focus on high-quality longitudinal research and appropriate assistance to reduce caregiver burden and improve the quality of caregiving for children with CP.PROSPERO registration number CRD42021268284.
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spelling doaj.art-b20cd4f3700a4f9e838589fda69c4a2c2023-04-04T03:00:06ZengBMJ Publishing GroupBMJ Open2044-60552023-04-0113410.1136/bmjopen-2022-065215Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic reviewFang Liu0Qiao Shen1Miao Huang2Hengyu Zhou312 Cardiovascular Center, Children`s Hospital of Fudan University, National Children`s Medical Center, Shanghai, ChinaDepartment of Nursing, Children`s Hospital of Chongqing Medical University, Chongqing, ChinaNursing School, Chongqing Medical University, Chongqing, Chongqing, ChinaNursing School, Chongqing Medical University, Chongqing, Chongqing, ChinaObjectives To identify caregiver and children factors associated with caregiver burden on primary caregivers of children with cerebral palsy (CP).Design Systematic reviewData sources Seven electronic databases, including PubMed, Cochrane Library, Scopus, PsycINFO, Web of Science, CINAHL and Embase, were systematically searched up to 1 February 2023.Eligibility criteria Original observational studies reporting caregiver burden and related factors among caregivers of children with CP.Data abstraction and synthesis Two reviewers independently screened results and assessed the quality of studies. Title, abstract, full-text screening and data abstraction were done independently by two reviewers. Risk of bias was assessed using the JBI Critical Appraisal Checklist for Analytical Cross-Sectional Studies. The quality of evidence for factors was rated using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach.Results 16 articles were included in the review. All studies were cross-sectional and examined caregiver-reported burden measures. The Zarit Burden Interview was the most commonly used questionnaire. Depression of caregiver and severity of illness in children with CP were moderate quality of evidence for factors contributing to caregiver burden.Conclusions Higher caregiver burden is associated with more depressive feelings and worse life quality of the caregiver, and with more severe physical disability of the children. Future studies should focus on high-quality longitudinal research and appropriate assistance to reduce caregiver burden and improve the quality of caregiving for children with CP.PROSPERO registration number CRD42021268284.https://bmjopen.bmj.com/content/13/4/e065215.full
spellingShingle Fang Liu
Qiao Shen
Miao Huang
Hengyu Zhou
Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review
BMJ Open
title Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review
title_full Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review
title_fullStr Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review
title_full_unstemmed Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review
title_short Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review
title_sort factors associated with caregiver burden among family caregivers of children with cerebral palsy a systematic review
url https://bmjopen.bmj.com/content/13/4/e065215.full
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