The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement
Patient-reported outcomes (PROs) digitalization and integration into clinical practice has widened its purpose, which makes it relevant to reconceptualize PRO accordingly. Therefore, this study aims to describe and critically discuss the purposes of PRO and to suggest an interdisciplinary definition...
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| Format: | Article |
| Language: | English |
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MDPI AG
2020-10-01
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| Series: | Applied Sciences |
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| Online Access: | https://www.mdpi.com/2076-3417/10/21/7507 |
| _version_ | 1797549832626241536 |
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| author | Jeppe Eriksen Ann Bygholm Pernille Bertelsen |
| author_facet | Jeppe Eriksen Ann Bygholm Pernille Bertelsen |
| author_sort | Jeppe Eriksen |
| collection | DOAJ |
| description | Patient-reported outcomes (PROs) digitalization and integration into clinical practice has widened its purpose, which makes it relevant to reconceptualize PRO accordingly. Therefore, this study aims to describe and critically discuss the purposes of PRO and to suggest an interdisciplinary definition of PRO aligned with current applications. The findings in this study are based on a formerly conducted scoping review on PRO and patient participation; hence, a sub-study focusing on the purpose of PRO. The purposes of PRO pertain to research and drug testing; quality and economy; patient-centered care; politicization and democratization; and organization and culture. The suggested definition describes PRO as <i>a validated questionnaire; developed</i> in collaboration between patients, clinicians, and other pertinent stakeholders; <i>systematically</i> applied; <i>mediated</i> digitally or paper-based; <i>completed</i> directly by the patient, with assistance or by a qualified proxy; composed of generic, disease-specific, condition-specific or preference-based <i>measures</i>; consisting of <i>content</i> pertaining to the patient’s physical and mental health condition, functioning, symptoms, well-being or health-related quality of life (HRQoL); providing objective and/or subjective outcomes, and individual and/or population <i>data</i>. An alternative understanding of PRO is meant to enhance the link between purposes and definitions of PRO, facilitating interdisciplinary stakeholder discussions on PRO, potentially improving future PRO interventions. |
| first_indexed | 2024-03-10T15:20:59Z |
| format | Article |
| id | doaj.art-b3c2b84490644d3a9c69d83454606c69 |
| institution | Directory Open Access Journal |
| issn | 2076-3417 |
| language | English |
| last_indexed | 2024-03-10T15:20:59Z |
| publishDate | 2020-10-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Applied Sciences |
| spelling | doaj.art-b3c2b84490644d3a9c69d83454606c692023-11-20T18:31:00ZengMDPI AGApplied Sciences2076-34172020-10-011021750710.3390/app10217507The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical EvolvementJeppe Eriksen0Ann Bygholm1Pernille Bertelsen2Techno-anthropology, Department of Planning, Aalborg University (AAU), 9000 Aalborg, DenmarkHealth Informatics, Department of Communication and Psychology, Aalborg University (AAU), 9000 Aalborg, DenmarkTechno-anthropology, Department of Planning, Aalborg University (AAU), 9000 Aalborg, DenmarkPatient-reported outcomes (PROs) digitalization and integration into clinical practice has widened its purpose, which makes it relevant to reconceptualize PRO accordingly. Therefore, this study aims to describe and critically discuss the purposes of PRO and to suggest an interdisciplinary definition of PRO aligned with current applications. The findings in this study are based on a formerly conducted scoping review on PRO and patient participation; hence, a sub-study focusing on the purpose of PRO. The purposes of PRO pertain to research and drug testing; quality and economy; patient-centered care; politicization and democratization; and organization and culture. The suggested definition describes PRO as <i>a validated questionnaire; developed</i> in collaboration between patients, clinicians, and other pertinent stakeholders; <i>systematically</i> applied; <i>mediated</i> digitally or paper-based; <i>completed</i> directly by the patient, with assistance or by a qualified proxy; composed of generic, disease-specific, condition-specific or preference-based <i>measures</i>; consisting of <i>content</i> pertaining to the patient’s physical and mental health condition, functioning, symptoms, well-being or health-related quality of life (HRQoL); providing objective and/or subjective outcomes, and individual and/or population <i>data</i>. An alternative understanding of PRO is meant to enhance the link between purposes and definitions of PRO, facilitating interdisciplinary stakeholder discussions on PRO, potentially improving future PRO interventions.https://www.mdpi.com/2076-3417/10/21/7507Patient-reported outcome measures (PROM)patient-reported outcome (PRO)quality of lifepatient-centered caredefinition of PROpurpose of PRO |
| spellingShingle | Jeppe Eriksen Ann Bygholm Pernille Bertelsen The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement Applied Sciences Patient-reported outcome measures (PROM) patient-reported outcome (PRO) quality of life patient-centered care definition of PRO purpose of PRO |
| title | The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement |
| title_full | The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement |
| title_fullStr | The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement |
| title_full_unstemmed | The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement |
| title_short | The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement |
| title_sort | purpose of patient reported outcome pro post its digitalization and integration into clinical practice an interdisciplinary redefinition resembling pros theoretical and practical evolvement |
| topic | Patient-reported outcome measures (PROM) patient-reported outcome (PRO) quality of life patient-centered care definition of PRO purpose of PRO |
| url | https://www.mdpi.com/2076-3417/10/21/7507 |
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