Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach

Abstract Background Timely but accurate data collection is needed during health emergencies to inform public health responses. Often, an abundance of data is collected but not used. When outbreaks and other health events occur in remote and complex settings, operatives on the ground are often requir...

Full description

Bibliographic Details
Main Authors: Anne Perrocheau, Hannah Brindle, Chrissy Roberts, Srinivas Murthy, Sharmila Shetty, Antonio Isidro Carrion Martin, Michael Marks, Karl Schenkel, the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”
Format: Article
Language:English
Published: BMC 2021-12-01
Series:BMC Public Health
Subjects:
Online Access:https://doi.org/10.1186/s12889-021-12206-5
_version_ 1798026592617758720
author Anne Perrocheau
Hannah Brindle
Chrissy Roberts
Srinivas Murthy
Sharmila Shetty
Antonio Isidro Carrion Martin
Michael Marks
Karl Schenkel
the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”
author_facet Anne Perrocheau
Hannah Brindle
Chrissy Roberts
Srinivas Murthy
Sharmila Shetty
Antonio Isidro Carrion Martin
Michael Marks
Karl Schenkel
the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”
author_sort Anne Perrocheau
collection DOAJ
description Abstract Background Timely but accurate data collection is needed during health emergencies to inform public health responses. Often, an abundance of data is collected but not used. When outbreaks and other health events occur in remote and complex settings, operatives on the ground are often required to cover multiple tasks whilst working with limited resources. Tools that facilitate the collection of essential data during the early investigations of a potential public health event can support effective public health decision-making. We proposed to define the minimum set of quantitative information to collect whilst using electronic device or not. Here we present the process used to select the minimum information required to describe an outbreak of any cause during its initial stages and occurring in remote settings. Methods A working group of epidemiologists took part in two rounds of a Delphi process to categorise the variables to be included in an initial outbreak investigation form. This took place between January–June 2019 using an online survey. Results At a threshold of 75 %, consensus was reached for nineteen (23.2%) variables which were all classified as ‘essential’. This increased to twenty-six (31.7%) variables when the threshold was reduced to 60% with all but one variable classified as ‘essential’. Twenty-five of these variables were included in the ‘Time zero initial case investigation’ ‘(T0)’ form which was shared with the members of the Rapid Response Team Knowledge Network for field testing and feedback. The form has been readily available online by WHO since September 2019. Conclusion This is the first known Delphi process used to determine the minimum variables needed for an outbreak investigation. The subsequent development of the T0 form should help to improve the efficiency and standardisation of data collection during emergencies and ultimately the quality of the data collected during field investigation.
first_indexed 2024-04-11T18:37:53Z
format Article
id doaj.art-b2a138a4ad674894b8ff05d58b55ff87
institution Directory Open Access Journal
issn 1471-2458
language English
last_indexed 2024-04-11T18:37:53Z
publishDate 2021-12-01
publisher BMC
record_format Article
series BMC Public Health
spelling doaj.art-b2a138a4ad674894b8ff05d58b55ff872022-12-22T04:09:10ZengBMCBMC Public Health1471-24582021-12-012111910.1186/s12889-021-12206-5Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approachAnne Perrocheau0Hannah Brindle1Chrissy Roberts2Srinivas Murthy3Sharmila Shetty4Antonio Isidro Carrion Martin5Michael Marks6Karl Schenkel7the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”8World Health OrganisationLondon School of Hygiene & Tropical MedicineLondon School of Hygiene & Tropical MedicineWorld Health OrganisationCenters for Disease ControlMédecins Sans FrontièresLondon School of Hygiene & Tropical MedicineWorld Health OrganisationWorld Health OrganisationAbstract Background Timely but accurate data collection is needed during health emergencies to inform public health responses. Often, an abundance of data is collected but not used. When outbreaks and other health events occur in remote and complex settings, operatives on the ground are often required to cover multiple tasks whilst working with limited resources. Tools that facilitate the collection of essential data during the early investigations of a potential public health event can support effective public health decision-making. We proposed to define the minimum set of quantitative information to collect whilst using electronic device or not. Here we present the process used to select the minimum information required to describe an outbreak of any cause during its initial stages and occurring in remote settings. Methods A working group of epidemiologists took part in two rounds of a Delphi process to categorise the variables to be included in an initial outbreak investigation form. This took place between January–June 2019 using an online survey. Results At a threshold of 75 %, consensus was reached for nineteen (23.2%) variables which were all classified as ‘essential’. This increased to twenty-six (31.7%) variables when the threshold was reduced to 60% with all but one variable classified as ‘essential’. Twenty-five of these variables were included in the ‘Time zero initial case investigation’ ‘(T0)’ form which was shared with the members of the Rapid Response Team Knowledge Network for field testing and feedback. The form has been readily available online by WHO since September 2019. Conclusion This is the first known Delphi process used to determine the minimum variables needed for an outbreak investigation. The subsequent development of the T0 form should help to improve the efficiency and standardisation of data collection during emergencies and ultimately the quality of the data collected during field investigation.https://doi.org/10.1186/s12889-021-12206-5OutbreakField investigationMinimum variablesDelphiRemote settingsQuestionnaire
spellingShingle Anne Perrocheau
Hannah Brindle
Chrissy Roberts
Srinivas Murthy
Sharmila Shetty
Antonio Isidro Carrion Martin
Michael Marks
Karl Schenkel
the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”
Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
BMC Public Health
Outbreak
Field investigation
Minimum variables
Delphi
Remote settings
Questionnaire
title Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
title_full Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
title_fullStr Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
title_full_unstemmed Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
title_short Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
title_sort data collection for outbreak investigations process for defining a minimal data set using a delphi approach
topic Outbreak
Field investigation
Minimum variables
Delphi
Remote settings
Questionnaire
url https://doi.org/10.1186/s12889-021-12206-5
work_keys_str_mv AT anneperrocheau datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT hannahbrindle datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT chrissyroberts datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT srinivasmurthy datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT sharmilashetty datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT antonioisidrocarrionmartin datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT michaelmarks datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT karlschenkel datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach
AT theminimumvariablesforoutbreakinvestigationworkinggroupofthewhooutbreaktoolkitproject datacollectionforoutbreakinvestigationsprocessfordefiningaminimaldatasetusingadelphiapproach