Self-management challenges and support needs among patients with primary glaucoma: a qualitative study
Abstract Background Self-management plays an important role in the disease management of glaucoma patients. The effectiveness of the program can be improved by assessing the patient’s perspective and needs to tailor self-management support. Most studies have focused on assessing one of these self-ma...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2023-11-01
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| Series: | BMC Nursing |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12912-023-01527-y |
| _version_ | 1827723714617147392 |
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| author | Yiting Hua Hujie LU Jingyao Dai Yewei Zhou Wenzhe Zhou Aisun Wang Yanyan Chen Youping Liang |
| author_facet | Yiting Hua Hujie LU Jingyao Dai Yewei Zhou Wenzhe Zhou Aisun Wang Yanyan Chen Youping Liang |
| author_sort | Yiting Hua |
| collection | DOAJ |
| description | Abstract Background Self-management plays an important role in the disease management of glaucoma patients. The effectiveness of the program can be improved by assessing the patient’s perspective and needs to tailor self-management support. Most studies have focused on assessing one of these self-management behaviours, such as medication adherence, and there is a lack of systematic assessment of the support needs and challenges of self-management for patients with glaucoma. Therefore, in this study, we conducted an in-depth investigation into the self-management challenges and support needs of patients with primary glaucoma, providing a basis for nursing staff to implement self-management support. Method The phenomenological method and semistructured interviews were used in this study. A total of 20 patients with primary glaucoma were recruited between June and December 2022. Colaizzi’s analysis method was used to analyse the interview data. Results Challenges for patients include becoming an expert in glaucoma, managing negative emotions, adapting to daily life changes and resuming social activities. To address these challenges, four themes of patient self-management support needs were identified: (1) health information support, (2) social support, (3) psychological support, and (4) daily living support. Conclusion Patients with primary glaucoma experience varying degrees of challenge in dealing with medical, emotional, and social aspects. Comprehending the support needs of patients, healthcare professionals should deliver targeted, personalized and comprehensive self-management interventions to enhance their capacity of patients to perform self-management and improve their quality of life. |
| first_indexed | 2024-03-10T22:04:42Z |
| format | Article |
| id | doaj.art-b4ec0a4a30e04cf9b8e808fb02363703 |
| institution | Directory Open Access Journal |
| issn | 1472-6955 |
| language | English |
| last_indexed | 2024-03-10T22:04:42Z |
| publishDate | 2023-11-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Nursing |
| spelling | doaj.art-b4ec0a4a30e04cf9b8e808fb023637032023-11-19T12:51:20ZengBMCBMC Nursing1472-69552023-11-0122111010.1186/s12912-023-01527-ySelf-management challenges and support needs among patients with primary glaucoma: a qualitative studyYiting Hua0Hujie LU1Jingyao Dai2Yewei Zhou3Wenzhe Zhou4Aisun Wang5Yanyan Chen6Youping Liang7School of Ophthalmology and Optometry, Wenzhou Medical UniversitySchool of Ophthalmology and Optometry, Wenzhou Medical UniversitySchool of Ophthalmology and Optometry, Wenzhou Medical UniversitySchool of Ophthalmology and Optometry, Wenzhou Medical UniversityNational Clinical Research Center for Ocular Diseases, Eye Hospital, Wenzhou Medical UniversityNational Clinical Research Center for Ocular Diseases, Eye Hospital, Wenzhou Medical UniversityNational Clinical Research Center for Ocular Diseases, Eye Hospital, Wenzhou Medical UniversityNational Clinical Research Center for Ocular Diseases, Eye Hospital, Wenzhou Medical UniversityAbstract Background Self-management plays an important role in the disease management of glaucoma patients. The effectiveness of the program can be improved by assessing the patient’s perspective and needs to tailor self-management support. Most studies have focused on assessing one of these self-management behaviours, such as medication adherence, and there is a lack of systematic assessment of the support needs and challenges of self-management for patients with glaucoma. Therefore, in this study, we conducted an in-depth investigation into the self-management challenges and support needs of patients with primary glaucoma, providing a basis for nursing staff to implement self-management support. Method The phenomenological method and semistructured interviews were used in this study. A total of 20 patients with primary glaucoma were recruited between June and December 2022. Colaizzi’s analysis method was used to analyse the interview data. Results Challenges for patients include becoming an expert in glaucoma, managing negative emotions, adapting to daily life changes and resuming social activities. To address these challenges, four themes of patient self-management support needs were identified: (1) health information support, (2) social support, (3) psychological support, and (4) daily living support. Conclusion Patients with primary glaucoma experience varying degrees of challenge in dealing with medical, emotional, and social aspects. Comprehending the support needs of patients, healthcare professionals should deliver targeted, personalized and comprehensive self-management interventions to enhance their capacity of patients to perform self-management and improve their quality of life.https://doi.org/10.1186/s12912-023-01527-yGlaucomaSelf-managementSelf‑management supportNeedsQualitative research |
| spellingShingle | Yiting Hua Hujie LU Jingyao Dai Yewei Zhou Wenzhe Zhou Aisun Wang Yanyan Chen Youping Liang Self-management challenges and support needs among patients with primary glaucoma: a qualitative study BMC Nursing Glaucoma Self-management Self‑management support Needs Qualitative research |
| title | Self-management challenges and support needs among patients with primary glaucoma: a qualitative study |
| title_full | Self-management challenges and support needs among patients with primary glaucoma: a qualitative study |
| title_fullStr | Self-management challenges and support needs among patients with primary glaucoma: a qualitative study |
| title_full_unstemmed | Self-management challenges and support needs among patients with primary glaucoma: a qualitative study |
| title_short | Self-management challenges and support needs among patients with primary glaucoma: a qualitative study |
| title_sort | self management challenges and support needs among patients with primary glaucoma a qualitative study |
| topic | Glaucoma Self-management Self‑management support Needs Qualitative research |
| url | https://doi.org/10.1186/s12912-023-01527-y |
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