Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method
Objectives Appendicitis is one of the most commonly encountered pediatric surgical diagnoses, with non-operative management of perforated appendicitis leading to two treatment options: an interval appendectomy (IA) or expectant management. The primary objective of this study was to assess parents’ n...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2022-02-01
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| Series: | World Journal of Pediatric Surgery |
| Online Access: | https://wjps.bmj.com/content/5/2/e000371.full |
| _version_ | 1797668175570010112 |
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| author | Ahmed Nasr Viviane Grandpierre Irina Oltean Arielle Weir Katherine Duba Karine Toupin April |
| author_facet | Ahmed Nasr Viviane Grandpierre Irina Oltean Arielle Weir Katherine Duba Karine Toupin April |
| author_sort | Ahmed Nasr |
| collection | DOAJ |
| description | Objectives Appendicitis is one of the most commonly encountered pediatric surgical diagnoses, with non-operative management of perforated appendicitis leading to two treatment options: an interval appendectomy (IA) or expectant management. The primary objective of this study was to assess parents’ need for a patient decision aid (PDA) among parents considering IA or expectant management. A secondary objective was to determine parent preferences for the format and distribution plan of a drafted patient decision aid.Methods Coulter’s systematic development process for PDA was used to guide the assessment interviews for parents. Participants included caregivers of a patient who experienced perforated appendicitis, and admission between 2019 and 2020. Semi-structured individual interviews were conducted to collect information about decision-making needs of parents of children who experienced perforated appendicitis.Results A total of 12 different parents participated in the interviews. Results indicate decisional conflict associated with the lack of evidence for optimal treatment, supporting the need for the development of a patient decision aid to assist in clarifying information and parent values with practitioners. Parents clearly identified a need for evidence to support decision-making in various formats (eg, pamphlet or electronic). Timing of when to deliver the PDA varied (ie, during hospital admission, at discharge, or at follow-up appointment).Conclusion Results indicated various factors contributing to parental decisional conflict, including the lack of evidence showing the optimal treatment, the need for more information, and guidance from practitioners. Overall, findings indicate a strong need for a patient decision aid. |
| first_indexed | 2024-03-11T20:25:39Z |
| format | Article |
| id | doaj.art-b42ae89cf96348dc8f1048c65931ed08 |
| institution | Directory Open Access Journal |
| issn | 2516-5410 |
| language | English |
| last_indexed | 2024-03-11T20:25:39Z |
| publishDate | 2022-02-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | World Journal of Pediatric Surgery |
| spelling | doaj.art-b42ae89cf96348dc8f1048c65931ed082023-10-02T16:20:06ZengBMJ Publishing GroupWorld Journal of Pediatric Surgery2516-54102022-02-015210.1136/wjps-2021-000371Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview methodAhmed Nasr0Viviane Grandpierre1Irina Oltean2Arielle Weir3Katherine Duba4Karine Toupin April5Department of Surgery, Children`s Hospital of Eastern Ontario, Ottawa, Ontario, CanadaDepartment of Surgery, Children`s Hospital of Eastern Ontario, Ottawa, Ontario, CanadaDepartment of Surgery, Children`s Hospital of Eastern Ontario, Ottawa, Ontario, CanadaSurgery, Children`s Hospital of Eastern Ontario, Ottawa, Ontario, CanadaBiology, Clarkson University, Potsdam, New York, USAPediatrics, University of Ottawa, Ottawa, Ontario, CanadaObjectives Appendicitis is one of the most commonly encountered pediatric surgical diagnoses, with non-operative management of perforated appendicitis leading to two treatment options: an interval appendectomy (IA) or expectant management. The primary objective of this study was to assess parents’ need for a patient decision aid (PDA) among parents considering IA or expectant management. A secondary objective was to determine parent preferences for the format and distribution plan of a drafted patient decision aid.Methods Coulter’s systematic development process for PDA was used to guide the assessment interviews for parents. Participants included caregivers of a patient who experienced perforated appendicitis, and admission between 2019 and 2020. Semi-structured individual interviews were conducted to collect information about decision-making needs of parents of children who experienced perforated appendicitis.Results A total of 12 different parents participated in the interviews. Results indicate decisional conflict associated with the lack of evidence for optimal treatment, supporting the need for the development of a patient decision aid to assist in clarifying information and parent values with practitioners. Parents clearly identified a need for evidence to support decision-making in various formats (eg, pamphlet or electronic). Timing of when to deliver the PDA varied (ie, during hospital admission, at discharge, or at follow-up appointment).Conclusion Results indicated various factors contributing to parental decisional conflict, including the lack of evidence showing the optimal treatment, the need for more information, and guidance from practitioners. Overall, findings indicate a strong need for a patient decision aid.https://wjps.bmj.com/content/5/2/e000371.full |
| spellingShingle | Ahmed Nasr Viviane Grandpierre Irina Oltean Arielle Weir Katherine Duba Karine Toupin April Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method World Journal of Pediatric Surgery |
| title | Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method |
| title_full | Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method |
| title_fullStr | Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method |
| title_full_unstemmed | Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method |
| title_short | Needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method |
| title_sort | needs assessment of parents for a patient decision aid in pediatric interval appendectomy via the qualitative interview method |
| url | https://wjps.bmj.com/content/5/2/e000371.full |
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