Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls
Abstract Background People affected by leprosy are at increased risk of ulcers from peripheral nerve damage. This in turn can lead to visible impairments, stigmatisation and economic marginalisation. Health care providers suggest that patients should be empowered to self-manage their condition to im...
| Main Authors: | , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2021-05-01
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| Series: | BMC Public Health |
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| Online Access: | https://doi.org/10.1186/s12889-021-10847-0 |
| _version_ | 1818938168475385856 |
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| author | Dilip Shrestha Indra B. Napit Subi Ansari Sopna Mannan Choudhury Bishnu Dhungana Paramjit Gill Frances Griffiths Holly Gwyther Deanna Hagge Shovakhar Kandel Suraj Puri Jo Sartori Samuel Ian Watson Richard Lilford |
| author_facet | Dilip Shrestha Indra B. Napit Subi Ansari Sopna Mannan Choudhury Bishnu Dhungana Paramjit Gill Frances Griffiths Holly Gwyther Deanna Hagge Shovakhar Kandel Suraj Puri Jo Sartori Samuel Ian Watson Richard Lilford |
| author_sort | Dilip Shrestha |
| collection | DOAJ |
| description | Abstract Background People affected by leprosy are at increased risk of ulcers from peripheral nerve damage. This in turn can lead to visible impairments, stigmatisation and economic marginalisation. Health care providers suggest that patients should be empowered to self-manage their condition to improve outcomes and reduce reliance on services. Self-care involves carrying out personal care tasks with the aim of preventing disabilities or preventing further deterioration. Self-help, on the other hand, addresses the wider psychological, social and economic implications of leprosy and incorporates, for example, skills training and microfinance schemes. The aim of this study, known as SHERPA (Self-Help Evaluation for lepRosy and other conditions in NePAl) is to evaluate a service intervention called Integrated Mobilization of People for Active Community Transformation (IMPACT) designed to encourage both self-care and self-help in marginalised people including those affected by leprosy. Methods A mixed-method evaluation study in Province 5, Nepal comprising two parts. First, a prospective, cluster-based, non-randomised controlled study to evaluate the effectiveness of self-help groups on ulcer metrics (people affected by leprosy only) and on four generic outcome measures (all participants) - generic health status, wellbeing, social integration and household economic performance. Second, a qualitative study to examine the implementation and fidelity of the intervention. Impact This research will provide information on the effectiveness of combined self-help and self-care groups, on quality of life, social integration and economic wellbeing for people living with leprosy, disability or who are socially and economically marginalised in low- and middle- income countries. |
| first_indexed | 2024-12-20T06:03:34Z |
| format | Article |
| id | doaj.art-b2472d5d9b724207b27b303155b4e003 |
| institution | Directory Open Access Journal |
| issn | 1471-2458 |
| language | English |
| last_indexed | 2024-12-20T06:03:34Z |
| publishDate | 2021-05-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Public Health |
| spelling | doaj.art-b2472d5d9b724207b27b303155b4e0032022-12-21T19:50:51ZengBMCBMC Public Health1471-24582021-05-0121111310.1186/s12889-021-10847-0Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controlsDilip Shrestha0Indra B. Napit1Subi Ansari2Sopna Mannan Choudhury3Bishnu Dhungana4Paramjit Gill5Frances Griffiths6Holly Gwyther7Deanna Hagge8Shovakhar Kandel9Suraj Puri10Jo Sartori11Samuel Ian Watson12Richard Lilford13Anandaban Hospital, The Leprosy Mission Nepal, Tika BhairavAnandaban Hospital, The Leprosy Mission Nepal, Tika BhairavAnandaban Hospital, The Leprosy Mission Nepal, Tika BhairavInstitute of Applied Health Research, College of Medical and Dental Sciences, University of BirminghamAnandaban Hospital, The Leprosy Mission Nepal, Tika BhairavWarwick Centre for Applied Health Research & Delivery (W-CAHRD), Warwick Medical School, University of WarwickWarwick Centre for Applied Health Research & Delivery (W-CAHRD), Warwick Medical School, University of WarwickInstitute of Applied Health Research, College of Medical and Dental Sciences, University of BirminghamAnandaban Hospital, The Leprosy Mission Nepal, Tika BhairavAnandaban Hospital, The Leprosy Mission Nepal, Tika BhairavAnandaban Hospital, The Leprosy Mission Nepal, Tika BhairavInstitute of Applied Health Research, College of Medical and Dental Sciences, University of BirminghamInstitute of Applied Health Research, College of Medical and Dental Sciences, University of BirminghamInstitute of Applied Health Research, College of Medical and Dental Sciences, University of BirminghamAbstract Background People affected by leprosy are at increased risk of ulcers from peripheral nerve damage. This in turn can lead to visible impairments, stigmatisation and economic marginalisation. Health care providers suggest that patients should be empowered to self-manage their condition to improve outcomes and reduce reliance on services. Self-care involves carrying out personal care tasks with the aim of preventing disabilities or preventing further deterioration. Self-help, on the other hand, addresses the wider psychological, social and economic implications of leprosy and incorporates, for example, skills training and microfinance schemes. The aim of this study, known as SHERPA (Self-Help Evaluation for lepRosy and other conditions in NePAl) is to evaluate a service intervention called Integrated Mobilization of People for Active Community Transformation (IMPACT) designed to encourage both self-care and self-help in marginalised people including those affected by leprosy. Methods A mixed-method evaluation study in Province 5, Nepal comprising two parts. First, a prospective, cluster-based, non-randomised controlled study to evaluate the effectiveness of self-help groups on ulcer metrics (people affected by leprosy only) and on four generic outcome measures (all participants) - generic health status, wellbeing, social integration and household economic performance. Second, a qualitative study to examine the implementation and fidelity of the intervention. Impact This research will provide information on the effectiveness of combined self-help and self-care groups, on quality of life, social integration and economic wellbeing for people living with leprosy, disability or who are socially and economically marginalised in low- and middle- income countries.https://doi.org/10.1186/s12889-021-10847-0LeprosyUlcersDisabilityLow and middle-income countriesSelf-careSelf-help groups |
| spellingShingle | Dilip Shrestha Indra B. Napit Subi Ansari Sopna Mannan Choudhury Bishnu Dhungana Paramjit Gill Frances Griffiths Holly Gwyther Deanna Hagge Shovakhar Kandel Suraj Puri Jo Sartori Samuel Ian Watson Richard Lilford Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls BMC Public Health Leprosy Ulcers Disability Low and middle-income countries Self-care Self-help groups |
| title | Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls |
| title_full | Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls |
| title_fullStr | Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls |
| title_full_unstemmed | Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls |
| title_short | Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls |
| title_sort | evaluation of a self help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in nepal a prospective observational cluster based cohort study with controls |
| topic | Leprosy Ulcers Disability Low and middle-income countries Self-care Self-help groups |
| url | https://doi.org/10.1186/s12889-021-10847-0 |
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