Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study
Abstract Background End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in...
| Main Authors: | , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2024-04-01
|
| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12904-024-01423-5 |
| _version_ | 1797219548326264832 |
|---|---|
| author | Berivan Yildiz Agnes van der Heide Misa Bakan Grethe Skorpen Iversen Dagny Faksvåg Haugen Tamsin McGlinchey Ruthmarijke Smeding John Ellershaw Claudia Fischer Judit Simon Eva Vibora-Martin Inmaculada Ruiz-Torreras Anne Goossensen the iLIVE consortium |
| author_facet | Berivan Yildiz Agnes van der Heide Misa Bakan Grethe Skorpen Iversen Dagny Faksvåg Haugen Tamsin McGlinchey Ruthmarijke Smeding John Ellershaw Claudia Fischer Judit Simon Eva Vibora-Martin Inmaculada Ruiz-Torreras Anne Goossensen the iLIVE consortium |
| author_sort | Berivan Yildiz |
| collection | DOAJ |
| description | Abstract Background End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. Methods Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. Results Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). Conclusion Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. Trial registration NCT04678310. Registered 21/12/2020. |
| first_indexed | 2024-04-24T12:35:24Z |
| format | Article |
| id | doaj.art-b4eaab6f1e7d4cc69fed4f2b38862d80 |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-04-24T12:35:24Z |
| publishDate | 2024-04-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-b4eaab6f1e7d4cc69fed4f2b38862d802024-04-07T11:34:15ZengBMCBMC Palliative Care1472-684X2024-04-0123111410.1186/s12904-024-01423-5Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE studyBerivan Yildiz0Agnes van der Heide1Misa Bakan2Grethe Skorpen Iversen3Dagny Faksvåg Haugen4Tamsin McGlinchey5Ruthmarijke Smeding6John Ellershaw7Claudia Fischer8Judit Simon9Eva Vibora-Martin10Inmaculada Ruiz-Torreras11Anne Goossensen12the iLIVE consortiumDepartment of Public Health, Erasmus MC, University Medical Center RotterdamDepartment of Public Health, Erasmus MC, University Medical Center RotterdamResearch Department, University Clinic of Respiratory and Allergic Diseases GolnikRegional Centre of Excellence for Palliative Care, Western Norway, Haukeland University HospitalRegional Centre of Excellence for Palliative Care, Western Norway, Haukeland University HospitalPalliative Care Unit, Institute of Life Course and Medical Sciences, University of LiverpoolPalliative Care Unit, Institute of Life Course and Medical Sciences, University of LiverpoolPalliative Care Unit, Institute of Life Course and Medical Sciences, University of LiverpoolDepartment of Health Economics, Center for Public Health, Medical University of ViennaDepartment of Health Economics, Center for Public Health, Medical University of ViennaCUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice FoundationCUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice FoundationInformal Care and Care Ethics, University of Humanistic StudiesAbstract Background End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. Methods Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. Results Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). Conclusion Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. Trial registration NCT04678310. Registered 21/12/2020.https://doi.org/10.1186/s12904-024-01423-5End of life careVolunteeringImplementationHospital volunteerInpatient |
| spellingShingle | Berivan Yildiz Agnes van der Heide Misa Bakan Grethe Skorpen Iversen Dagny Faksvåg Haugen Tamsin McGlinchey Ruthmarijke Smeding John Ellershaw Claudia Fischer Judit Simon Eva Vibora-Martin Inmaculada Ruiz-Torreras Anne Goossensen the iLIVE consortium Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study BMC Palliative Care End of life care Volunteering Implementation Hospital volunteer Inpatient |
| title | Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study |
| title_full | Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study |
| title_fullStr | Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study |
| title_full_unstemmed | Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study |
| title_short | Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study |
| title_sort | facilitators and barriers of implementing end of life care volunteering in a hospital in five european countries the ilive study |
| topic | End of life care Volunteering Implementation Hospital volunteer Inpatient |
| url | https://doi.org/10.1186/s12904-024-01423-5 |
| work_keys_str_mv | AT berivanyildiz facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT agnesvanderheide facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT misabakan facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT gretheskorpeniversen facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT dagnyfaksvaghaugen facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT tamsinmcglinchey facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT ruthmarijkesmeding facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT johnellershaw facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT claudiafischer facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT juditsimon facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT evaviboramartin facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT inmaculadaruiztorreras facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT annegoossensen facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy AT theiliveconsortium facilitatorsandbarriersofimplementingendoflifecarevolunteeringinahospitalinfiveeuropeancountriestheilivestudy |