Roadmap to engagement: Bringing patient partners into cancer research and beyond
The University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-i...
| Main Authors: | , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Cambridge University Press
2023-01-01
|
| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866123006027/type/journal_article |
| _version_ | 1797737173807529984 |
|---|---|
| author | Kim S. Kimminau Cheryl Jernigan Hope Krebill Sara Douglas Jill Peltzer Jill Hamilton-Reeves Ronald C. Chen Roy Jensen |
| author_facet | Kim S. Kimminau Cheryl Jernigan Hope Krebill Sara Douglas Jill Peltzer Jill Hamilton-Reeves Ronald C. Chen Roy Jensen |
| author_sort | Kim S. Kimminau |
| collection | DOAJ |
| description | The University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-informed engagement program called Patient and Investigator Voices Organizing Together (PIVOT). This special communication offers an engagement roadmap that can be replicated, scaled, and adopted at other cancer centers and academic health systems. PIVOT demonstrates that collaboration among academic leaders, investigators, and people with a lived experience yields a patient-centered, vibrant environment that enriches the research enterprise. |
| first_indexed | 2024-03-12T13:24:36Z |
| format | Article |
| id | doaj.art-b49493cfd2d14ea4a793596c20ee5420 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-03-12T13:24:36Z |
| publishDate | 2023-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-b49493cfd2d14ea4a793596c20ee54202023-08-25T11:08:51ZengCambridge University PressJournal of Clinical and Translational Science2059-86612023-01-01710.1017/cts.2023.602Roadmap to engagement: Bringing patient partners into cancer research and beyondKim S. Kimminau0https://orcid.org/0000-0002-2252-7941Cheryl Jernigan1Hope Krebill2Sara Douglas3Jill Peltzer4Jill Hamilton-Reeves5Ronald C. Chen6Roy Jensen7Department of Family and Community Medicine, University of Missouri-Columbia, Columbia, MO, USAUniversity of Kansas Cancer Center, University of Kansas School of Medicine, Kansas City, KS, USAMasonic Cancer Alliance, Fairway, KS, USAPatient Advocacy and Engagement Talaris Therapeutics, Louisville, KY, USAUniversity of Kansas School of Nursing, Kansas City, KS, USAKU Department of Urology, University of Kansas Medical Center, Kansas City, KS, USADepartment of Radiation Oncology, University of Kansas Cancer Center, Kansas City, KS, USAUniversity of Kansas Cancer Center, University of Kansas School of Medicine, Kansas City, KS, USAThe University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-informed engagement program called Patient and Investigator Voices Organizing Together (PIVOT). This special communication offers an engagement roadmap that can be replicated, scaled, and adopted at other cancer centers and academic health systems. PIVOT demonstrates that collaboration among academic leaders, investigators, and people with a lived experience yields a patient-centered, vibrant environment that enriches the research enterprise.https://www.cambridge.org/core/product/identifier/S2059866123006027/type/journal_articleCancerpatientengagement modeleducationteam science |
| spellingShingle | Kim S. Kimminau Cheryl Jernigan Hope Krebill Sara Douglas Jill Peltzer Jill Hamilton-Reeves Ronald C. Chen Roy Jensen Roadmap to engagement: Bringing patient partners into cancer research and beyond Journal of Clinical and Translational Science Cancer patient engagement model education team science |
| title | Roadmap to engagement: Bringing patient partners into cancer research and beyond |
| title_full | Roadmap to engagement: Bringing patient partners into cancer research and beyond |
| title_fullStr | Roadmap to engagement: Bringing patient partners into cancer research and beyond |
| title_full_unstemmed | Roadmap to engagement: Bringing patient partners into cancer research and beyond |
| title_short | Roadmap to engagement: Bringing patient partners into cancer research and beyond |
| title_sort | roadmap to engagement bringing patient partners into cancer research and beyond |
| topic | Cancer patient engagement model education team science |
| url | https://www.cambridge.org/core/product/identifier/S2059866123006027/type/journal_article |
| work_keys_str_mv | AT kimskimminau roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT cheryljernigan roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT hopekrebill roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT saradouglas roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT jillpeltzer roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT jillhamiltonreeves roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT ronaldcchen roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond AT royjensen roadmaptoengagementbringingpatientpartnersintocancerresearchandbeyond |