Doing co-creation: power and critique in the development of a European health data infrastructure
This paper engages with the translation of the abstract concept of Responsible Research and Innovation (RRI) into practice. Our investigation is situated within a large-scale European project seeking to develop a citizen-centered digital health data platform. We specifically engage with co-creation...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2023-01-01
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| Series: | Journal of Responsible Innovation |
| Subjects: | |
| Online Access: | https://www.tandfonline.com/doi/10.1080/23299460.2023.2235931 |
| _version_ | 1827227667482542080 |
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| author | Ulrike Felt Susanne Öchsner Robin Rae Ekaterina Osipova |
| author_facet | Ulrike Felt Susanne Öchsner Robin Rae Ekaterina Osipova |
| author_sort | Ulrike Felt |
| collection | DOAJ |
| description | This paper engages with the translation of the abstract concept of Responsible Research and Innovation (RRI) into practice. Our investigation is situated within a large-scale European project seeking to develop a citizen-centered digital health data platform. We specifically engage with co-creation practices and their potential for creating and maintaining inclusive environments generative of critique and empowerment. Critique for us means questioning practices and the modes of thought they rest on, both of ourselves and participants in the co-creation process. We combine a narrative analysis of EU funding calls framing the project with a reflection on our experiences as STS scholars during the co-creation process and on how citizens formulated their critique regarding the health data infrastructure. We end discussing the possibilities and limits of such a co-creation approach and the spaces and modes of critique made possible and, thus, how it lives up to the promises of responsible innovation. |
| first_indexed | 2024-03-12T16:16:44Z |
| format | Article |
| id | doaj.art-b6f1e0be29cf4a21a147ce5ef9722259 |
| institution | Directory Open Access Journal |
| issn | 2329-9460 2329-9037 |
| language | English |
| last_indexed | 2025-03-21T18:01:36Z |
| publishDate | 2023-01-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Journal of Responsible Innovation |
| spelling | doaj.art-b6f1e0be29cf4a21a147ce5ef97222592024-06-10T13:54:31ZengTaylor & Francis GroupJournal of Responsible Innovation2329-94602329-90372023-01-0110110.1080/23299460.2023.2235931Doing co-creation: power and critique in the development of a European health data infrastructureUlrike Felt0Susanne Öchsner1Robin Rae2Ekaterina Osipova3Department of Science and Technology Studies, University of Vienna, Vienna, AustriaDepartment of Science and Technology Studies, University of Vienna, Vienna, AustriaDepartment of Science and Technology Studies, University of Vienna, Vienna, AustriaDepartment of Science and Technology Studies, University of Vienna, Vienna, AustriaThis paper engages with the translation of the abstract concept of Responsible Research and Innovation (RRI) into practice. Our investigation is situated within a large-scale European project seeking to develop a citizen-centered digital health data platform. We specifically engage with co-creation practices and their potential for creating and maintaining inclusive environments generative of critique and empowerment. Critique for us means questioning practices and the modes of thought they rest on, both of ourselves and participants in the co-creation process. We combine a narrative analysis of EU funding calls framing the project with a reflection on our experiences as STS scholars during the co-creation process and on how citizens formulated their critique regarding the health data infrastructure. We end discussing the possibilities and limits of such a co-creation approach and the spaces and modes of critique made possible and, thus, how it lives up to the promises of responsible innovation.https://www.tandfonline.com/doi/10.1080/23299460.2023.2235931Infrastructureco-creationdigital healthmodes of critiquefrictions |
| spellingShingle | Ulrike Felt Susanne Öchsner Robin Rae Ekaterina Osipova Doing co-creation: power and critique in the development of a European health data infrastructure Journal of Responsible Innovation Infrastructure co-creation digital health modes of critique frictions |
| title | Doing co-creation: power and critique in the development of a European health data infrastructure |
| title_full | Doing co-creation: power and critique in the development of a European health data infrastructure |
| title_fullStr | Doing co-creation: power and critique in the development of a European health data infrastructure |
| title_full_unstemmed | Doing co-creation: power and critique in the development of a European health data infrastructure |
| title_short | Doing co-creation: power and critique in the development of a European health data infrastructure |
| title_sort | doing co creation power and critique in the development of a european health data infrastructure |
| topic | Infrastructure co-creation digital health modes of critique frictions |
| url | https://www.tandfonline.com/doi/10.1080/23299460.2023.2235931 |
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