The Development of a Quality of Life Scale for Informal Carers for Older Adults

Background: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom ( n = 308), United State...

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Main Authors: John Maltby PhD, Eef Hogervorst PhD, Blossom Stephan PhD, Xu Sun PhD, Pinyan Tang PhD, Effie Law PhD, Elizabeta B. Mukaetova-Ladinska PhD
Format: Article
Language:English
Published: SAGE Publishing 2020-05-01
Series:Gerontology and Geriatric Medicine
Online Access:https://doi.org/10.1177/2333721420920424
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author John Maltby PhD
Eef Hogervorst PhD
Blossom Stephan PhD
Xu Sun PhD
Pinyan Tang PhD
Effie Law PhD
Elizabeta B. Mukaetova-Ladinska PhD
author_facet John Maltby PhD
Eef Hogervorst PhD
Blossom Stephan PhD
Xu Sun PhD
Pinyan Tang PhD
Effie Law PhD
Elizabeta B. Mukaetova-Ladinska PhD
author_sort John Maltby PhD
collection DOAJ
description Background: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom ( n = 308), United States ( n = 164), and China ( n = 131). We carried out exploratory and confirmatory factor analyses of 61 items derived from the eight-factor Adult Carers Quality of Life Questionnaire with newly added items to define both traditional and nontraditional informal care roles. Results: Findings suggest a 24-item quality of life scale with a six-factor structure to caring for older adults that assesses (a) exhaustion, (b) adoption of a traditional carer role, (c) personal growth, (d) management and performance, (e) level of support, and (f) financial matters. Conclusion: We present a new scale to assess the multidimensional aspects of quality of life among those caring for older adults.
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spelling doaj.art-b45182467b7349f785dbe7bbc91b6be72022-12-21T22:21:06ZengSAGE PublishingGerontology and Geriatric Medicine2333-72142020-05-01610.1177/2333721420920424The Development of a Quality of Life Scale for Informal Carers for Older AdultsJohn Maltby PhD0Eef Hogervorst PhD1Blossom Stephan PhD2Xu Sun PhD3Pinyan Tang PhD4Effie Law PhD5Elizabeta B. Mukaetova-Ladinska PhD6University of Leicester, UKLoughborough University, UKUniversity of Nottingham, UKUniversity of Nottingham Ningbo China, ChinaUniversity of Nottingham Ningbo China, ChinaUniversity of Leicester, UKUniversity of Leicester, UKBackground: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom ( n = 308), United States ( n = 164), and China ( n = 131). We carried out exploratory and confirmatory factor analyses of 61 items derived from the eight-factor Adult Carers Quality of Life Questionnaire with newly added items to define both traditional and nontraditional informal care roles. Results: Findings suggest a 24-item quality of life scale with a six-factor structure to caring for older adults that assesses (a) exhaustion, (b) adoption of a traditional carer role, (c) personal growth, (d) management and performance, (e) level of support, and (f) financial matters. Conclusion: We present a new scale to assess the multidimensional aspects of quality of life among those caring for older adults.https://doi.org/10.1177/2333721420920424
spellingShingle John Maltby PhD
Eef Hogervorst PhD
Blossom Stephan PhD
Xu Sun PhD
Pinyan Tang PhD
Effie Law PhD
Elizabeta B. Mukaetova-Ladinska PhD
The Development of a Quality of Life Scale for Informal Carers for Older Adults
Gerontology and Geriatric Medicine
title The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_full The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_fullStr The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_full_unstemmed The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_short The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_sort development of a quality of life scale for informal carers for older adults
url https://doi.org/10.1177/2333721420920424
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