Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems

Abstract Background Personal communities or personal support networks comprise a variety of social ties considered important to individuals in their everyday lives. This set of active and significant ties influence the capacity to manage mental health problems because of the potential to access soci...

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Main Authors: Helen Louise Brooks, Penny Bee, Karina Lovell, Anne Rogers
Format: Article
Language:English
Published: BMC 2020-02-01
Series:BMC Psychiatry
Subjects:
Online Access:https://doi.org/10.1186/s12888-020-2458-z
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author Helen Louise Brooks
Penny Bee
Karina Lovell
Anne Rogers
author_facet Helen Louise Brooks
Penny Bee
Karina Lovell
Anne Rogers
author_sort Helen Louise Brooks
collection DOAJ
description Abstract Background Personal communities or personal support networks comprise a variety of social ties considered important to individuals in their everyday lives. This set of active and significant ties influence the capacity to manage mental health problems because of the potential to access social support. However, little is known in the context of people’s everyday management of mental health about how relationships with people, places, objects and activities are navigated and negotiated. This study aimed to explore the nature and negotiation of support from personal communities in the everyday management of severe and enduring mental health problems. Methods A longitudinal qualitative study undertaken in the UK incorporating 79 interviews with 29 participants based on personal network mapping. 29 users of mental health services with a diagnosis of severe and enduring mental illness were interviewed at three time points. Data was analysed using an inductive thematic approach underpinned by the Network Episode Model. Results The presence and maintenance of interpersonal trust was a fundamental condition of the relational work required to develop, undertake and sustain relationships with others. Whilst relationships with spouses, family members and friends were generally viewed positively, the work required to engage human others was contingent, vicarious and overlain with felt and enacted stigma. Developing relationships with others was hindered by a lack of confidence fuelled by the experience of mental illness and a fear of rejection or failure. By contrast, weaker ties and inanimate objects and places offered and provided a sense of reliability and security. Strategies employed by participants in order to garner sufficient support for condition management in the light of these particular challenges are illuminated by the discussion of who and what is relevant and valued in personal support networks. Conclusions Access to valued activities, hobbies and things should be considered alongside human relationships in providing a means of ongoing support and resource for the everyday management of life for those experiencing severe and enduring mental health problems.
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spelling doaj.art-b2a629a2393b418ebc8516e33bc5a5172022-12-21T19:58:29ZengBMCBMC Psychiatry1471-244X2020-02-0120111310.1186/s12888-020-2458-zNegotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problemsHelen Louise Brooks0Penny Bee1Karina Lovell2Anne Rogers3Department of Health Services Research, Institute of Population Health Sciences, University of LiverpoolMental Health Research Group, Division of Nursing, Midwifery and Social Work, Faculty of Biology, Medicine and Health, School of Health Sciences, Manchester Academic Health Science Centre, University of ManchesterMental Health Research Group, Division of Nursing, Midwifery and Social Work, Faculty of Biology, Medicine and Health, School of Health Sciences, Manchester Academic Health Science Centre, University of ManchesterNIHR CLAHRC Wessex, Faculty of Environmental and Life Sciences, University of SouthamptonAbstract Background Personal communities or personal support networks comprise a variety of social ties considered important to individuals in their everyday lives. This set of active and significant ties influence the capacity to manage mental health problems because of the potential to access social support. However, little is known in the context of people’s everyday management of mental health about how relationships with people, places, objects and activities are navigated and negotiated. This study aimed to explore the nature and negotiation of support from personal communities in the everyday management of severe and enduring mental health problems. Methods A longitudinal qualitative study undertaken in the UK incorporating 79 interviews with 29 participants based on personal network mapping. 29 users of mental health services with a diagnosis of severe and enduring mental illness were interviewed at three time points. Data was analysed using an inductive thematic approach underpinned by the Network Episode Model. Results The presence and maintenance of interpersonal trust was a fundamental condition of the relational work required to develop, undertake and sustain relationships with others. Whilst relationships with spouses, family members and friends were generally viewed positively, the work required to engage human others was contingent, vicarious and overlain with felt and enacted stigma. Developing relationships with others was hindered by a lack of confidence fuelled by the experience of mental illness and a fear of rejection or failure. By contrast, weaker ties and inanimate objects and places offered and provided a sense of reliability and security. Strategies employed by participants in order to garner sufficient support for condition management in the light of these particular challenges are illuminated by the discussion of who and what is relevant and valued in personal support networks. Conclusions Access to valued activities, hobbies and things should be considered alongside human relationships in providing a means of ongoing support and resource for the everyday management of life for those experiencing severe and enduring mental health problems.https://doi.org/10.1186/s12888-020-2458-zMental health self-managementPersonal support networksPersonal communitiesQualitativeValued activitiesRelational work
spellingShingle Helen Louise Brooks
Penny Bee
Karina Lovell
Anne Rogers
Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
BMC Psychiatry
Mental health self-management
Personal support networks
Personal communities
Qualitative
Valued activities
Relational work
title Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
title_full Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
title_fullStr Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
title_full_unstemmed Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
title_short Negotiating support from relationships and resources: a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
title_sort negotiating support from relationships and resources a longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems
topic Mental health self-management
Personal support networks
Personal communities
Qualitative
Valued activities
Relational work
url https://doi.org/10.1186/s12888-020-2458-z
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