Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture

<em><span style="font-family: Times-Italic; font-size: small;"><span style="font-family: Times-Italic; font-size: small;"><p align="left">Being the parent of a disabled child is not easy, it is experienced as a situation marked by stress,</p&g...

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Main Author: Jesper Dammeyer
Format: Article
Language:English
Published: The Outlines Association 2010-06-01
Series:Outlines
Subjects:
Online Access:http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2844
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author Jesper Dammeyer
author_facet Jesper Dammeyer
author_sort Jesper Dammeyer
collection DOAJ
description <em><span style="font-family: Times-Italic; font-size: small;"><span style="font-family: Times-Italic; font-size: small;"><p align="left">Being the parent of a disabled child is not easy, it is experienced as a situation marked by stress,</p><p align="left">crises and grief. As Vygotsky described eighty years ago, the development of children with</p><p align="left">disabilities and the culture do not fit as they do for non-disabled children. The development of a</p><p align="left">child with disabilities is not determined by the child&rsquo;s physical defect alone, but constituted by the</p><p align="left">incongruence between the physical defect and the culture. In this study, the lives of four families</p><p align="left">with deafblind children were followed for two years. Interviews and observations were conducted</p><p align="left">in different settings. This study finds that because of the incongruence between the physical defect</p><p align="left">and the culture, it is difficult to reach and maintain the zone of proximal development for a child</p><p align="left">with disabilities. This study illustrates how the network of professionals and parents around the</p><p>child can make a local congruence that creates a platform for the child&rsquo;s development.</p></span></span></em>
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spelling doaj.art-b4d9fc30f0354f9d9b52d0846c64b51a2023-01-02T13:58:32ZengThe Outlines AssociationOutlines1399-55101904-02102010-06-0112142552558Parents’ management of the development of their children with disabilities: Incongruence between psychological development and cultureJesper Dammeyer0Department of Psychology, University of Copenhagen<em><span style="font-family: Times-Italic; font-size: small;"><span style="font-family: Times-Italic; font-size: small;"><p align="left">Being the parent of a disabled child is not easy, it is experienced as a situation marked by stress,</p><p align="left">crises and grief. As Vygotsky described eighty years ago, the development of children with</p><p align="left">disabilities and the culture do not fit as they do for non-disabled children. The development of a</p><p align="left">child with disabilities is not determined by the child&rsquo;s physical defect alone, but constituted by the</p><p align="left">incongruence between the physical defect and the culture. In this study, the lives of four families</p><p align="left">with deafblind children were followed for two years. Interviews and observations were conducted</p><p align="left">in different settings. This study finds that because of the incongruence between the physical defect</p><p align="left">and the culture, it is difficult to reach and maintain the zone of proximal development for a child</p><p align="left">with disabilities. This study illustrates how the network of professionals and parents around the</p><p>child can make a local congruence that creates a platform for the child&rsquo;s development.</p></span></span></em>http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2844DisabilityVygotskyculturefamiliesdeafblindness
spellingShingle Jesper Dammeyer
Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture
Outlines
Disability
Vygotsky
culture
families
deafblindness
title Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture
title_full Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture
title_fullStr Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture
title_full_unstemmed Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture
title_short Parents’ management of the development of their children with disabilities: Incongruence between psychological development and culture
title_sort parents management of the development of their children with disabilities incongruence between psychological development and culture
topic Disability
Vygotsky
culture
families
deafblindness
url http://ojs.statsbiblioteket.dk/index.php/outlines/article/view/2844
work_keys_str_mv AT jesperdammeyer parentsmanagementofthedevelopmentoftheirchildrenwithdisabilitiesincongruencebetweenpsychologicaldevelopmentandculture