Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth
The stillbirth rate among Aboriginal and Torres Strait Islander women and communities in Australia is around double that of non-Indigenous women. While the development of effective prevention strategies during pregnancy and improving care following stillbirth for women and families in communities ha...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2024-04-01
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| Series: | Frontiers in Public Health |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpubh.2024.1385125/full |
| _version_ | 1827280974367424512 |
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| author | Luciana Massi Luciana Massi Carolyn Lewis Skye Stewart Diana Jans Rupesh Gautam Lina Jalloub Anneka Bowman Philippa Middleton Philippa Middleton Sue Vlack Frances M. Boyle Frances M. Boyle Carrington Shepherd Carrington Shepherd Carrington Shepherd Vicki Flenady Deanna Stuart-Butler Kym M. Rae Kym M. Rae Kym M. Rae |
| author_facet | Luciana Massi Luciana Massi Carolyn Lewis Skye Stewart Diana Jans Rupesh Gautam Lina Jalloub Anneka Bowman Philippa Middleton Philippa Middleton Sue Vlack Frances M. Boyle Frances M. Boyle Carrington Shepherd Carrington Shepherd Carrington Shepherd Vicki Flenady Deanna Stuart-Butler Kym M. Rae Kym M. Rae Kym M. Rae |
| author_sort | Luciana Massi |
| collection | DOAJ |
| description | The stillbirth rate among Aboriginal and Torres Strait Islander women and communities in Australia is around double that of non-Indigenous women. While the development of effective prevention strategies during pregnancy and improving care following stillbirth for women and families in communities has become a national priority, there has been limited progress in stillbirth disparities. With community permission, this study aimed to gain a better understanding of community experiences, perceptions, and priorities around stillbirth. We undertook an Indigenous researcher-led, qualitative study, with community consultations guided by a cultural protection protocol and within an unstructured research framework. A total of 18 communities were consulted face-to-face through yarning interviews, focus groups and workshops. This included 54 community member and 159 health professional participants across remote, regional, and urban areas of Queensland, Western Australia, Victoria, South Australia, and Northern Territory. Thematic analysis of consultation data identified common themes across five focus/priority areas to address stillbirth: Stillbirth or Sorry Business Baby care needs to be family-centered; using Indigenous “ways of knowing, being, and doing” to ensure cultural safety; application of Birthing on Country principles to maternal and perinatal care; and yarning approaches to improve communication and learning or education. The results underscore the critical need to co-design evidence-based, culturally appropriate, and community-acceptable resources to help reduce existing disparities in stillbirth rates. |
| first_indexed | 2024-04-24T08:50:16Z |
| format | Article |
| id | doaj.art-b6f891bc617046788d9f3f94272d554b |
| institution | Directory Open Access Journal |
| issn | 2296-2565 |
| language | English |
| last_indexed | 2024-04-24T08:50:16Z |
| publishDate | 2024-04-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Public Health |
| spelling | doaj.art-b6f891bc617046788d9f3f94272d554b2024-04-16T12:22:38ZengFrontiers Media S.A.Frontiers in Public Health2296-25652024-04-011210.3389/fpubh.2024.13851251385125Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirthLuciana Massi0Luciana Massi1Carolyn Lewis2Skye Stewart3Diana Jans4Rupesh Gautam5Lina Jalloub6Anneka Bowman7Philippa Middleton8Philippa Middleton9Sue Vlack10Frances M. Boyle11Frances M. Boyle12Carrington Shepherd13Carrington Shepherd14Carrington Shepherd15Vicki Flenady16Deanna Stuart-Butler17Kym M. Rae18Kym M. Rae19Kym M. Rae20Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaIndigenous Health Research Group, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaCurtin Medical School, Curtin University, Perth, WA, AustraliaRed Nose Australia, Melbourne, VIC, AustraliaApunipima Cape York Health Council, Cairns, QLD, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaDepartment Aboriginal Communities and Families Research Alliance, South Australia Health and Medical Research Institute, Adelaide, SA, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaPregnancy and Perinatal Care, South Australia Health and Medical Research Institute, Adelaide, SA, AustraliaSchool of Public Health, The University of Queensland, Brisbane, QLD, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaInstitute for Social Science Research (ISSR), The University of Queensland, Brisbane, QLD, AustraliaCurtin Medical School, Curtin University, Perth, WA, Australia0Ngangk Yira Research Institute, Murdoch University, Perth, WA, Australia1Telethon Kids Institute, Perth, WA, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, AustraliaIndigenous Health Research Group, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia2Faculty of Medicine, The University of Queensland, Brisbane, QLD, AustraliaThe stillbirth rate among Aboriginal and Torres Strait Islander women and communities in Australia is around double that of non-Indigenous women. While the development of effective prevention strategies during pregnancy and improving care following stillbirth for women and families in communities has become a national priority, there has been limited progress in stillbirth disparities. With community permission, this study aimed to gain a better understanding of community experiences, perceptions, and priorities around stillbirth. We undertook an Indigenous researcher-led, qualitative study, with community consultations guided by a cultural protection protocol and within an unstructured research framework. A total of 18 communities were consulted face-to-face through yarning interviews, focus groups and workshops. This included 54 community member and 159 health professional participants across remote, regional, and urban areas of Queensland, Western Australia, Victoria, South Australia, and Northern Territory. Thematic analysis of consultation data identified common themes across five focus/priority areas to address stillbirth: Stillbirth or Sorry Business Baby care needs to be family-centered; using Indigenous “ways of knowing, being, and doing” to ensure cultural safety; application of Birthing on Country principles to maternal and perinatal care; and yarning approaches to improve communication and learning or education. The results underscore the critical need to co-design evidence-based, culturally appropriate, and community-acceptable resources to help reduce existing disparities in stillbirth rates.https://www.frontiersin.org/articles/10.3389/fpubh.2024.1385125/fullstillbirthAboriginal and Torres Strait IslandersIndigenousgrief and lossperinatal lossantenatal care |
| spellingShingle | Luciana Massi Luciana Massi Carolyn Lewis Skye Stewart Diana Jans Rupesh Gautam Lina Jalloub Anneka Bowman Philippa Middleton Philippa Middleton Sue Vlack Frances M. Boyle Frances M. Boyle Carrington Shepherd Carrington Shepherd Carrington Shepherd Vicki Flenady Deanna Stuart-Butler Kym M. Rae Kym M. Rae Kym M. Rae Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth Frontiers in Public Health stillbirth Aboriginal and Torres Strait Islanders Indigenous grief and loss perinatal loss antenatal care |
| title | Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth |
| title_full | Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth |
| title_fullStr | Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth |
| title_full_unstemmed | Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth |
| title_short | Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth |
| title_sort | looking after bubba for all our mob aboriginal and torres strait islander community experiences and perceptions of stillbirth |
| topic | stillbirth Aboriginal and Torres Strait Islanders Indigenous grief and loss perinatal loss antenatal care |
| url | https://www.frontiersin.org/articles/10.3389/fpubh.2024.1385125/full |
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