Child and caregiver experiences and perceptions of asthma self-management
Abstract Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications w...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Nature Portfolio
2021-09-01
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| Series: | npj Primary Care Respiratory Medicine |
| Online Access: | https://doi.org/10.1038/s41533-021-00253-9 |
| _version_ | 1831638610918506496 |
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| author | Lauren Kelada Charlotte J. Molloy Peter Hibbert Louise K. Wiles Claire Gardner Emily Klineberg Jeffrey Braithwaite Adam Jaffe |
| author_facet | Lauren Kelada Charlotte J. Molloy Peter Hibbert Louise K. Wiles Claire Gardner Emily Klineberg Jeffrey Braithwaite Adam Jaffe |
| author_sort | Lauren Kelada |
| collection | DOAJ |
| description | Abstract Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications within and outside the home. We undertook 15 focus groups with 41 school-aged (6–11 years) children with asthma and 38 parents. Parents and their children attended the same focus groups. We used thematic analysis to analyse the transcripts. Our findings show the impact asthma can have on children’s social and emotional wellbeing and highlight how reliant school-aged children are on their parents to effectively manage their asthma. Parents reported being unsure when their child’s symptoms warranted visiting their doctor or hospital. Schools were identified as a source of difficulty regarding asthma management; families reported that children may be self-conscious about their asthma and using their inhaler at school. School policies and teachers’ lack of asthma knowledge were reported to exacerbate children’s reluctance to use their inhaler at school. Our results have implications for the design and implementation of children’s self-management interventions for their asthma, particularly when they are at school and away from their parents. |
| first_indexed | 2024-12-19T07:13:58Z |
| format | Article |
| id | doaj.art-b62b93b64678482691e8cae3a474855e |
| institution | Directory Open Access Journal |
| issn | 2055-1010 |
| language | English |
| last_indexed | 2024-12-19T07:13:58Z |
| publishDate | 2021-09-01 |
| publisher | Nature Portfolio |
| record_format | Article |
| series | npj Primary Care Respiratory Medicine |
| spelling | doaj.art-b62b93b64678482691e8cae3a474855e2022-12-21T20:31:07ZengNature Portfolionpj Primary Care Respiratory Medicine2055-10102021-09-013111710.1038/s41533-021-00253-9Child and caregiver experiences and perceptions of asthma self-managementLauren Kelada0Charlotte J. Molloy1Peter Hibbert2Louise K. Wiles3Claire Gardner4Emily Klineberg5Jeffrey Braithwaite6Adam Jaffe7School of Women’s and Children’s Health, Faculty of Medicine and Health, UNSW SydneyAustralian Institute of Health Innovation, Macquarie UniversityAustralian Institute of Health Innovation, Macquarie UniversityAustralian Institute of Health Innovation, Macquarie UniversityAustralian Centre for Precision Health, Cancer Research Institute, School of Health Sciences, University of South AustraliaMinistry of Health, NSW HealthAustralian Institute of Health Innovation, Macquarie UniversitySchool of Women’s and Children’s Health, Faculty of Medicine and Health, UNSW SydneyAbstract Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications within and outside the home. We undertook 15 focus groups with 41 school-aged (6–11 years) children with asthma and 38 parents. Parents and their children attended the same focus groups. We used thematic analysis to analyse the transcripts. Our findings show the impact asthma can have on children’s social and emotional wellbeing and highlight how reliant school-aged children are on their parents to effectively manage their asthma. Parents reported being unsure when their child’s symptoms warranted visiting their doctor or hospital. Schools were identified as a source of difficulty regarding asthma management; families reported that children may be self-conscious about their asthma and using their inhaler at school. School policies and teachers’ lack of asthma knowledge were reported to exacerbate children’s reluctance to use their inhaler at school. Our results have implications for the design and implementation of children’s self-management interventions for their asthma, particularly when they are at school and away from their parents.https://doi.org/10.1038/s41533-021-00253-9 |
| spellingShingle | Lauren Kelada Charlotte J. Molloy Peter Hibbert Louise K. Wiles Claire Gardner Emily Klineberg Jeffrey Braithwaite Adam Jaffe Child and caregiver experiences and perceptions of asthma self-management npj Primary Care Respiratory Medicine |
| title | Child and caregiver experiences and perceptions of asthma self-management |
| title_full | Child and caregiver experiences and perceptions of asthma self-management |
| title_fullStr | Child and caregiver experiences and perceptions of asthma self-management |
| title_full_unstemmed | Child and caregiver experiences and perceptions of asthma self-management |
| title_short | Child and caregiver experiences and perceptions of asthma self-management |
| title_sort | child and caregiver experiences and perceptions of asthma self management |
| url | https://doi.org/10.1038/s41533-021-00253-9 |
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