Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study
Background/Aims: To examine factors influencing the caregiver burden in adult-child and spousal caregivers of community-dwelling patients with Alzheimer's disease (AD). Methods: Baseline data from the 18-month, prospective, observational GERAS study of 1,497 patients with AD in France, Germany,...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Karger Publishers
2014-02-01
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| Series: | Dementia and Geriatric Cognitive Disorders Extra |
| Subjects: | |
| Online Access: | http://www.karger.com/Article/FullText/358234 |
| _version_ | 1818058197397667840 |
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| author | Catherine Reed Mark Belger Grazia Dell'Agnello Anders Wimo Josep Maria Argimon Giuseppe Bruno Richard Dodel Josep Maria Haro Roy W. Jones Bruno Vellas |
| author_facet | Catherine Reed Mark Belger Grazia Dell'Agnello Anders Wimo Josep Maria Argimon Giuseppe Bruno Richard Dodel Josep Maria Haro Roy W. Jones Bruno Vellas |
| author_sort | Catherine Reed |
| collection | DOAJ |
| description | Background/Aims: To examine factors influencing the caregiver burden in adult-child and spousal caregivers of community-dwelling patients with Alzheimer's disease (AD). Methods: Baseline data from the 18-month, prospective, observational GERAS study of 1,497 patients with AD in France, Germany, and the UK were used. Analyses were performed on two groups of caregivers: spouses (n = 985) and adult children (n = 405). General linear models estimated patient and caregiver factors associated with subjective caregiver burden assessed using the Zarit Burden Interview. Results: The caregiver burden increased with AD severity. Adult-child caregivers experienced a higher burden than spousal caregivers despite spending less time caring. Worse patient functional ability and more caregiver distress were independently associated with a greater burden in both adult-child and spousal caregivers. Additional factors were differentially associated with a greater caregiver burden in both groups. In adult-child caregivers these were: living with the patient, patient living in an urban location, and patient with a fall in the past 3 months; in spouses the factors were: caregiver gender (female) and age (younger), and more years of patient education. Conclusion: The perceived burden differed between adult-child and spousal caregivers, and specific patient and caregiver factors were differentially associated with this burden. |
| first_indexed | 2024-12-10T12:56:48Z |
| format | Article |
| id | doaj.art-b2650809df6d492591a3fd6f144fd9a2 |
| institution | Directory Open Access Journal |
| issn | 1664-5464 |
| language | English |
| last_indexed | 2024-12-10T12:56:48Z |
| publishDate | 2014-02-01 |
| publisher | Karger Publishers |
| record_format | Article |
| series | Dementia and Geriatric Cognitive Disorders Extra |
| spelling | doaj.art-b2650809df6d492591a3fd6f144fd9a22022-12-22T01:48:04ZengKarger PublishersDementia and Geriatric Cognitive Disorders Extra1664-54642014-02-0141516410.1159/000358234358234Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational StudyCatherine ReedMark BelgerGrazia Dell'AgnelloAnders WimoJosep Maria ArgimonGiuseppe BrunoRichard DodelJosep Maria HaroRoy W. JonesBruno VellasBackground/Aims: To examine factors influencing the caregiver burden in adult-child and spousal caregivers of community-dwelling patients with Alzheimer's disease (AD). Methods: Baseline data from the 18-month, prospective, observational GERAS study of 1,497 patients with AD in France, Germany, and the UK were used. Analyses were performed on two groups of caregivers: spouses (n = 985) and adult children (n = 405). General linear models estimated patient and caregiver factors associated with subjective caregiver burden assessed using the Zarit Burden Interview. Results: The caregiver burden increased with AD severity. Adult-child caregivers experienced a higher burden than spousal caregivers despite spending less time caring. Worse patient functional ability and more caregiver distress were independently associated with a greater burden in both adult-child and spousal caregivers. Additional factors were differentially associated with a greater caregiver burden in both groups. In adult-child caregivers these were: living with the patient, patient living in an urban location, and patient with a fall in the past 3 months; in spouses the factors were: caregiver gender (female) and age (younger), and more years of patient education. Conclusion: The perceived burden differed between adult-child and spousal caregivers, and specific patient and caregiver factors were differentially associated with this burden.http://www.karger.com/Article/FullText/358234Adult-child caregiverAlzheimer’s diseaseEuropeObservational studySpousal caregiver |
| spellingShingle | Catherine Reed Mark Belger Grazia Dell'Agnello Anders Wimo Josep Maria Argimon Giuseppe Bruno Richard Dodel Josep Maria Haro Roy W. Jones Bruno Vellas Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study Dementia and Geriatric Cognitive Disorders Extra Adult-child caregiver Alzheimer’s disease Europe Observational study Spousal caregiver |
| title | Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study |
| title_full | Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study |
| title_fullStr | Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study |
| title_full_unstemmed | Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study |
| title_short | Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study |
| title_sort | caregiver burden in alzheimer s disease differential associations in adult child and spousal caregivers in the geras observational study |
| topic | Adult-child caregiver Alzheimer’s disease Europe Observational study Spousal caregiver |
| url | http://www.karger.com/Article/FullText/358234 |
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