Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review

Abstract Background Shared decision making (SDM) is a patient-centered approach in which clinicians and patients work together to find and choose the best course of action for each patient’s particular situation. Six SDM key elements can be identified: situation diagnosis, choice awareness, option c...

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Main Authors: Thomas H. Wieringa, Rene Rodriguez-Gutierrez, Gabriela Spencer-Bonilla, Maartje de Wit, Oscar J. Ponce, Manuel F. Sanchez-Herrera, Nataly R. Espinoza, Yaara Zisman-Ilani, Marleen Kunneman, Linda J. Schoonmade, Victor M. Montori, Frank J. Snoek
Format: Article
Language:English
Published: BMC 2019-05-01
Series:Systematic Reviews
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Online Access:http://link.springer.com/article/10.1186/s13643-019-1034-4
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author Thomas H. Wieringa
Rene Rodriguez-Gutierrez
Gabriela Spencer-Bonilla
Maartje de Wit
Oscar J. Ponce
Manuel F. Sanchez-Herrera
Nataly R. Espinoza
Yaara Zisman-Ilani
Marleen Kunneman
Linda J. Schoonmade
Victor M. Montori
Frank J. Snoek
author_facet Thomas H. Wieringa
Rene Rodriguez-Gutierrez
Gabriela Spencer-Bonilla
Maartje de Wit
Oscar J. Ponce
Manuel F. Sanchez-Herrera
Nataly R. Espinoza
Yaara Zisman-Ilani
Marleen Kunneman
Linda J. Schoonmade
Victor M. Montori
Frank J. Snoek
author_sort Thomas H. Wieringa
collection DOAJ
description Abstract Background Shared decision making (SDM) is a patient-centered approach in which clinicians and patients work together to find and choose the best course of action for each patient’s particular situation. Six SDM key elements can be identified: situation diagnosis, choice awareness, option clarification, discussion of harms and benefits, deliberation of patient preferences, and making the decision. The International Patient Decision Aid Standards (IPDAS) require that a decision aid (DA) support these key elements. Yet, the extent to which DAs support these six key SDM elements and how this relates to their impact remain unknown. Methods We searched bibliographic databases (from inception until November 2017), reference lists of included studies, trial registries, and experts for randomized controlled trials of DAs in patients with cardiovascular, or chronic respiratory conditions or diabetes. Reviewers worked in duplicate and independently selected studies for inclusion, extracted trial, and DA characteristics, and evaluated the quality of each trial. Results DAs most commonly clarified options (20 of 20; 100%) and discussed their harms and benefits (18 of 20; 90%; unclear in two DAs); all six elements were clearly supported in 4 DAs (20%). We found no association between the presence of these elements and SDM outcomes. Conclusions DAs for selected chronic conditions are mostly designed to transfer information about options and their harms and benefits. The extent to which their support of SDM key elements relates to their impact on SDM outcomes could not be ascertained. Systematic review registration PROSPERO registration number: CRD42016050320.
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spelling doaj.art-b569166d9c26498d988e4796b1994a192022-12-22T00:40:06ZengBMCSystematic Reviews2046-40532019-05-01811910.1186/s13643-019-1034-4Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic reviewThomas H. Wieringa0Rene Rodriguez-Gutierrez1Gabriela Spencer-Bonilla2Maartje de Wit3Oscar J. Ponce4Manuel F. Sanchez-Herrera5Nataly R. Espinoza6Yaara Zisman-Ilani7Marleen Kunneman8Linda J. Schoonmade9Victor M. Montori10Frank J. Snoek11Department of Medical Psychology, Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit AmsterdamKnowledge and Evaluation Research Unit, Mayo ClinicKnowledge and Evaluation Research Unit, Mayo ClinicDepartment of Medical Psychology, Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit AmsterdamKnowledge and Evaluation Research Unit, Mayo ClinicKnowledge and Evaluation Research Unit, Mayo ClinicKnowledge and Evaluation Research Unit, Mayo ClinicCollege of Public Health, Temple UniversityKnowledge and Evaluation Research Unit, Mayo ClinicMedical Library, VU UniversityKnowledge and Evaluation Research Unit, Mayo ClinicDepartment of Medical Psychology, Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit AmsterdamAbstract Background Shared decision making (SDM) is a patient-centered approach in which clinicians and patients work together to find and choose the best course of action for each patient’s particular situation. Six SDM key elements can be identified: situation diagnosis, choice awareness, option clarification, discussion of harms and benefits, deliberation of patient preferences, and making the decision. The International Patient Decision Aid Standards (IPDAS) require that a decision aid (DA) support these key elements. Yet, the extent to which DAs support these six key SDM elements and how this relates to their impact remain unknown. Methods We searched bibliographic databases (from inception until November 2017), reference lists of included studies, trial registries, and experts for randomized controlled trials of DAs in patients with cardiovascular, or chronic respiratory conditions or diabetes. Reviewers worked in duplicate and independently selected studies for inclusion, extracted trial, and DA characteristics, and evaluated the quality of each trial. Results DAs most commonly clarified options (20 of 20; 100%) and discussed their harms and benefits (18 of 20; 90%; unclear in two DAs); all six elements were clearly supported in 4 DAs (20%). We found no association between the presence of these elements and SDM outcomes. Conclusions DAs for selected chronic conditions are mostly designed to transfer information about options and their harms and benefits. The extent to which their support of SDM key elements relates to their impact on SDM outcomes could not be ascertained. Systematic review registration PROSPERO registration number: CRD42016050320.http://link.springer.com/article/10.1186/s13643-019-1034-4Chronic illnessesDecision aidsShared decision making
spellingShingle Thomas H. Wieringa
Rene Rodriguez-Gutierrez
Gabriela Spencer-Bonilla
Maartje de Wit
Oscar J. Ponce
Manuel F. Sanchez-Herrera
Nataly R. Espinoza
Yaara Zisman-Ilani
Marleen Kunneman
Linda J. Schoonmade
Victor M. Montori
Frank J. Snoek
Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review
Systematic Reviews
Chronic illnesses
Decision aids
Shared decision making
title Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review
title_full Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review
title_fullStr Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review
title_full_unstemmed Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review
title_short Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review
title_sort decision aids that facilitate elements of shared decision making in chronic illnesses a systematic review
topic Chronic illnesses
Decision aids
Shared decision making
url http://link.springer.com/article/10.1186/s13643-019-1034-4
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